Paul Isaacs' Blog

Autism from the inside


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Anna Kennedy – Autism & Mental Health Workshop

Mental health issues effecting 70% on the spectrum… a far cry from the old days where if you had any moodanxietycompulsivedissociativeattachmentadjustmentemotional or behaviouralpersonality or identity disorders or psychosis you were trolled with you ‘couldn’t possibly ALSO be autistic’. Alternatively people without functional communication who also have mental health issues traditionally have had their mental health issues almost as standard fobbed off as ‘part of their autism’.

Donna Williams 2016

Mental Health Co-Conditions Covered In Workshop

Mood Disorders

  • Emotional Dysregulation
  • Bipolar Disorder
  • Cyclothymic Disorder
  • Dysthymia
  • Depression

Anxiety Disorders

  • OCD
  • Exposure Anxiety
  • Social Anxiety Disorder/Social Phobia
  • Panic Disorders
  • Separation Anxiety
  • Catastrophising

Psychosis

  • Hallucinations
  • Delusions
  • Substance Induced Psychosis
  • Schizophrenia
  • Schizoaffective/ Schizophreniform Disorder
  • Catastrophising – Psychosis Related

Impulse Control

  • Body Repetitive
  • Bruxism
  • Dermatophagia
  • Skin Picking
  • Nail Biting
  • Nose Picking
  • Hair Cutting/Hair Plucking
  • Self Injury Disorder

Attachment Disorders

  • Attachment Disorder
  • Reactive Attachment Disorder
  • Social Engagement

Dissociative Disorders

  • Autistic PTSD
  • Derealisation
  • Depersonalisation
  • PTSD
  • Dissociative Disorder NOS
  • Dissociative Identity Disorder

Autism, Asperger’s Syndrome and Aspinauts

What Helped Me? (Personal Perspective)

Paul Isaacs 2021


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Lenny King – An Autism Journey With & Presuming Competence

Lenny & His Mum Sharon
Lenny & His Mum Sharon

I first met the friendly and welcoming Lenny many years ago during a consultancy session

Lenny King is an endearing, funny and compassionate young man whom is thriving in his teenage years. He has a deep and close relationships to have parents and sister Rosie and has a sense of wonder and interest about the world around him.

Oral Apraxia, Echolalia and Language Processing

Lenny was diagnosed with on the autism spectrum when he was 2 years old, meeting him it is clear that he has oral apraxia and this is to do with speech organs in the mouth (tongue, jaw muscles, lips) not going tandem with what someone is saying. He has echolalia and this is do do with having a language processing disorder and creating one’s own language (patterning, theming and feeling) – with emotional context, phonic relatability and feeling words as opposed to their interpretive use.

Lenny has a great affinity for music and enjoys and eclectic array of songs – this seems have a profound impact on him as his body moves, sways also most in its own synchronistic modulations.

Sensory Perception, Object Blindness (Simultagnosia) & Meaning Blindness (Semantic Agnosia)

Lenny navigation of his external world suggests that he has sensory perceptual challenges if one can imagine for a that your sensory organs work but the feedback or information gets fragmented or distorted in some way – what system would you use? To create connections he is tactile kinesthetic in which he will feel his external world with great intent such as sand, blades of grass etc, When walks into a rooms he goes in around “dead space” and at times looks through and use peripheral vision to free information processing to “see”. This is extends to the way in which Lenny communicates and interacts with people touching their faces could be a way of creating context and association on a personal and emotive level.

Faceblindness, Body Agnosias & Mirrors

Lenny is fascinated by this face in the mirror and he at times brings his face up close and makes very distinct contortions around his mouth, lips and teeth. He seems to pay great inspection to these areas and there could be many reasonings to why this is happening.

Some people can be faceblind to their own face and on a subconscious level building up an external movement based “map” of what certain gestures look like could be one option, the other could be that he sees this person as an existential “friend” or “familiar person”. It took Donna Williams well into her twenties to understand she was looking at “herself” and me until I was sixteen. The final one could be a marriage of the above and be an getting a sense of his own “body as a whole” with the specific sways, body pressure and movement a to great a sense of reality and clarity/association.

