Paul Isaacs' Blog

Autism from the inside


Leave a comment

Donna Williams’ Autism Fruit Salad – Bridging the Medical and Social Model of Disability

When Donna published “Autism: The Inside Out Approach” in 1996 it was the beginning of a trail-blazing analogy which would look at autism from the factual, compassionate and directional angle.

Looking Outside The Box

It would ditch rhetoric, confirmation bias and group think it would challenge people views (rightly or wrongly) about autism as a singular condition but look at it through the lens as a multi-faceted condition in which the person has their own unique “pieces” which would present differently from person to person.

Setting A Fluid Framework

She quite rightly humanised medical conditions that present themselves as apart of someones autism such as visual perceptual disorders such as faceblindness, simultagnosia and semantic agnosia and expand on the themes of context blindness in pragmatic but emotionally binding way.

Breaking The “Status Quo”

She would advocate for people who had severe apraxia and aphasia as a part of their autism and would need facilitated communication and assisted communication tools. She would advocate for people who struggled with ABA programs which triggered exposure anxiety. She would challenge the status quo of “all people with autism think in pictures” or “all people with autism are logical literal thinkers”. She would advocate for people with health conditions as a part of their autism.

Equalism

She would quite rightfully not tolerate internalisd bigotry within the autism world and would promote a heart warming and expanding message of egalitarianism which in means equality for all which is not just said but put into practice in a person’s daily life.

Let her videos, blogs and books inform you and empower you for in the end what she wanted out of you was to the be the best version of yourself.

Paul Isaacs 2019


Leave a comment

Anxiety Disorders and Autism

Sound Asleep 2Autism And Anxiety? 

When one looks at “autism” and what is “autism” to say that anxiety is autism or autism is anxiety we do you mean by that? When we look at the clustering and overlapping issues that can make a human being anxious it is not exclusive to  autism that someone gets anxious, depressed, lonely, isolated, confused and at a loss. One’s reality should be taken as it is not as a false projection of what is should be.

Autism Doesn’t Have A Collective “Look”

This is why I get worried about the “autistic culture” movement stating what “is” and “isn’t” an “autistic reality” personally I would like to know what such a “reality” that is?

A Human Life? 

I certainly don not live an “autistic life”. I live a human life like everyone else on the planet these stereotypes are not only unhelpful but can cut-off people whom do not fit the status quo and if that is the case then that is just reverse bigotry.

What Is Behind The Behaviour? Is It More? 

When look at different aspects of anxiety based disorders one has to look at what they are in terms of presentation and if they overlap with something this could be for example certain personality types that are more driven by hyper-vigilance, obsessive-compulsive states or over-thinking/analysis.

CATASTROPHIZING
EXPOSURE ANXIETY
GENERALISED ANXIETY DISORDER
PANIC DISORDER
PHOBIAS
SEPARATION ANXIETY DISORDER
SOCIAL ANXIETY DISORDER
SOCIAL PHOBIA

TECHNOLOGY RELATED
GAMING ADDICTION
INTERNET ADDICTION DISORDER

OTHER
BEHAVIORAL ADDICTION
OCD
TOURETTES

(taken from “what is autism” donna william’/polly samuel’s blog page)

Lets look at facts not fads.

Paul Isaacs 2016


Leave a comment

Asperger’s & The Conscientious Personality Type

All people have personality types that colour their being and “souls” for want of a better word and looking at the profile of Asperger’ Syndrome it certainly has been very interesting breaking down this profile can be put into these domains.

 These are the basics of the “profile” which can be separated into 5 different domains social perception, sensory integration, language processing, emotional perception and motor coordination.

