Paul Isaacs' Blog

Autism from the inside


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My World- Autism, Ethos & Humanity

I am pleased an eagerly proud to be working for a small autism organisation called My World and day centre for people on the autism spectrum. This summer it shall be four years of service to which I have contributed my consultancy work.

With people who have a narrow, conceited and reductive view of what autism “is” and how one is supposed to “act” and “behave” noting that it has “one look” so therefore “one approach and intervention” is wrong and that doesn’t happen here.

At My World all the caring and empathic staff are valued, open-minded and willing to learn this means that what is taken is a person-centred approach, looking at the person’s mental health, learning styles, information processing challenges and ultimately sees them as people or equal worth and value going about their day and purcuits.

Our success is our ethos, open-mind natures, ability to learn new things and approaches and empathy which encourages people in the end to be the best version of themselves.

Paul Isaacs 2019


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Autism & Identity

I have never seen all of my being as autistic because the word is an adjective a describing word of an experience.

Current Experiences

I experience face blindness, object blindness and meaning blindnessas I do a language processing disorder, hemiplegia, body agnosias and associated learning difficulties.

Past-Tense Experiences

There are also experiences in the past tense such as over coming oral apraxia, high levels of exposure anxiety, selective mutism and gaining functional speech although it was a long road to doing so.

Personality Types

I have personality types such as Mercurial, Idiosyncratic, Self-Sacrificing and Serious (all human beings have personality types of varying types).

Conclusion

Autism is not ALL it is PART OF I see myself as a person a patchwork quilt made of many things. Autism just “is” I am neither proud nor ashamed. I seek balance not objectification. ūüėä

Paul Isaacs 2019


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Autism & What About Humanity? And Connectivity?

Family Christmas Early 90s

Dad, Gramp & Me Just “Being”

Autism it just “is” when I go out in the world the biggest thing for me is to be apart of humanity, people, beings – so when I go down the street what do you “see” and what do.

I “see” – “Autism” is a name for a clustering of pre-existing conditions which I have which for me are (PERCEPTUAL, LANGUAGE EXPRESSION, AUDITORY, LANGUAGE RECEPTION, BRAIN INJURY, MOVEMENT, COGNITION) this is PERSONAL to me but they affect how I process things/understand things – they do not define my TOTALITY nor are they “ME” I am artistic, idiosyncratic, emotive, emotional, creative, solitary, serious, funny, silly etc those things are what is called shared things with other people (regardless of any disability or not).

Autism is something I am neither proud or nor ashamed of it just “is” I was born a person so I would rather people see me as a person (as everyone else should be) not to be swept up by stereotypes, or militancy or “them” and “us” perceptions, but be seen as person. I am not a an “object” to be observed nor am I a “genius” to be revered – so if we look at being balanced about things then we open up more doors then close them. I am no “better” nor “worse”. We (as human beings) are all equal.¬†

Paul Isaacs 2015


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Being Brain Damaged – Is Apart of my Autism Profile – A Word That Just “is”

Baby Fisted Hands

Baby picture – note fisted/clasped hands and pointed toes signs of brain injury

Note – This is from a personal perspective of how autism affects me and my profile

Brain Damage/Injury

Brain Damaged and/or brain injury is apart of the reason why I have autism and certain “pieces” of it would not have been there but this is due to circumstance and environment the difficult birth, the placental abruption and oxygen deprivation that caused and stoke, left-right disorientation, visual perceptual disorders, language processing disorder (aphasia) and issues with internalising and externalising language and other developmental aspects.

A Human-Being РEveryone is Equal 

I have no problem with seeing this a part of the issues I face nor do I have an issue with the terminology being used in the this world today words sometimes to have to be used as marker and my case this is maker of a clustering of symptoms that I have as a result of brain injury – as I have stated in the title it just “is” and I am fine with this it doesn’t make me feel any more nor any less. I am “Paul” first (and to be honest always will be) everything else pales in the background of significance.

I have been dealt a set cards and I am going to use them to the best of my abilities. I am not a super-human, I am not the next generation of humanity, nor a super-being, I am not technical, logical or literal or “intellectual”.¬†I am afraid I am just a person.

Autism is Person Centred – It isn’t the Complete Definition of the the Person

I would however I say that I am creative (like art, poetry, wordplay, soundplay, textures, patterns, colours and fashion) and idiosyncratic (I play to the own beat) , mercurial (I listen to my emotions) and solitary (I like moments of my own company) ¬† – all the other things are redundant to me in the bigger picture they apart¬† of me¬†they aren’t me. I am just a person living life and that is really all. People can play with words all they want but sometimes it is better to get real if not for your sake then for others.