Competence and IQ

I remember saying Lenny once not long ago “You are intelligent” to which he quickly replied “Yes!” this suggests to me that although he has complex language processing, sensory perceptual challenges and communication disorders and that his systems are on the plain of sensing much live his sister Daisy – in which he feels, merges with people, places and his surroundings and is able to connection on an emotive/introspective level that must never assume that “intelligence has a look”.

Lenny is intuitive, friendly, personable and highly idiosyncratic and self driven in all areas of his life and it is pleasure to be in his company.

Paul Isaacs 2021


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What is Communication & Interaction? Should We Look Deeper?

All people have different ways of interacting with people based on many different factors. This is from a personal perspective.

Personality Types, Conversation & Self

For example I am idiosyncratic so I have deep, introspective emotive conversations with people as a preference, I am solitary by nature so I feel comfortable with my own self, I struggle with praise and prefer sometimes more balanced and objective, real observations of things, I am mercurial so I can flit between different cultures, friendships but I am mindful about the challenges of borderline – lack of self identity, sloppy boundaries and emotional dysregulation (which has a 60 percent crossover with autism), I am self-sacrificing so I am willing to aid, support and help others in need but must be care not to present myself as a doormat, I am serious and can be intense and conversations and prone to depressive episodes.

Ego-syntonic Nature of Co-conditions & Complex Information Processing

OCD drove my to be solitary out of the shackles of the conditions, Exposure Anxiety caged me from the want to connect, dissociation was both and ally and enemy when I was severely meaning deaf/blind and being context blind at least allowed me to appreciate (and partly retain) the system of sensing being etc.

Information processing stuff such as faceblindness, simultagnosia mean I struggle with a shared sense of social, language processing disorder means I can go “deaf” to meaning however just KNOWing this information gives me something to work upon.

A lot of Contrast & Subjective Natures?

I think the situations you talk about are mixture of culture, environment, expectations (social, intercultural, gender, context) and how one’s brains are able to keep up (regardless if they are on the spectrum or not), personality types/clashes of ideals, perceptions, rules, outlooks.

Conclusion

It’s a melting pot that people look yourself accordingly – in the end it is what works best for you.

Paul Isaacs 2021


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The Toxicity Of The Autism Community

Narcissistic Projection, Adornment Narratives & Superficial Behaviour

We are all up for judgement my advice to anyone whom makes assumptions come to the person first rather than creating a reality in your in mind in which you believe to be real. In certain facebook autism groups have become contrived, toxic, self-serving and unhealthy to be around.

Ownership and Respect

This goes beyond the remit of healthy disagreement or a basic acknowledgement of someone’s realities. If assumptions and projected realities which I do not stand for nor the lack ownership for one’s words or how they looked.

Faux Inclusivity & Confirmation Bias

If people wonder why the autism community is so broken, then maybe we should start taking a look at the conduct that militant advocates are taking in guise of help, empowerment and inclusivity?

True Inclusivity – It’s More About Others Than You

Is it inclusive to ignore people with dietary disabilities, gut, immune and metabolic disorders?

Is it inclusive to ignore fundamental basics neurology and/or biology?

Is it inclusive to see autism as everything about a person? Despite the three dimensional aspect of all human beings?

Is it inclusive to ignore people whom are functionally non-verbal?

Is it inclusive to use “neurotypical” (I prefer non-autistic) as a slur, put down or form of othering? Creating more division?

Is it inclusive to disregard one reality of autism because it doesn’t fit the status quo?

Is it inclusive to project and force a narrative onto someone without giving them the time or space to make up their own minds?

Is it inclusive to gossip, flame, swear and demonise people purely because they have a different reality to your narrative?

Is it inclusive to divide parents and children?

Is it inclusive that militant cultural and curist rhetoric (yes they have much more in common than not) gets more attention, air time and superficial interest than actually making a fundamental difference to people’s lives?

Be The Change You Want To See

I ask you is that healthy? Balanced? Overall what standards are we looking for? We as human beings should be the change and set examples not become bitter and ego driven.

Self Respect, Self Acknowledgment

Some people just take this playground mentality around with them. Sort your own stuff out first before you expect any meaningful change from anyone. I know my own self well enough to what happen was wrong regardless and I have at least have some self respect to know I am not deserving of it.

So politics are creating more fertile ground for these self serving agendas then with all due respect I want no part of it.

Paul Isaacs 2021


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NAS Lambeth/A2ndVoice Workshop – Autism & Education From A Personal Perspective

This workshop is about Autism & Education. Hosted by Venessa Bobb.

