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Autism from the inside


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Tinted Lenses, Visual Perceptual Disorders and Bridging The Gap Between “Non-Visual and Visual Worlds”

Note – This is from a personal perspective

Visual Agnosia Image 2017 

VISUAL PERCEPTION & AUTISM 

Some people on the autism spectrum have problems with filtering visual information which in turn distorts perception and what one is seeing, interpretation what someone takes out of what is being seen in terms of context and association and mentalisation that ability to internalise and integrate the visual memory in the form of a coherent, connected and retrievable memory.

WHAT TINTS CAN BE USED FOR?

If people live in a world of being object blind and meaning blind and ultimately context blind this can have an impact on socialising, bounding, learning and having the ability to retrieve multiple forms of incoming visual information at once. Tints work for people in different ways (if they are needed at all) – for some its sensory integration disorder, for some it is a level of dyspraxia, information overload and coordination, for some it is building up a visual context because of simultagnosia and/or semantic agnosia, for some its processing faces, for some its recognising and building upon and reading social cues, for some it is getting a sense of “self and other”, for some it is visual learning difficulties such as dyslexia, dyscalculia and being able to read and write with coherence, for some its aphasia and/or verbal agnosia and gaining a better grasp of language.

Donna Williams 2011

PERSONAL PERSPECTIVES 

70% of incoming information is visual and we take that information in as light waves – essentially as color. Tinted lenses are filters. They filter out different light waves. This reduces the level of incoming information which leaves a person more processing time. This can have different effects in different people. For some it may just help them relax more or feel more comfortable looking at faces or making eye contact, help them handle places with bright lights or being outside. For some it will allow them to read comfortably and with meaning or improve depth perception. For others it may help them better process language and ultimately speak more fluently. For some it may help them see things as a whole and recognise objects, faces, places, and begin to read context and social cues or have a better processing of a simultaneous sense of self and other.

Donna Williams 

Tinted lenses have helped me glue together a world which was largely bits and pieces that seemed shattered and unendurable, people shatter into fragments, objects floating with no clear base, foreground and background interchangeable, familiar voices with no face that seemed to match the warmth of familiarity. My language was also impacted to a certain degree with no internalisation of the visuals around me. Now I have tints they have made able to see faces with a level of coherence, looking at faces now I see a “whole” rather than “pieces” I am able to focus on their movements, body language and words, I can walk down the street and look at faces, places and people with a level with a level of coherence, I am able to better gauge “self and other” in conversations. I still have visual perceptual disorders however the tints have opened up and bridged my “non-visual to visual” world greatly.

Paul Isaacs 

Paul Isaacs 2017

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The System Of “Sensing” – My Friend The Colour Red

Postbox 2017

Note this is from a personal perspective 

My Friend The Colour Red

I see you without knowing

You are shown with no wanting need

My evoked body halted and time is stood still

Static and moveless body with a kaleidoscopic brain

My dizzying heights stupor the as my eyes grow wider

A peeking smile peeped across the face of the moment

What stickly feeling that evoked with the a swirling eternal colour

The System of Sensing 1998 2007

Paul Isaacs 2017


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Autism & Asperger’s Syndrome and “Doing vs. Being”

When we some people look at Asperger’s Syndrome and Autism it can be used interchangeably as the “same thing” but a “different presentation” between the two. If we look a little (or a lot) deeper you can actually find that the differences lie in brain hemisphere dominance and neglect and all that comes with it.

Autistic’

Reliant on the mapping of pattern/theme/feel known as ’Sensing’, with intermittent use
of interpretative processing at the level of the literal
Mono tracked processing with moderate to severe information processing delay.
Indirectly Confrontational, self in relation to self

The struggle here is the use of switching between “being” and “doing” states this means that the person is going from a “sensing” state to an interpretive state.

Asperger’s’

Interpretative processing at the level of the literal intermittent processing
beyong the literal to the ’significant’,
Generally Mono tracked processing with mild information processing delay

Those with Exposure Anxiety are indirectly-confrontational and self in relation to
self. Others are able to manage directly confrontational other-initiated social
interaction but generally lack a simultaneous sense of self and other

The struggle here is the opposite the use switching between “doing” and “being” this means that although the person gets a level of “significance”  they may get “stuck” in a state of over thinking.