Now let’s have a look at the conscientious personality type

  •  having strong moral principles and being certain
  • not resting until the job is done and done right
  • being loyal to families, causes, and superiors
  • working hard to do well
  • achieving and accomplishing things
  • loving to work and be challenged
  1. Hard work. The Conscientious person is dedicated to work, works very hard, and is capable of intense, single-minded effort.
  2. The right thing. To be Conscientious is to be a person of conscience. These are men and women of strong moral principles and values. Opinions and beliefs on any subject are rarely held lightly. Conscientious individuals want to do the right thing.
  3. The right way. Everything must be done “right,” and the Conscientious person has a clear understanding of what that means, from the correct way to balance the checkbook, to the best strategy to achieve the boss’s objectives, to how to fit every single dirty dish into the dishwasher.
  4. Perfectionism. The Conscientious person likes all tasks and projects to be complete to the final detail, without even minor flaws.
  5. Perseverance. They stick to their convictions and opinions. Opposition only serves to strengthen their dogged determination.
  6. Order and detail. Conscientious people like the appearance of orderliness and tidiness. They are good organizers, catalogers, and list makers. No detail is too small for Conscientious consideration.
  7. Prudence. Thrifty, careful, and cautious in all areas of their lives, Conscientious individuals do not give in to reckless abandon or wild excess.
  8. Accumulation. A “pack rat,” the Conscientious person saves and collects things, reluctant to discard anything that has, formerly had, or someday may have value for him or her.

What I would like to do with this is myth-bust to some degree what is the “Asperger’s” and what is simply a personality type that rides along with the overall profile the profile is split into 5 domains the other aspects are simply a personality type and I wonder if sometimes the two get confused as the same thing.

Idiosyncrasies, production and use of speech, conversation and are going to be a part of the mix and seeing the person as more than their disability is something a firmly advocate.

Paul Isaacs 2016


1 Comment

The “Autistic Identity” Phenomena

When I was diagnosed was autism in 2010 – I wasn’t aware of such an “identity” because to honest I was never in that “world” at all. I often wonder that despite the obvious difficulties I had during my development and environment the one thing that I had going for me was the simple “human-hood” which was conveyed by the my parents as a way of connecting with me.

I don’t consider this perception from my parents to be “unique”, “specialised” or “autistic-specific” in its intentions nor in its thinking at the time (although it could have well be seen as that on reflection).

I wasn’t born with a “label”

In many of my blogs I have spoken about the balance of being seen as “human”, “person” and “being” first and as I have been in this “world” for over five years. I have seen the firm importance of seeing people as “people”, by not defining their whole “soul”, “identity”, “being” by their label (or labels) nor having it being overtly defined for them so there is nothing else left.

“Labels” are an adjective not an overall definition

If everybody was to be defined by solely by a “label” wouldn’t it be restrictive, suffocating and narrowing your bandwidth of experiences, perceptions, thoughts and feelings?

Not towing line meant I could see “myself”

I am glad that I haven’t towed the line into the realms of stereotypes, group think, confirmation bias and all the militancy that goes with it. I am glad that my parents after I was diagnosed said that I am still “Paul” regardless. I am glad that I see the importance of seeing somone as a person first. I am glad that I have other interests that take up my time productively such as drawing, poetry, walks in the countryside and meeting up with friends.

People are people regardless

I am free to think and feel and have a more refined outlook that I am firstly and thankfully not being the centre of the universe, not the big answer all  to the questions, not speaking for “all” (because no one can) and have a egalitarian view that all people are of equal worth in this world no more and certainly no less.

Paul Isaacs 2016


Leave a comment

In The End We Are ALL Human Beings & That Is Fine

To stay grounded and not get whipped up be the construct of “other” through “fame” – to be seen as a “being” that is on an equal plane is far more rewarding, beneficial socially, emotional binding empowering. People are after all are people and one is no better nor worse than anybody else be yourself.

Then maybe we would live in more selfless (rather than selfish) society.

Paul Isaacs 2015


Leave a comment

An Accessible Look At My Autism Profile – Part 1

ReceptionThis is a laymen’s terms/accessible version of my autism profile – although I have written previous blogs with technical information about the “mechanics” of my autism here is an “easy read” version of my autism which is broken down into a heading and paragraphs and/or sentences with hyperlinks attached for further information. 

As always this is from a personal perspective.

Alexithymia (Emotional Processing)

Not understanding, processing or receiving my own emotions in “real time” this also affects how I understand bodily messages such as thirst and hunger – Poetry, painting , drawing and music help me process my emotions contextually.

Aphasia (Language Processing)

I have processing delay with language this means I struggle to find words, lose them, find them again and lose them again etc – I live before literal and struggle to find significance in language – however music, bests, rhythm and gesture help me access meaningful language.

