Paul Isaacs' Blog

Autism from the inside


1 Comment

How Autism and Visual Perception affect Train Travel

Looking to provide the best possible experience for all passengers, GWR is working in collaboration for a second year with UK Autism charity Anna Kennedy Online increasing autism awareness to help its staff improve in meeting the needs of those travelling with autism.

For many with an Autism spectrum condition, some of the more commonly experienced issues is increased anxiety and sometimes overwhelming sensory processing information as well as the need for structure and reassurance.

There are around 700,000 people in the UK living with Autism – that’s more than 1 in every 100 people. GWR is committed to making rail accessible to all, and disability awareness forms part of that commitment. This awareness programme is improving the way GWR delivers customer service, emphasising the need for a tailored and personalised service for all customers, that meets their individual needs and wants.

Anna Kennedy OBE, Chairperson and founder of the charity shared: “ As charity we are proud to be able to help raise autism awareness for GWR staff. As a parent of two young men travelling by train has always been a difficult experience over the years due mainly to my youngest son who has significant sensory issues.

What can cause distress for him are whistles blowing, crowded platforms and noisy stations, doors banging can be a bit full-on and cause him anxiety due to a sensory overload. By sharing information with all staff this will hopefully help create a less stressful journey for him and many other families.”

Pete Dempsey, Operations Management Trainer at GWR, who is coordinating and helping to deliver the awareness sessions shared: “At GWR we strive to ensure all of our customers receive a great experience and part of delivering that aspiration is recognising that passengers have a wide variety of different needs, and different disabilities. We are pleased to be once again work with Anna Kennedy OBE and consultant Paul Isaac’s”.

Paul an Autism Ambassador and consultant to the charity has a diagnosis of autism and also has difficulties with visual perception. Paul and Anna met with Peter and shared how his difficulties impact on train travel.

Please see some of the issues talked about at the meeting which was then shared with GWR staff:

1. How does visual perception have an impact on your travel?

Visual perception in the simplest form is the ability to recognise, faces, objects, people, buildings etc 70 percent of information is visual so if you have perceptual challenges in these areas and a lot of the cues are visual (trains, maps, stations) then you can understand from a personal perspective how difficulties arise

2. How does visual perception have an impact on your surroundings? In train stations?

Without my tints all I can see is contrasts, colours and pieces of my surroundings with the inability to “join the dots” and create meaningful contextual relevance to what is being seen. I rely a lot on placement (things having continuity), voice recognition, my own patterns of movements in a round the space and area I am going.

3.How does face blindness have an impact on travel?

When I met people during a journey I struggle with processing faces so that means that I can search for someone quite readily regardless of how many times I have seen them. So what helps is people approaching me first as I usually wonder and/or go around the place or stand waiting, I try to remember their voices patterns, accents etc as way of gauging who they are, I look at people’s gait and patterns of movement

What also can help is the person saying who they are stating their full name and a prior situation which we have met before.

4. How does object blindness have an impact on travel?

If one is object blind its the inability to “juggle” multiple forms of visual information at once rendering the person not being able to see things in “wholes” only “pieces” this can mean that what I struggle with is firstly getting the relevance of what I am seeing, my conscious mind is being enveloped.

5. How does meaning blindness have an impact on travel?

Seeing without meaning is a difficult concept for people to understand because the sensory organs (eyes) work despite the processing of information being blocked in some way. If someone cannot “see” with associative “meaning” that means that the person needs to bring things to “life” through other means such as touch, texture and odour in my case give me an association and thus a memory. The problem I have is that I can get lost in colours, shimmer and shine so when moving around my environment I have to use my conscious to not get “lost” in the sense.

6. Does it have and impact on processing maps?

It does because I cannot transfer the map and internalise them into a meaningful process that relates to what am reading in the association with were I am going.

7. Does it have an impact on your energy levels?

Of course that has an overall impact on other areas of my functioning such as language processing so I sometimes have to rest between stops if I have enough time.

