Paul Isaacs' Blog

Autism from the inside


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Thomley Families A Place To Thrive

 

Thomley

 

Image result for thomley families

It has been a year since Warren CEO and Joe Service Manager came to me with regards to being one of the many patrons of Thomley Families.

Moving Forward

I continue to enjoy the ventures, commitment that is made to improving the lives of people with disabilities at Thomley with the new construction of new Pavilion, expansion of the site, a dedicated staff team, fundraising ventures and community projects that set out not only to help the young people that attend Thomley but the family and friends also.

Empowerment

I have always been made to feel welcome and apart of the team this a firm reflection of the ethos that is instilled into the very fabric and ethos of Thomley Families as a place for people to be empowered, supported and to be connected. Many thanks

Paul Isaacs 2017


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Looking At What “Autism Is” Is That The Future?

I have been is the autism “world” as a speaker, trainer and consultant for well over seven years, I do not pretend to know all the answers nor I do project or promote that I have them all I can only speak from first hand experience of myself and the others that have been involved in professional capacity.

A 3D Diagnosis For The Future?

I what would like to offer a foundation of empowerment not because I know best but to give people the opportunity to find out about their “autism” what is made up of and the “mechanics” that go with it. I have wrote and documented my autism the fact that is made of being brain injured at birth, speech and language delays, sensory agnosias, aphasia, apraxia the fact that I have dealt with mood, impulsive and anxiety disorders also.

The fact that being borderline made me emotionally unstable, struggled with boundaries and also being schizotypal made me odd, aloof and detached from people and at times society. These “elements” are all about of my “mix” and words not only for these “pieces” empower not only the person in question but the services they come into contact with also family and friends.

Fruit Salad 2017

 

Looking Deeper, Looking Forward, Education & Empowerment

I went through my autism “fruit salad” at an event recently and asked if the diagnosis had pointed out the specific pieces how would they have felt? Also would this model benefit them it was a conclusion yes because understanding autism on thing but understanding the pieces of their children’s autism was felt to be very important, helpful, empowering and overall was a beneficiary to the services that they would come in contact with. Giving them not just the word “autism” but what it meant for them specifically.

My Autism Fruit Salad 1 Updated 2017

Autism Fruit Salad 2 2017

Autism Fruit Salad 3 2017

Conclusion

“Autism” is not “one thing” it is specific to each person also people do not have an “autistic personality” exclusive although personality types like solitary, idiosyncratic and conscientious would look more “autistic” but are smaller elements in the overall mix. I do believe that a person’s autism is everything about them because human beings are made up much than one element.

You can get  “non-autistic” personality types the people that challenge the stereotypes who could be equally adventurous and mercurial in their ways. For 2017 lets look at this from a broader perspective and empower people with knowledge that is worthy of making a difference.

Paul Isaacs 2017


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Autism -The Three Stages of Empowerment

Autism “Fruit Salads”(© Donna Williams 1995/2005/2014)

This is bottom to top analogy which implements all aspects of what could be in a person’s “autism fruit salad” to start off with the foundation is to understand the mechanics of what is within a person’s “autisms” (rather than autism). By looking at this we can separate it into these aspects.

  • Communication profile
  • Social-emotional profile
  • Emotional processing profile
  • Sensory Integration profile
  • Sensory Perceptual profile
  • Receptive Language profile
  • Expressive Language profile
  • Motor-coordination profile
  • Dietary profile
  • Auto-immune disorders profile
  • Learning styles profile
  • Personality types profile
  • Identity profile
  • Co-conditions profile

Interventions

These will be tailored to the specific needs of person’s profile/profiles looking holistically as well as professional for empowerment, guidance, social support, emotional support and/or any aspect of the person “autisms” that is within the mix. For example you could have someone who has exposure anxiety and dislikes direct confrontation and prefers an indirectly confrontational approach, is profoundly meaning deaf and aphasic. Think how you would build up that person’s profile and empower them?

An example

  • Gestural language
  • Aiding Mentalising by building up meaning and association
  • Being a follower not a leader or an expectant doer
  • Leave them wanting more and giving positive affirmations

Solutions

They will come in many forms as they marriage of each step relies on the one previous with regards to the “final step” this will be looking at what is working, aiding and empowering the person, their families, guardians etc. This could be put in an report or functional document for educational and professional services to have or it could be used as an information pack for friends and family the choice is yours.

Remember autism is not ONE THING it is a CLUSTERING of pre-existing conditions within one PERSON and that is the thing to realise that one person’s reality does not mean that is representational of all because that would mean a lot voices and realities would be left unheard it is time to change the landscape and starts with being open minded.

Paul Isaacs 2017


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Autism Has Wider Palette Of Experiences & Presentations

autism-pyramid-updated-2017

A Human World to be lived 

I haven’t blogged for a long time and sometimes that is fine you need to recharge your batteries and focus on other things in life. I have since realised that I have been writing for sometime on a vast array of different subjects, topics and genres. That being said in the years I have been in the “autism world” However well a live in a human world.

Looking Inwards and forward

The overall motif and thinking has progressed on a personal and professional level this is through self awareness and the awareness of other realities, perspectives, opinions, agreements and disagreements which are all part of the melting pot.

