Paul Isaacs' Blog

Autism from the inside


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“Neurotypical”, Reverse-Bigotry & The Warped Lense Of Equality

 

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Not this is from personal experiences

“Neurotypical” Is Inaccurate & Misleading? 

The word Neurotypical is used to describe people who are “non-autistic” but what if we have got that all wrong? What if the barriers are being created by the assumptions of what “autism” is that then thrusting one’s own presumptions of what it is like to be “non-autistic”?  I think that there really is no such thing.

Bigotry Is Still Bigotry 

Reverse bigotry is still that bigotry and if someone is using the words “NT” or “Neurotypical” to dehumanise, belittle or bully someone then surely that very generalised assumption if wrong? How does that become validated? Is it a sense of one’s own self importance, ego, group think and conformation bias, upbringing and/or past experiences? What gives someone the right to say these things and not take social emotional impact it has on the people in question?

“Autistic Identity”

This has worryingly been created through a “narrow” bandwidth of what autism “is” and “isn’t” but also what being “non-autistic” “is” and “isn’t”. The truth is there are far more similarities between people than not so why over invest in stereotypes? Which in the long run give people  a generic tick list of “traits”?

More Voices? More Perspectives? 

If we created so many degrees of separation do we strive to lose our objectivity? Being grounded means looking at things from the angle of non-bias. I have seen too much militancy that means that some people’s experiences have been silenced because they have not fitted the status quo that means there is rhetoric and that is unhealthy. Equality is for everybody.

No one “owns” autism it is not a thing to be bought or sold, no one should be able to cherry pick what autism “should look like” because guess what? It doesn’t have a “look” and more you give it one ironically the more voices will be lost.

Paul Isaacs 2018

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Valuing The NHS

Image result for nhs jobs

 

 

I seldom watch the news as I find it very odd at times. They were talking about social/community care cuts that are happening in around the country at rapid speed. The sadness is real as the head of a council made an excuse on the older populous and people with severe disabilities. To provoke such as response in which people must accept such cuts as a necessary act that people have to “deal with”.

I find it amazing that in 2018 people see “care” as something that the “state” should not fund for and somehow that seems to the overall case. I wish the people would understand that when people vote for right-wing polices the impact they have on services run for and by the state. It means cuts to vital services the infinite bloodline for people who need it. Profit should not be put before people, their wants, needs, desires.

The NHS will stand but it needs the staff and funding to work successful manner that benefits the service it provides by constantly saying the NHS is at “breaking point” implies that “it” is the problem that is not the case it was the most forward thinking and progressive service that was created.

If we go to a nationwide private system sick people will not have the money to fund their own treatment even simple dental check-ups would be missed causing great pain and social/emotional stigma and that is just one example. We do need to protect our NHS because it is for everybody I have no doubt that it will stand and keep going but as a state run service people need to have their say the patients and staff for it to work as solid unit.

Paul Isaacs 2018


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Not Proud Nor Ashamed – Balanced About Being On The Autism Spectrum

Premature 1I Was Born A Human Being

I was born in 1986 and as far as I know I was born a human being just like the 7 billion other people on the this earth and of course I had my issues related to autism not being able to speak, not seeing the world as a coherent whole, faceblindness, receptive and expressive language disorders, oral apraxia, hemiplegia and list goes on. These thing are not “me” being face-blind isn’t me, being aphasic isn’t me and  being hemiplegic isn’t me either.

Autism A Describing Word

“Autism” is describing not defining for some people autism is a culture a place to be in and around a shared culture, however I do not believe that autism is a culture but has been created as such and maybe the question is who created culture? What rules apply? What rules don’t? What is “autistic”? What isn’t “autistic”?

I often wonder I feel however so more closer to being a human being then defining myself by one word which means different things to different people.

When I was formally diagnosed in 2010 with autism I was told by my parents that you are still “Paul” and this diagnosis only changes one thing that you aware of what difficulties you have had.

Autism Is Apart Of? Not The Defining Factor? 

I would agree with them and be understanding my autism and as clustering of differing conditions I was able to piece together my “autism” not as I saw fit but looking at deeply and introspectively enough to understand myself and hopefully empower others.

I know what autism is for me it is apart of not the defining factor I feel indifferent and balanced about what it means. I have done enough research and consultancy work to know that personality types, co-conditions, environmental factors, metabolic disorders, auto-immune disorderslearning types and communication styles,  will have an impact on the presentation of one’s “autism” so what does that mean?

  • Not one intervention works for all
  • Not all the issues are the same despite have a similar and/or same diagnosis
  • Not all people with autism have the same wants, needs, or desires
  • Not all people on the spectrum have the same communication profiles
  • Some people on the autism spectrum have auto-immune and metabolic issues which impact on functioning
  • Some people with autism have dietary disabilities which impact on learning and information processing 
  • Some people on the autism spectrum will have undiagnosed personality disorders and mental health co-conditions that keep being called “the autism” when they are not

I AM autistic but I HAVE immune deficiencies, I HAD cancer (apparently I can’t actually un-have it, its called remission) , I HAVE Ehlers-Danlos Syndrome… I also HAVE visual perceptual disorders, I HAVE language processing disorder, I HAVE mild learning disabilities.

I do not feel I AM these things, they are not ME, they walk alongside of me, often as parts of my autism, and whilst I AM autistic, just as I AM immune deficient, and I AM mildly learning disabled, Autism is not the sum total of who I am, it does not define my entire being or personhood, even if my personality traits are archetypally relatively ‘autistic’, I remain a person WITH autism… someone who HAS autism and, ok, IS autistic. The rest is war mongering militant separatist fascist crudola

– says Groucho
“PLEASE ACCEPT MY RESIGNATION. I DON’T WANT TO BELONG TO ANY CLUB THAT WILL ACCEPT PEOPLE LIKE ME AS A MEMBER”.