Peter Dempsey and AnnaKennedyonline are pleased that working in collaboration GWR 3500 staff are expanding and improving their knowledge on social requirements for those individuals diagnosed with an Autism spectrum condition

Paul Isaacs 2019


3 Comments

Autism, Semantic Agnosia & “The Eyes That Don’t See”

Shorts

Note – This is from a personal perspective
The Eyes Are Deceptive?

Think about it a person who eye’s are organically “normal” and the ability “see” from an psychical perspective is there but the brain is not able to process visual information that is coherent and meaningful.

Sensory Explorer 2
Reality vs. Context? The Hidden Link

As a child association was created through my body this could be through objects and or people. Touch gave me a reality and context that my eyes could not the contours of what touched beamed into my inner world as a way of saying “hello” to the outside from inside and secret bridge that was being made every time.

Quinn and I
Movement, Mapping and Tactile Association

I was eager to be bare foot and “mapped” out my surroundings, movements, twists and turns around the “dead space” that enveloped in was both my enemy and my friend all at once. Touching, licking, sniffing, tapping and rubbing gave “life” to everything around me on an unconscious level of was working out world.

• This is the most studied type: easier to detect.
• Stimuli misrecognized visually, can be recognized:
– through tactile manipulation
– from verbal description
– based on its characteristic sound or noise
object
early visual processing
image viewer-dependent
object-centered (3D)
(2 and 1/2 D)
(
episodic structural description
)
structural description system
semantic system
output phonological lexicon
object naming
AGNOSIAS & SEMANTIC DEFICITS Raffaella Ida Rumiati, Cognitive Neuroscience Sector Scuola Internazionale Superiore di Studi Avanzati Trieste, Italy
A Blindism

One could call this a “blindism” a state in which visual perception is not giving the associative signals and/or visual association of what an object “is” regardless of where you find it, what angle you see and so forth. This could lead problems with context and a distortion of memory.

Conclusion

As an adult I still rely more on my movements that what I am “seeing” this means that can still get lost in my surroundings but with my tinted lenses this is able to keep my conscious mind on track with meaning.

Paul Isaacs 2017


Leave a comment

Olga Bogdashina & Donna Williams – The Link Between Agnosias, Sensory Perceptual Disorders & Autism Profiles

Olga-BogdashinaOlga Bogdashina

I have a lot of respect for her. A very lovely lady  I saw her last October at the National Autistic Society she spoke about Autism and Sensory Issues which includes Sensory Sensitivities but ALSO Sensory Perceptual Disorders which she calls Sensory Agnosias – Agnosias can be an important part of a persons’s Autism “Fruit Salad” (Donna Williams) She covers many of them including ProsopagnosiaVisuospatial dysgnosiaSemantic AgnosiaSimultanagnosia and many more.

OLGA’S BOOKS LINK

OLGA PROFILE LINK

OLGA’S PDF PRESENTATION

Donna Williams Copyright D.Williams and C. Samuel

Donna Williams Copyright D.Williams and C. Samuel

Donna Williams

I also have a lot of respect for, a lovely lady also. She has written extensively from personal and professional views on the inter-linkage of Agnosias and how they’re with a person’s Autism profile. From her own personal memoirs, books, blogs and presentations and many years as an Autism Consultant.

DONNA’S BOOKS

DONNA’S WEBSITE

Developmental Agnosia (n.) DEFINITION

1.(MeSH )Loss of the ability to comprehend the meaning or recognize the importance of various forms of stimulation that cannot be attributed to impairment of a primary sensory modality. Tactile agnosia is characterized by an inability to perceive the shape and nature of an object by touch alone, despite unimpaired sensation to light touch, position, and other primary sensory modalities.

Autism, sensory perception and agnosia by Donna Williams

Two Warrior Women Indeed 😉

Paul Isaacs 2014