To The Future and beyond 

Looking at the title maybe it is self-explanatory “a wider palette” means that a I feel one of the ways in which autism awareness can go forward is the reading, listening, talking and communication as many differing presentations as possible.

SEEING THE PIECES & HAVING SIGNPOSTS

To ditch the militancy and politics that is harming and taking away from needs to be done, to ditch unhelpful stereotypes and to a see autism as a “fruit salad” that will educate and empower so that all voices and realities can be heard and acknowledged.

This means that the correct interventions, advocacy and support can be made some of this can be from the family and friends, other community based services and others professional.

fruit-salad-model-2017

 Autism to Autisms Many Pieces Of The Whole….

With that being said how many areas of “functioning” regardless of presentation could be help if we saw autism and pieces that are specific to each person? So once those pieces have been discovered and found  out then meaningful interventions can resume tailored for them be it.

  • Communication
  • Personality Types 
  • Sensory Perceptual
  • Sensory Integration
  •  Dietary 
  • Auto-Immune
  • Learning Styles
  • Life Skills
  • & More

 

Paul Isaacs 2017


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Being Thankful For My Parents

Mum and Dad Early 80s

Please note this is from a personal perspective

It may sound like a cliche in many ways to create a blog with a title such as “Thankful for my parents”  but that is how I feel I know that many people may not for many reasons feel the same as me and that is fine.

I am thankful for them because they  have given me good boundaries, have treated me as a human being then growing up as an infant, teenager and now as an adult, they do not let my disability “define the whole package” (I have written many a blog about that subject), guided me to know that failure and being wrong is normal part of life, to accept and take responsibility for both positive and negative actions, to help people who need it, to always be truthful and be true to yourselves.

I value their sage wisdom as many of these “mantras” and “life skills” come from past mistakes and “failures” but as my parents have noted failures are the fruits of success and success comes in many different forms as example setters for us all.

Paul Isaacs 2016

 


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“Autism” Isn’t A Culture – It Has Been Created As Such

culture1.jpg (132129 bytes)

 

A CREATED CONSTRUCT

“Autism” is not a culture that is the premise of this post looking at the the diagram above you can see in simple terms how a “culture” works firstly it is a social construct it has been consciously created by other people, adapted, worded, it has its core values and within those vales it its has rituals, and within those rituals it has its “heroes” and within its heroes it has its symbols of recognition.

SAY YOUR PRAYERS AND TAKE YOUR VITAMINS 

Why is this a worry within the context and confines of autism because what if you don’t fit the culture? Follows rules? Pray to the right “gods”? Follow its values and customs and overall practices? Does that mean you have gone to the “dark side” that your value has been lessened because you don’t follow suit?

WHAT IF YOU DON’T FIT? ARE YOU REALLY THE “ENEMY”?

What if this construct  is the very problem within the autism “world” what if is the overall restriction for commenting you own reality that doesn’t fit was the status quo? Why should a open and honest dialogue be challenged because is doesn’t fit in with what is going on? That to me that is the ultimate reverse prejudice you cannot talk about this sort of isolation if you are practising and enforcing that types of isolation (even if it is in the name of a “good cause”).

REFLECTION

I am by no means the brightest but something is wrong here. I am all for advocacy, information sharing and above all honesty and truth but that is so  that all realities are to be taken into account. Even if they are tough to hear they are valid part of the learning process surely?

LIVE YOUR LIFE AS A PERSON 

The best examples of living life is by that very nature living it, ignore the politics, passe customs and overall dogma and just “be” there something fulfilling about just “being” and existing on a personal note my Father has helped by example to do this because life is short.

Paul Isaacs 2016


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I am not a “Label” I am A Human Being First

Baby Pictures High ChairI don’t know about you but when I was born I was born a person, lets ditch the rhetorics and start listening to other peoples realities and opinions (regardless of were they come from) and accept that disagreement will come but everybody as their own things to say. Lets not be restricted by a “box” or the what is “in crowd” I thank the people who have said their realities with conviction, honesty, rawness and carrying on their lives as best they can be the example and don’t just claim it. I am not “autism” if doesn’t “define” my being it rides along life it not a “definition of my life”. I acknowledge those on  and off the spectrum who are honest about the realities lets start listening and going from there keep going even if you don’t do not feel listened to, no popular do not worry at the very least (or most you have been true you and have not be influenced by the dominant wave.) 

Fanciful fable a baby in a cradle
New life and new wonders able
A hand from “in crowd” does beckon
I walk in feel more lonely I reckon

I’m not those things you said “we” all are
I am not a part of a redundant single star
You say things as fact, straight lines so subjective
When all I want to be is “me” more reflective

A puppet on a string I cut them off and look around
The strings a still attached with words and the same sound
I got back to the “real world” so eagerly with open arms
It may not be perfect but honesty has its ethereal charms

I am part of the humanity no label defines me I shall deface
Of flesh and blood and gleefully I move from place to place
The words are rubbed away sounding through the sky
I now what I am from life to death a smile and a sigh

Paul Isaacs 2016