Paul Isaacs' Blog

Autism from the inside


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Not Proud Nor Ashamed – Balanced About Being On The Autism Spectrum

Premature 1I Was Born A Human Being

I was born in 1986 and as far as I know I was born a human being just like the 7 billion other people on the this earth and of course I had my issues related to autism not being able to speak, not seeing the world as a coherent whole, faceblindness, receptive and expressive language disorders, oral apraxia, hemiplegia and list goes on. These thing are not “me” being face-blind isn’t me, being aphasic isn’t me and  being hemiplegic isn’t me either.

Autism A Describing Word

“Autism” is describing not defining for some people autism is a culture a place to be in and around a shared culture, however I do not believe that autism is a culture but has been created as such and maybe the question is who created culture? What rules apply? What rules don’t? What is “autistic”? What isn’t “autistic”?

I often wonder I feel however so more closer to being a human being then defining myself by one word which means different things to different people.

When I was formally diagnosed in 2010 with autism I was told by my parents that you are still “Paul” and this diagnosis only changes one thing that you aware of what difficulties you have had.

Autism Is Apart Of? Not The Defining Factor? 

I would agree with them and be understanding my autism and as clustering of differing conditions I was able to piece together my “autism” not as I saw fit but looking at deeply and introspectively enough to understand myself and hopefully empower others.

I know what autism is for me it is apart of not the defining factor I feel indifferent and balanced about what it means. I have done enough research and consultancy work to know that personality types, co-conditions, environmental factors, metabolic disorders, auto-immune disorderslearning types and communication styles,  will have an impact on the presentation of one’s “autism” so what does that mean?

  • Not one intervention works for all
  • Not all the issues are the same despite have a similar and/or same diagnosis
  • Not all people with autism have the same wants, needs, or desires
  • Not all people on the spectrum have the same communication profiles
  • Some people on the autism spectrum have auto-immune and metabolic issues which impact on functioning
  • Some people with autism have dietary disabilities which impact on learning and information processing 
  • Some people on the autism spectrum will have undiagnosed personality disorders and mental health co-conditions that keep being called “the autism” when they are not

I AM autistic but I HAVE immune deficiencies, I HAD cancer (apparently I can’t actually un-have it, its called remission) , I HAVE Ehlers-Danlos Syndrome… I also HAVE visual perceptual disorders, I HAVE language processing disorder, I HAVE mild learning disabilities.

I do not feel I AM these things, they are not ME, they walk alongside of me, often as parts of my autism, and whilst I AM autistic, just as I AM immune deficient, and I AM mildly learning disabled, Autism is not the sum total of who I am, it does not define my entire being or personhood, even if my personality traits are archetypally relatively ‘autistic’, I remain a person WITH autism… someone who HAS autism and, ok, IS autistic. The rest is war mongering militant separatist fascist crudola

– says Groucho
“PLEASE ACCEPT MY RESIGNATION. I DON’T WANT TO BELONG TO ANY CLUB THAT WILL ACCEPT PEOPLE LIKE ME AS A MEMBER”.

Polly Samuel 2013

Overall autism is not the defining factor of my me. My personhood that will always shine first not because I am ashamed of my autism nor because I am not proud of it either I remain balanced in what that means it gives me clarity and sanity. I am a human being first.

Paul Isaacs 2017


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My World – Living My Life Autism Support Service

OVERVIEW

What I like about My World (based in the UK)  is that they offer services for the whole spectrum and the inclusion of the whole spectrum is very important (as I have stated in previous posts) people  not being “written off”, but being taken as people with their communication, sensory and language profiles being taken into account and building bridges of communication and connectivity, promoting empowerment and confidence. 🙂

That is so important for these people the philosophy is to be open-minded, holistic and person-centred for the people that come to My World as the company name states “Living My Life” is very important. 🙂 That is how balanced personhoods grow. 🙂 Which we can all learn from to be balanced with someones Autism profile and their personhood.

Personhood first is something that My World advocate for as well as looking at the person’s Autism profile (communication, language and sensory profiles).

MY WORLD WEBSITE

Paul Isaacs Adult with Autism 2014

 

 

 

 


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Autism & Accessibility For All – Ann Memmott – Speaker, Trainer & Consultant

Ann Memmott ImageOVERVIEW

So now for Positive Interventions Ann Memmott is on the Autism Spectrum and is Autism Accessibility Consultant in the UK, I’m proud to know her a be her friend – I have learnt a lot from Ann in terms of buildings can affect a person on the spectrum on a sensory, cognitive and emotional level. She believes in accessibility for all. And she works on a person centred level. Thanks Ann for all that you do. 🙂

ANN’S WEBSITE