Paul Isaacs' Blog

Autism from the inside


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“Autism” A Wheel Within A Wheel (and so forth)

Seeing that “autism” has never been one thing,  I wonder if there will be a time in the future when autism will be seen as an adjective? When autism will been seen as plural (multi-dimensional)? Rather than singular definition (concrete/unmoveable)?

This would surely open up to a host of individuals with very different needs that could be considered, ventured and empowered.

This would be for all people on the spectrum who’s specfic realties and specific perspectives will quite rightly be acknowledged as their own?

Paul Isaacs 2016


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Autism & Visual Perceptional Disorders – Radio Interview “Reinventing The Illusion Of Vision” with Lawrence Bull

Overview

Last week I had the please of being interviewed by Lawrence Bull and radio presenter in  Australia of Think Digital Futures: Stories Of The Digital Age.

In this interview I cover from a personal perspective –

    • My developmental trajectory
    • My experiences of language development
    • My experiences of visual perceptual disorders
    • My experiences of not being a visual thinker
    • My experiences of tinted lenses
    • My views on autism and autism politics

Paul Isaacs 2016

 

 


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Asperger’s & The Conscientious Personality Type

All people have personality types that colour their being and “souls” for want of a better word and looking at the profile of Asperger’ Syndrome it certainly has been very interesting breaking down this profile can be put into these domains.

 These are the basics of the “profile” which can be separated into 5 different domains social perception, sensory integration, language processing, emotional perception and motor coordination.

Now let’s have a look at the conscientious personality type

  •  having strong moral principles and being certain
  • not resting until the job is done and done right
  • being loyal to families, causes, and superiors
  • working hard to do well
  • achieving and accomplishing things
  • loving to work and be challenged
  1. Hard work. The Conscientious person is dedicated to work, works very hard, and is capable of intense, single-minded effort.
  2. The right thing. To be Conscientious is to be a person of conscience. These are men and women of strong moral principles and values. Opinions and beliefs on any subject are rarely held lightly. Conscientious individuals want to do the right thing.
  3. The right way. Everything must be done “right,” and the Conscientious person has a clear understanding of what that means, from the correct way to balance the checkbook, to the best strategy to achieve the boss’s objectives, to how to fit every single dirty dish into the dishwasher.
  4. Perfectionism. The Conscientious person likes all tasks and projects to be complete to the final detail, without even minor flaws.
  5. Perseverance. They stick to their convictions and opinions. Opposition only serves to strengthen their dogged determination.
  6. Order and detail. Conscientious people like the appearance of orderliness and tidiness. They are good organizers, catalogers, and list makers. No detail is too small for Conscientious consideration.
  7. Prudence. Thrifty, careful, and cautious in all areas of their lives, Conscientious individuals do not give in to reckless abandon or wild excess.
  8. Accumulation. A “pack rat,” the Conscientious person saves and collects things, reluctant to discard anything that has, formerly had, or someday may have value for him or her.

What I would like to do with this is myth-bust to some degree what is the “Asperger’s” and what is simply a personality type that rides along with the overall profile the profile is split into 5 domains the other aspects are simply a personality type and I wonder if sometimes the two get confused as the same thing.

Idiosyncrasies, production and use of speech, conversation and are going to be a part of the mix and seeing the person as more than their disability is something a firmly advocate.

Paul Isaacs 2016


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The “Autistic Identity” Phenomena

When I was diagnosed was autism in 2010 – I wasn’t aware of such an “identity” because to honest I was never in that “world” at all. I often wonder that despite the obvious difficulties I had during my development and environment the one thing that I had going for me was the simple “human-hood” which was conveyed by the my parents as a way of connecting with me.

I don’t consider this perception from my parents to be “unique”, “specialised” or “autistic-specific” in its intentions nor in its thinking at the time (although it could have well be seen as that on reflection).

I wasn’t born with a “label”

In many of my blogs I have spoken about the balance of being seen as “human”, “person” and “being” first and as I have been in this “world” for over five years. I have seen the firm importance of seeing people as “people”, by not defining their whole “soul”, “identity”, “being” by their label (or labels) nor having it being overtly defined for them so there is nothing else left.

“Labels” are an adjective not an overall definition

If everybody was to be defined by solely by a “label” wouldn’t it be restrictive, suffocating and narrowing your bandwidth of experiences, perceptions, thoughts and feelings?