Exposure Anxiety is one of the three faces of “Autism”
Notes from a presentation by Donna Williams
At Flinders University, Friday Jan 16th 2004

Autism Doesn’t Run On”One” System

There is not one “system” in autism and that is part of the larger issue, by promoting tired stereotypes and linear 2D presentations of “collective autism” in which the person is assumed to think, act, react and behave in the same manner is rather passe and potentaily dangerous.

Looking deeper, being objective and opened minded to the varying presentations that both “Autism” and “Asperger” fruit salads supply as an adjective and a description can lead down to meaningful roads of empowerment.

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Paul Isaacs 2017


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Book Review Autism Decoded: The Cracks in the Code: Volume 1 By Stella Waterhouse

 

This books is a must read for parents, professionals and people on the autism spectrum 

Stella Waterhouse has been a professional in the field of autism since the 1970’s with a whole wealth information that taps into the very soul with resonance and deep thought, she clear has a passion for getting the knowledge out there by presenting different aspects in chapters with detailed and accessible writing.

From detailed historical elements of autism, professionals and advocates on the autism spectrum  written with eager candor, emotion and objectivity to the multi-faceted nature of autism broken  down into accessible  pieces.

  • Sensory Perceptual Disorders
  • Sensory Processing
  • Theory of Mind
  • Context Blindness
  • Language Processing
  • Exposure Anxiety 
  • Alexithymia
  • Personality Types
  • OCD, ADHD and other co-conditions
  • Short/Long Term Memory
  • System of “Sensing”
  • Facilitated Communication 
  • Left-Right Brain Functions & Brain Development 
  • Autism and Asperger’s Syndrome 
  • Savantism

The running theme in book contextual to the information based on the specific chapter is to give a human element that touches the reader, makes them think, reflect, perspective take, feel emotion and more.(with first person account and historical accounts).Woven with relative and  factual elements (such as the brain and nervous system) that broaden the palette and overall sphere of information giving rounded, objective and fluidity the runs from page to page.

This is a refreshing book that achieves the very title it was given looking beyond the stale and liner 2D nature of autism and opening up a broadening 3D perspective that will no doubt help generations to come. Highly recommended.

Paul Isaacs 2017

 


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Wretches & Jabberers DVD – A Journey Into Autism

Image result for wretches and jabberers

A moving and delightful movie and about two men on the autism spectrum who are both “functionally non-verbal” finding their voices through facilitated and typed communication. Debunking the myths that people who cannot speak with their mouths are “retarded” or “intellectually disabled”.

Tracy and Larry are best of friends and their passion for advocacy leads them to meeting others around the globe who are also yearning and fondly sharing their experiences and voices with a wider audience, showing great empathy, compassion, introspection and deepness through the words that they write to a wider audience. Bringing people into their world and inviting others to think, reflect and reevaluate what “autism” and “intelligence” even look like.  Showing great feats of creativity.

There is warmth, humour, sadness and hope sometimes all at once when listening the candid words and hopefully the viewer will come out of this experience with greater level of acceptance and make less assumptions about what is going on on the “inside”. Please all presume competence.

I highly recommend this DVD.

Paul Isaacs 2017


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“Idiosyncratic Language” & “Stored Language Responses” in Autism

Interpreative Languuage 2017 2.png

Note this is from a personal perspective

Sometimes language in terms of interpretation can be difficult to “use” and “explore” however it may not be a true representation of the “inner world” the person is living in.

Words could come out stilted, mixed up and not in order and if the order is there it may take a lot time to form and lead into a strand of information. When my language was in its earliest “fruits” it was mixture of echolalia which I got from movies, sounds, movements, pitches and dominated my mind but trying to learn “interpretive language” was  “forced” and came from a  “stilted “place”.

  • Give the person time to process the information if the person has a level of Aphasia, and/or Verbal Agnosia
  • Allow time if the person has a level of motor coordination issues such as Oral Apraxia, Body Apraxia and/or Body Agnosias
  • Try using Gesture, Tone, Inflection and Objects of Reference
  • Understand were the stored language is coming from – Exposure Anxiety, Problems with Integration “self and other” in conversation, Body Related “Highs”, Mood, Anxiety, Impulse Control, Selective Mutism and/or Emotional Regulation 
  • See the Person First and Presume Competence

Before functional speech it a swill of verbal and visual information that I could not grasp nor mentalising in a fashion which was tangible my “inner world” was very much there but is was struggle to get it out I didn’t have a lot words to use in my mind as it was endlessly swirling and as I got older (before my later infant years) I was slowly building a firm repertoire of words and has a lot I want to say but couldn’t.

