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Autism from the inside


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Autism, Words, Aphasia, Body & Visual Agnosias

Sound Asleep

Note this is from a personal perspective

Aphasia and Words

Words in my mind felt ethereal, transient and distant the internal garbel of sounds, pitches, tones, hums and inflection as if my unconscious mind was trying so desperately to find the words, string the sentences anew to project and receive in “real-time” on some level I believe in my later years that is what I was trying to do. The jumble of a “salad of letters” in my mind could be found and then lost in equal measure.

Oral Apraxia and Word Finding and Formation

The functional element of my speech was delayed in both speech and language the aphasia was both receptive and expressive in nature with a high instance of anomia (word finding). The other element is oral apraxia which rendered me unable to form the words I would find leaving me disconnected and frustrated.

Receptive Aphasia, Body Agnosia & Associated Visual Agnosias

The receptive element of speech for example someone talking to me was the same external garbel as was in my mind a silent war between expresser and receiver trying to find clarity amongst the hidden mist of miscommunication.  The inability to perceive my own body meant a level of internal groundedness was  not their and context was missed time and time again. I relied on the touch, taste, smell, texture these feelings gave me a context to grab onto and create an association it is no surprise to me that my Mum through I was deaf and blind because that is exactly how I was behaving my language processing and sensory perceptual systems (visual agnosias) were so scrambled the credible and most importantly meaningful option was to “feel to think”, “feel to relate”, “feel to connect”, “feel to be”, “feel to extract” and the list goes on.

Creating My Own Language

Before interpretative language sets one could be creating their own language through association, things they have heard and seen on the television, jingles on the radio or other stands of information that bears relevance to an event and/or emotional meaningful response. In my case this was form of communication which looked meaningLESS to the listener but was meaningFUL to me as the expresser.

Memory and Internal Mentalising 

A memory with no associative images for words and no words for images meant my style of learning and integrating was not logical in nature nor literal this is secondary reason why my language and visual-verbal processing was delayed and slower, however as the years progressed I was building up a slow repertoire to words and my functional speech came around 7/8 years old this was expressively and developmentally in terms of content and formation of a 3 year old this new “voice” at times rendered me equally mute and frustrated.

Conclusion

Looking at the broader instance of different aspects that make up language processing difficulties in autism one needs to look at what is making the difficulties piece by piece, how that has an impact on the person and then work on positive and empowering and meaningful interventions.

Paul Isaacs 2017


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Autism, Visual Distortion & Image Break-up

There are many people on the spectrum such as Temple Grandin that have strong visual memories not only for fact retrieval but in her case she has used her visual way processing to help her with her career in animal slaughter.

Some people on the autism have problems with not only processing visuals in “real-time” but also accessing it, contextualising it and having what I call “image retrieval” this means the person in question may not only have problems processing and internalising what is around them (visually) they may well have issues with image retrieval this means they may not connect the image with word because they have no idea what the image is so there is no were for the “word” to or they may have an issue once they have processed the image to give it the correct word that is associated with it. For me words have to be associated with a “feeling” not emotional specifically but how the object for example “felt” as I am typing this will remember the typewriter by the “texture” of the keys that my fingers are touching.

This may sound and look odd for the onlooker and rightfully so – but is the person has so many sensory “blockages” touch in the context of “meaning” may well be one of the only ways in which they can access the “world” in way which is not only comforting (for some) but meaningful its relevance.

This may well not be just restricted to touch and feeling it may well also include licking, sniffing, mouthing too to objects, people and the physically surroundings. Visual break-up may look like the child is blind which in my case my Mum thought I was which would indicate I was showing behaviours of a blind person. (as well as a deaf person because of auditory processing).

Paul Isaacs 2016


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Life With Visual Perceptual Agnosias Within Autism

“Having Visual agnosias as apart of my autism means I rely on textures, sounds, movement and placement rather than logic or literalism. I know I live in a different world perceptually than other folks on the spectrum.”

Paul Isaacs Adult With Autism 2014


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Speech & Language Processing -The Words Within Myself & How Precious Words Are

Me Holding Something 2OVERVIEW

This is a personal overview of my Autism “Fruit Salad”

For the first 5 years of my life I was functionally non-verbal (internal jumbles of sounds with words within myself but unable to come out) and there was a massive disconnect, words were sounds, sounds had no origin, language was internally and externally jumbled so I had no language with meaning in my head, people were fragmented blobs making “noises” to each other, when I had budding moments of connectivity I lost them due to a mouth and tongue not coordinating. Of course the capacity for words was within me  and words were within me but sensory perceptual issues and coordination issues played their part in this. 

I did begin to piece things together I was aware of what others were saying about me in the playground at primary school for example, this is documented in my first book Living Through The Haze.