Further Information & Reading

Donna Williams Autism Hangout Video

Donna Williams The Fruit Salad Approach

Paul Isaacs 2021


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Profound Autism? Or More Complex Autism “Fruit Salads”?

Different Fruits Salads? Different Realities?

Some people have more complex autism “fruit salads which means the ideas around need certainly to addressed. Terminology does become polarising and inclusivity means looking at all realities, including one’s which challenge people.

Difference In Information Challenges?

Complex autism “fruit salads” may have these pieces. There are significant differences in Asperger’s and autism “fruit salads”. To say they are the same is misdirected.

Profound “autism fruit salads” could look like as follows-

Language processing disorders (aphasia/verbal agnosias).
Visual Perceptual disorders (face, meaning or object blindness).
Oral or full body apraxia and other communication challenges.
Body disconnection/body blindness (body agnosias) making one prone to self harm.
Underlying gut, metabolic or auto-immune challenges to information processing.
Acute levels of Exposure Anxiety.
Secondary Mood, Anxiety and Compulsive disorders that may have been present infancy.
Are still living in the System of Sensing.
Overall higher levels of visual-verbal information processing challenges.

Conclusions

Identity?

This means that you understand the pieces, produce competence and intelligence and never over invest in these challenges being “them”.

Politics?

Advocacy should always be a balanced, inclusive narrative. I see it as a professional responsibility not to feed the masses fables, buzz words or rhetoric.

Being Authentic & Objective?

It’s about being real and if that makes people uncomfortable then one must reason our why and come to a place of peace.

Paul Isaacs 2021


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NAS Lambeth/A2ndVoice Workshop – Autism & Language Processing Disorders Workshop

This workshop is about language processing disorders in the context of autism. Hosted by Venessa Bobb.

Further Information & Reading

Autism and Language A Journey To Functional Speech – Donna Williams

Wretches & Jabberers DVD Trailer

Paul Isaacs 2021


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The Problems With “Autistic Identity”& Stereotyped Perceptions

“Neurotypical” A Word Misused & Inaccurate?

There is no such thing as “neurotypical” in terms of a collective definition of people, viewpoints or principles.

It’s a word I never use as it seems to adorned a slur like status in projection. Bigotry is as such is not only based on stereotypes but I feel hinders more balanced narratives and objective dialogues and information sharing.

We Live In A Human World First Identities Come Second

This isn’t a “neurotypical” world either it is world full of different and sometimes conflicting ideas, notions and perceptions of “other” which then lead in extreme cases to towards conflicts in bias.

Autism Militant Projection & Distorted Narratives

Militant narratives burns more bridges than it claims to build, by having a narrow lense of how someone who isn’t on the autism spectrum acts, thinks, feels etc.

How does this build a platform for idea sharing, life sharing and forming healthy agreement and disagreement?

Non- Autistic Realities & Autistic Realities – All Human Beings Are Walking “Fruit Salads

There are different forms of non-autistic realities and some parts of those realities may be relatable to an “AUT-istic” experience such someone whom has faceblindness, object blindness or language processing disorder. In other words there are multi- faceted realities of being “non-autistic“.

For the AUT-ism is not a collective reality either, not everything is sensory, not everything is language processing, not everything is dyspraxia etc.

For these are potential facets of an AUT-istic experience but are separate and identifiable pieces in their own right, that can exist on their own terms and have different presentations.

The Problem With Identity- First Narrative

That is why Identity-First language is misleading because what “parts” one is choosing to relate may not be the “autism” (in their “fruit salads) anyway.

Paul 2020


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Autism Bucks Workshop – Autism As A Fruit Salad

This second workshop is an expansion of autisms using Donna William’s “fruit salad” analogy as the basis. I shall be adding links to expanding on some of the aspects which I spoke about.

Further Reading and Links

Autism & Social Emotional Agnosia

Autism & Alexithymia

Autism & Simultagnosia

Autism & Faceblindness

Autism & Auto-immune Disorders

Autism & Genetic Syndromes

Autism & Dietary Disabilities

Autism & Language Processing Disorders

Autism & Communication Disorders

Autism & Dyspraxia

Autism & Self and Other Integration & System of Sensing

Paul Isaacs 2020