Speech Delay (Developmental Milestone)

The developmental milestone of speech was delayed noticeably during my early years (please checkout other blogs for further information).

Language Delay (Developmental Milestone)

The developmental language milestone where delay even when speech was acquired.

Speech Apraxia (Verbal Dyspraxia) (Body Disconnection/Mouth)

I had a disconnect between my body and brain so my brain would have words but my body (mouth, jaws, tongue and lips) didn’t seem to want to “join up” this lead to feeling of heightened frustration to total indifference.

Selective Mutism – (once functional speech was acquired) (Co-Condition

In times of anxiety and/or dissociation I would choose to be mute

Tic Disorder & Globus Pharyngis (Co-condition/Mental Health) – 8 Years old – was called a “Nervous Throat”

This was due to a sensation of something being within my throat this would cause me to throat clear in an abrupt and idiosyncratic (odd) fashion.

Echophenomena (Developmental Milestones – Speech, Movement, Body Language)

  1. Echolalia – Echoing of words (delayed and instant)
  2. Echopraxia Echoing of movements (delayed)
  3. Echomimia Echoing of facial expressions (delayed)
  4. Palilalia Echoing of one’s own words (instant/delayed)

Visual Agnosias (Visual Perceptual Disorders/”Seeing” without meaning and/or “Seeing” but not piecing the “wholes” together)

Semantic Agnosia (Meaning Blindness)

Not retaining what is being seen so I would tap, sniff, lick, rub, mouth and tongue to gain a reality and an experience of my environment.

Simultagnosia (Object Blindness)

Not seeing in wholes – so seeing “fragments” and not seeing the “whole picture”

Prosopagnosia (Face Blindness)

Not processing faces and/or recognising  people by their faces.

Visual – Verbal Agnosia (Comprehension Blindness)

Reading without internalising/retaining meaning

Colour Agnosia

Seeing colours but not processing/understanding or recognising differentiation between them by name (in my case I recognise red but struggle to sometimes name of colours)

Mirror Agnosia (visual processing) 

Not understanding nor processing “other” or “self”  in mirrors for example I would and still get fooled by mirrors and when I was younger used to think that was behind me was in front of me.

Form Agnosia (Visual/Cognitive/Auditory & Contextual) 

Not configuring the “whole”

Pure Auditory Agnosia (Auditory Perception)

Not processing/understanding or the “origins” of sounds and associating them when I next “hear” them.

Language Auditory Agnosia (Meaning Deafness)

A type of aphasia (Language processing disorder).

Tonal Agnosia (Atonia) (Language Processing)

I “hear” tone but sometimes do not associate with meaning.

Pain Agnosia (Body Disconnection) 

I do not process pain at all or there is a significant delay in recognition.

Visualspatial Dysgnosia (Body Blindness)

I do not recognise my body in space so I wear tight clothes, bracelets, tight shoes to get a “reference” of my body.

Finger Agnosia (Digit Blindness)

As a child I had trouble reference that I had fingers and “where they were” this was due to body disconnection.

Paul Isaacs 2015


Leave a comment

Autism & What About Humanity? And Connectivity?

Family Christmas Early 90s

Dad, Gramp & Me Just “Being”

Autism it just “is” when I go out in the world the biggest thing for me is to be apart of humanity, people, beings – so when I go down the street what do you “see” and what do.

I “see” – “Autism” is a name for a clustering of pre-existing conditions which I have which for me are (PERCEPTUAL, LANGUAGE EXPRESSION, AUDITORY, LANGUAGE RECEPTION, BRAIN INJURY, MOVEMENT, COGNITION) this is PERSONAL to me but they affect how I process things/understand things – they do not define my TOTALITY nor are they “ME” I am artistic, idiosyncratic, emotive, emotional, creative, solitary, serious, funny, silly etc those things are what is called shared things with other people (regardless of any disability or not).

Autism is something I am neither proud or nor ashamed of it just “is” I was born a person so I would rather people see me as a person (as everyone else should be) not to be swept up by stereotypes, or militancy or “them” and “us” perceptions, but be seen as person. I am not a an “object” to be observed nor am I a “genius” to be revered – so if we look at being balanced about things then we open up more doors then close them. I am no “better” nor “worse”. We (as human beings) are all equal. 

Paul Isaacs 2015