Parts of my Fruit Salad played apart in this such as

  • Simultagnosia – seeing things in bits and pieces, losing “wholes” and “connecting dots things where all fragmented.
  • Semantic Agnosia – I touched to perceive, to experience, to navigate, to sense, to connect, to understand my own self in relation to other and I also touched to communicate.
  • Aphasia – words where like sounds with no meaning, context or function other than it was a sound emitted from a fragmented blob as time progressed contextually words would come. and go however because of my outward behaviour I listened to some very ignorant things about myself without others connecting I was listening/processing.
  • Auditory Agnosia – I heard sounds and even now I wonder contextually where they come from sometimes sounds fill with wonder and confusion.
  • Visual-Verbal Agnosia – This along with Dyslexia made it hard for me to read with meaning and an understanding of what was on the page in front of me.
  • Oral Apraxia – One of the reasons I struggled to speak in the early years was the physically disconnect between my brain finding words and my body expressing them.
  • Echolalia/Echopraxia/Echomimia – These were used during my period of development where I was experimenting with words and movements and sounds – this was during the time I acquired functional speech 

More info on my webpage about speech and language processing 

Sensory ExplorerTV Shows

I loved Mighty Morphin Power Rangers and Hook my gate way to movement and language – when functional expressive speech came at 7/8 years old, it was developmentally that of a 3 year old I have to admit I was scared of this new language and wanted to go back but I kept moving forward. I still rely on the sensing system and at home I use this language still, I am glad that had parents that didn’t write me off. 🙂

All Profiles Are Different & Other Forms Of Communication

Please realise that all different profiles are different and please also be aware the people who do not speak through their mouths have a  human right to be able communicate, this is something I feel strongly about and something that should be embraced and acknowledged.

Paul Isaacs

Adult With Autism 2014  

 


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Autism -Myopia (Short Sightedness), Visual Agnosias & Tinted Lenses

OVERVIEW

As a child I appeared both deaf and blind due to complex visual and auditory agnosias which affect how I “see” and “hear”  the world, when I was 5 years old I was diagnosed with shortsightedness (myopia) in my right eye and given glasses what this blog is going to go through is the the differences between and physical sight issues and neurological  percuta sight issues and in my case how they can co-exist, what worked and what didn’t.

MyopiaSHORT SIGHTEDNESS AND CONVENTIONAL GLASSES

In my right eye I have slightly  blurred vision this is due to a condition of the eye called myopia, this can be “corrected” either by eye glasses, contact lenses or refractive surgery. I had conventional glasses at 5 years old, however by “correcting” the physical aspect of my right eye it  didn’t “correct” the complex neurological  aspect – visual agnosias – and this what was still persistent during my years with conventional glasses – which are

 

Brain Lobe 2VISUAL AGNOSIAS – “BLINDNESS” IN THE BRAIN CONVENTIONAL GLASSES DIDN’T HELP MY VISUAL PERCEPTUAL ISSUES

Visual agnosia is often due to bilateral damage in the posterior occipital and/or temporal lobe in the brain

With my conventional glasses all the problems were still there all during my educational years I had problems with visual fragmentation only seeing “pieces” never “wholes”, not seeing depth (everything seeming flat and 2D, not seeing with meaning, reading with meaning,  letters and numbers being jumbled, my sense of body was “fragmented” and where my body was in space, time and movement even with my right eye “corrected” I was neurologically “blind” to the right side of my body and what I was “seeing” – as I have stated in previous posts because of my visual agnosias I live in a sensory based world.

CONVENTUAL GLASSES CAUSED

  • Headaches
  • Heightened Fragmentation
  • Increased Fatigue
  • Decreased Concentration

TINTED LENSES – FITTED 2012

With years of having conventional glasses I was diagnosed formally with scotopic sensitivity syndrome, visual agnosias and learning difficulties by James Billett when I first tried my tinted lenses on it was like magic in many ways as I saw things wholes, my balance and body language improved instantly, words and letters where configured more, I read faster processing words quicker and numbers quicker, I moved better in space and could process visuals in light.

CONCLUSION

From a personal perspective myopic vision and visual agnosias both play apart in the way I perceives the world however I would say the agnosias had the greater impact in my case as my Mum thought I was totally blind in my younger years, but I’m glad that although shortsightedness was recognised that eventually my visual perceptual disorders where finally recognised too, maybe we need to look at folks on the spectrum who have both issues with their eyes and visual processing and see what works best for them for me personally  conventional glasses didn’t work but tinted lenses do.

 

Paul Isaacs Adult with Autism 2014

 


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Prosopagnosia, Simultagnosia, Semantic Agnosia And How I Remember People on the Autism Spectrum

IMG_0076[1]OVERVIEW

Note – This is a personal perspective of visual agnosias

I was recently at the National Autistic Society Awards 2014, and mapping and remember people can be difficult because I cannot process faces, objects, the tints help me walk into and process many visuals in “real-time” and I have no visual memory, I still need to touch to perceive because of semantic agnosia.

I don’t recognise people by their faces (prosopagnosia) but with the tints help with visual coherence and generalising and defragmenting my visual environment  and also eye contact  so I recognise people firstly by –

  • Their voices and I recognised one of the speakers at the event by their voice
  • The next person I recognised the person by patterns of movement
  • The next person coming up to me a telling me their name
  • The next by Kathy the Manager of Autism Oxford telling  me the person’s name and thus making the connection
  • The next person also by their patterns of movement
  • The next person by their name tag

DONNA WILLIAM’S WHAT IS AUTISM BLOG?

Paul Isaacs Adult with Autism 2014


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Visual Fragmentation – Autism & Simultagnosia – Autism Fruit Salad D. Williams Explained Part 5

OVERVIEW

Personal account of Visual Fragmentation & Simultagnosia. 🙂

Enjoy 🙂

Using Donna Williams Fruit Salad Analogy (1995/2005)

Paul Isaacs Adult with Autism 2014