Not towing line meant I could see “myself”

I am glad that I haven’t towed the line into the realms of stereotypes, group think, confirmation bias and all the militancy that goes with it. I am glad that my parents after I was diagnosed said that I am still “Paul” regardless. I am glad that I see the importance of seeing somone as a person first. I am glad that I have other interests that take up my time productively such as drawing, poetry, walks in the countryside and meeting up with friends.

People are people regardless

I am free to think and feel and have a more refined outlook that I am firstly and thankfully not being the centre of the universe, not the big answer all  to the questions, not speaking for “all” (because no one can) and have a egalitarian view that all people are of equal worth in this world no more and certainly no less.

Paul Isaacs 2016


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When A Puppet Is On A String It’s Time To Cut It

Three Faces“Autism” has politics too

“Autism” I have wrote many blogs about the the differing presentations, the fact that it is isn’t one thing a  singular syndrome that features the same static 2 dimensional traits that is certainly what it is not.

Confusion because of the “status quo?”

When stereotypes emerge people can feel that their voices, perspectives and realities may well be a bone of contention for the “status quo” model.

Having that readily supplied to them they may be confused, bewildered, angry, upset, saddened that that what they are hearing doesn’t relate to them, their child, friend or family member because the “status quo” supplies them with “the model”, “the framework”, “the thing” that autism is (of course it isn’t but the is the supply).

What is “in” today will be “out” tomorrow

If you have felt any of these theses things I bring a hopeful and proactive realisation let it go, let it go of the stereotypes, let it go of the the generic models around autism, let it go of the popular fads – go with what is right, what is true and what what is really for you.

Paul Isaacs 2016


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If I Wasn’t A Person First Then What Would I be?

Me Baby Looking to SideThis is why I see myself as a “person first” because autism is not the sum and total of my being and I do not see as the totality of my existence, this isn’t because I am ashamed it is because I don’t faceblindness as “me”, simultagnosia as “me”, semantic agnosia as “me”, aphasia as “me”, alexithymia as “me” and all the other pieces of my autism “fruit salad” as the totality of “me”.

I have personality traits mercurial, idiosyncratic, self-sacrificing and serious which impacts and interacts with environmental and identity development and mental health co-conditions that come part of the “package”.

My experience is not an “autistic” experience (you cannot define that anyway) it is a collective experience as a person who happens to have a stacking of pre-existing conditions high enough for it be called “autism”

If I wasn’t a person first then what would I be?

Paul Isaacs 2016


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Mental Health: Reflections Of Moving On From Negative Environments

ShortsNote: This is from a personal perspective

Negative environments

Negative environments can leave “hidden difficulties” that become about to the mix of things that may not of been there when the person entered them. Mental health is tempestuous subject in itself but looking after one’s own mental health and being aware of the “warning signs” of mental health issues can be a very difficult one to acknowledge and accept that is happening.

Slow escalation of events

Sometimes events can slowly build up from behaviours of others, this may have a slow gradient like effect that initially may seem quite “mild” in the sense that the overall impact is small and may well be just secluded to the event which happened and the person is able to get on with their day with no trouble at all.

Sometimes “resolve” doesn’t come in the form you expect

What if that situation lacks resolve but you yourself want a resolve? What is the situation is being mishandled? And you yourself want it to be handled correctly?

With a moral compass for feelings to not only be acknowledged but to withhold a balanced and healthy level of objectivity.

If those basic foundations aren’t in place for whatever reason and you feel trapped and/or obliged to keep going, there is going to be a tipping point and decision making that needs to be addressed, surely for the benefit of the parties involved.

Let go of the situation and the people within it

My reflections are only from a personal perspective on whence they happened but I believe that one of the primary mistakes that were made by me was to keep staying for the long term – I know why I did. It was primary because I didn’t want to leave; it made me feel uncomfortable for the future and what that meant in the long term.

Positivity and new experiences are valued

When I left the situation my mental health improved gradually to a point where my mental health was on an even keel and was not impacted by mood disorders, emotional regulation problems, clinical depression, and personality disorders. The “invisible chains” that had shackled me where gone I had gained a level of control, autonomy, roundedness with the ability to look back not in shame, self-pity but that a lesson was learned.

Paul Isaacs 2016

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