Paul Isaacs 2015


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Person First Language – Why It Is Of Value For Me

Premature 1Why I am A Person With Autism

Born a person first a little human being

Little “Paul” is what people were seeing

As I grew my personhood shone. so freeing

Something that all people are being.

My Autism is apart of me it doesn’t define the whole

I want be seen as more a noble quest my ultimate goal

Not everything is about my “condition” that takes its toll

Open your eyes ever look deeper into my soul

I am an artist I like to draw – my quirky imagination sores

I am a poet I like to write – my words are given clarity and flight

My speech, vision and language are at times fragmented

But this doesn’t mean I am eternally demented

See the person, their eager smile be with them for but a while

Likes and dislikes, wants and the needs these are but human deeds

I want people with open eyes too see I know that path fills with glee

 

That it is one’s personhood that connects you and me

Paul Isaacs 2015


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Neurodiversity – Sometimes Things Have To Be Questioned

Dr Casanova

Dr Casanova

I have a lot of respect for Dr Manuel Casanova and this a very revealing blog about the subject of neurodiversity and what it means – it is my opinion that no one person can “represent” autism just because they themselves are on the autism spectrum.

I Can Only Speak About My Reality With Autism

I make professional and moral judgement to say this is my profile and that is the ONLY place it is coming from (I can’t speak for others on the spectrum) – I say “I” and “me” not “us” and “we” in speeches (again I cannot speak for everyone on the spectrum that doesn’t make sense).

I don’t believe autism is a “culture” either (I am apart of the human race) and I think we need think about what is projected and who is losing out? Is it people who don’t tow the line, fit the “stereotypes” are not seen as good advocates because of their “functioning”. I wonder? I know we all have a story to tell? But is it right for someone to tell their story on everyone else’s behalf?

Empowerment & Acknowledgment Of Multiple Realities Of Autism 

Autism is a “Fruit Salad” it is not one thing, it isn’t one syndrome and it affects people in different ways so what Manuel is advocating is that the more realities we acknowledge and listen to the more understanding we have – their should be no single representation because the voices get lost, realities can form into assumptions and they are both dangerous and can make people feel isolated and alone in their struggles.

Autism As As “Fruit Salad” & Breaking Down “Stereotypes”

Fruit Salad Analogy Copyright D.Williams

Fruit Salad Analogy Copyright D.Williams

As Donna Williams analogy points out “Autism” is not “one thing” it is a clustering of different pieces that create the person’s on unique profile and presentation that means that logically no one person is the same on the autism spectrum, therefore realities within autism are different and people on the spectrum are not all the same, nor do they have same needs, desires or aspirations. I will take that one step further and say if someone got up on stage and talked about “non-autistic syndrome”¬† and made the assumption every one with this syndrome is the same¬†we would be in big trouble.

The Whole Spectrum & Personhood 

I am for one agree and for empowerment, inclusion, diversity but that must be inclusive to the whole spectrum of “Fruit Salads” and the realities within them¬†and seeing someone’s personhood is very empowering.

People With Classic Autism and/or Learning Disabilities & People Who Are Functionally Non-Verbal (Who Are Empowered By Different Forms Of Expressing Words 

Looking at the whole spectrum means looking at different profiles and presentations and the firm empowering inclusion of people with classic autism and/or learning disabilities¬†and people who are functionally non-verbal.¬†Sometimes I worry that people with these diagnosis’ (who are considered to have an “exotic” or “atypical” presentation) and profiles don’t get recognition or heard. They are competent folk who need support too and their realities should be explored and recognised. They deserve to have voice.

Parents Views

Parent’s views are very important too and explorations of different ways to empower, support and help their children is also needed.

Autism “Politics”¬†

I stay neutral and balanced like I point towards being a moderate in my views on autism accepting the diverse, different realities and people’s stories and what their own personal experiences are (be that a parent, guardian, person on the spectrum etc) all are valid.

I have said before that I’m not a “curist” and I’m not an “ableist” but a “neutral” because I believe everyone has a story to tell without going to unhealthy extremes if we listened with our hearts we would learn about each others experiences.

Other Blogs On The Subject

Please Include Everyone On The Autism Spectrum, Listening Is Positive & No One Person Can Speak For Everyone On the Autism Spectrum

Listening & Hearing Everyone‚Äôs Views In The Autism‚ÄĚWorld‚ÄĚ

Paul Isaacs 2015


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Being Balanced When Talking About Autism

“To be honest about something is the best way when I talk about autism in context I don’t glamorise nor do I demonise I stay moderate and try to stay real, true and balanced about this very vast subject. I speak from my own perspective and don’t speak for ALL (only my profile) and learn from others profiles that’s how one learns.”

Paul Isaacs 2014