When functional speech came at the around the ages 7/8 the it was expressively of a three year old (in developmental, content and constructional presentation) however this “voice” that seemed to be more “fluid” scared me and frustrated me at the same time as it still didn’t represent my “inner world” I was torn between complex stored responses the basics of “interpretive speech” and wanting to cut off from verbal speech altogether not being able to “hold” mental images of words also delay many aspect of my language but painting and drawing in many ways we’re a creative and communicative effort it created a bridge.

I certainly did not have a Asperger trajectory when it came to expressive and receptive language and getting the point of verbal and contextual significance so when I get tired and my language processing goes down. 

  • Speech will become slower and fragmented
  • I will have consciously find “interpretive speak” words
  • Sentence construction and word placement will be mixed
  • I will get “stuck” on a word and/or sentence focusing on how it sounds

I still type more words than I verbally “speak” however I am grateful that I can and I try and use it to the best of my efforts in fact typing has allowed me to express my emotions with much more clarity, cadence and deepness.

Paul Isaacs 2017


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Autism “Culture”, The Word “NT” and Militancy

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If people are representing one has to think about is it for other people? Self-service? Advocacy? Empowerment? Information sharing? 

Militancy Is it “Normal”?

If militancy is perceived as the norm then who is that actuality helping? Assisting? Or otherwise is this the new phase that becomes relevant before it becomes redundant and passe?

The leader of their group replied in a tone lacking in warmth, ‘it would have been better without any NTs present‘. The others chimed in in support of him. Alienated, I left them to it.

Later when they were buddying up with more of the same separatist rhetoric and there was a tone to it that sat uncomfortably with me, a tone I’d heard before, in hierarchical non-autie children in playgrounds once upon a time (where I’d also known nice ones).

I had to let this group know that I simply don’t do bigotry… that my non-autie friends are not typical, mundane, boring or expendable and that I refuse to use any derogatory term that hints they are such, such as ‘NT‘.

As you can imagine, they were quite taken aback. I was meant to ‘understand’. I was meant to be ‘one of them’. But if ‘one of them’ meant I was meant to hang out in a group and dislike or disrespect another group, and share this as ‘belonging’ and ‘shared culture’ and ‘shared understanding’ then this wasn’t ‘me’.

Donna Williams

If this is the case what example is being set? By noting ones perceived superiority or “specialism” over others is still bigotry, separatism and creates more waves of the old “them and us” which doesn’t represent inclusion, empowerment, reality-sharing or otherwise. Which burns bridges more bridges than it claims to build.

The Word “NT” It Isn’t Helpful

I have come to believe that the word “NT” is not only unhelpful  and has been projected in such a way that would imply that other people who fit this “label” are “typical” therefore one could perceive that word as “boring”. I find this not only hypocritical but also a mystery because in truth there is no such thing as a “neurotypical”.

Autism “Culturism and Militancy”

The English word militant is both an adjective and a noun, and is usually used to mean vigorously active, combative and aggressive, especially in support of a cause

One cannot cherry pick what autism is and isn’t as a shared collective that is same for everybody in the truth autism in its presentation and reality is different for each person so in order to advocate and empower you have to be aware that the only reality you can share is your own and be humble and conscious enough to say that. To allow other people’s realities to relevant you cannot speak for all, to empower you cannot project “reality sameness”  because no human being is the same.

No One Should Be Defined As One “Label”

Can anybody be defined by one factor? Can anybody describe themselves in one word? I do not define myself by my “autism” it is certainly apart me but it isn’t the driving factor at all. When I was born I was born a human being and all that comes with it I live as a human being. There is much to be said about in the end being emotionally grounded, considerate and realistic.

Egalitarianism – The Way Forward

Egalitarianism (from French égal, meaning ‘equal’) – or equalitarianism[1][2] – is a trend of thought that favors equality for all people.[3]Egalitarian doctrines maintain that all humans are equal in fundamental worth or social status,

My wish is that in order for this to work people must consider all realities, perspectives, opinions and input in a constructive manner that is overall beneficial.

Paul Isaacs 2017