Polly Samuel 2013

Overall autism is not the defining factor of my me. My personhood that will always shine first not because I am ashamed of my autism nor because I am not proud of it either I remain balanced in what that means it gives me clarity and sanity. I am a human being first.

Paul Isaacs 2017


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When A Puppet Is On A String It’s Time To Cut It

Three Faces“Autism” has politics too

“Autism” I have wrote many blogs about the the differing presentations, the fact that it is isn’t one thing a  singular syndrome that features the same static 2 dimensional traits that is certainly what it is not.

Confusion because of the “status quo?”

When stereotypes emerge people can feel that their voices, perspectives and realities may well be a bone of contention for the “status quo” model.

Having that readily supplied to them they may be confused, bewildered, angry, upset, saddened that that what they are hearing doesn’t relate to them, their child, friend or family member because the “status quo” supplies them with “the model”, “the framework”, “the thing” that autism is (of course it isn’t but the is the supply).

What is “in” today will be “out” tomorrow

If you have felt any of these theses things I bring a hopeful and proactive realisation let it go, let it go of the stereotypes, let it go of the the generic models around autism, let it go of the popular fads – go with what is right, what is true and what what is really for you.

Paul Isaacs 2016


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No One Should Be Poor – The Top Down Society

Social Security – Why make cuts in the first place? 

People with illnesses and disabilities should not keep “proving” something that they have and then run the risk of losing income because of “cuts”. Social security was put in place to aid and support the vulnerable in society – social security should not be up for cutting anymore as the price of living is increasing.

Remember the value of having a welfare and social security system

The problem with cutting welfare is it defeats the object and intention of what welfare is and who it is for people may have hard times in their life this not to say that I would want this on anyone but it can and does happen to people and wouldn’t it be moral and productive to help?

Different trajectories and reasons for using welfare and social security 

For example a person may lose their job and need a transition period between jobs  or they may have an injury or illness that means they are off work for a long period of time or have to (in some circumstances) quit work altogether.

Some people may acquire a disability in their life time such as a head injury, physical injury or both, some people may be born with such disabilities and/or illnesses.

The National Health and other National Services 

Privatising national services -does that work? 

Everybody has the right to enter all forms of care in their lives from the basics such as general practitioner appointments, dental appointments, hospital appointments, “social” housing and other services that fall under national or local services. If you over privatise you are falling into a a “top down society” where it falls down to money and the people who are able to afford such services can but other’s may not be able to even get the basics.

This to me is a huge step backwards in both morality and common sense the national services are meant for everybody this means that is doesn’t matter where you are in the “class system” it is for “you” – I am glad that people have been supporting the nationalisation of NHS (which if you think about is odd that a “public service” is becoming “private”) I have faith that this will prevail.

Conclusion

In order to see the logistics one must filter through the nonsense the money deficit in this country doesn’t make sense when millions is being spent on one thing but not on another. If it continues to be used as reason for such cuts that keep happening then how deep can cuts go? It seems that people have rightfully being challenging the cuts and telling their stories of what it is like for them, their friends, families and people’s communities.

I live in hope common sense and a simple act of morality will prosper. Socialism in its true form is not flawed it is about building a fair, democratic equal society that is what people in general should strive for.

Paul Isaacs 2016


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Moving On – Political Egalitarianism

Egalitarian_and_equality_logoWe Can Do This

Moving Forward – With the recent positive and empowering comments made below with regards to the Government yes I believe we can move forward if people help each other we can challenge many things and call upon common sense and reality to do so, call upon the will for better future were Egalitarianism and equality for all, regardless of class, social status, gender, colour or religion – with social economy made fairer and accessible for all, social security/benefits more person-centred and empowering the ill and disabled, NHS to still be the NHS, the rich and poor gap to cease and to an end to hopelessness and poverty. I still live in hope and were there is hope there is a vision of reality that accounts everybody so despite this government coming people can still stand for a fair social world. 🙂

Let’s do this! 🙂

Paul Isaacs 2015


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“Neurotypical” – Is the Word Useful? And/or Meaningful?

“Exhibiting the qualities, traits, or characteristics that identify a kind, class, group, or category”IMAG0110

The Use Of The Word

The word itself doesn’t make sense – being used to describe “others” (people who aren’t on the spectrum) society is a mixture of different sorts of people and rather than lumping people into one “group” (neurotypical society, neurotypicals, NTS) wouldn’t it be best to say people who don’t have autism? People who aren’t on spectrum?

It has also been used as word to “attack” people by some people on the autism spectrum who don’t have autism which surely is reverse prejudice?

Two wrongs certainly don’t make a right in this case.

People Who Aren’t On The Spectrum – Aren’t All The Same (Because No One Is)

You can’t define other (in this context people who aren’t on the autism spectrum) by a set of standards that you have created based on assumption that they must all be like that, that is stereotyping, generalising and over-simplifying. If you treat the set of people by the same standards you expect them to treat you in this case that doesn’t apply because of the contradiction.

If it was reversed and all people on the spectrum were thought to be the same and that was projected people I’m sure people from many different quarters would have something to say – the same applies here. Humans are unique and worthy regardless of having a disability or not. Everyone is equal.

Being Balanced

Two people spring to mind who also question many aspects of the autism word – I have written many blogs about sense of togetherness and all views being taken into account in balanced and objective manner.

Dr Casanova

Dr Manuel Casanova has written many thought provoking and reflective blogs on this subject about representation. I consider Dr Casanova a realist with very firm and empathic with genuine heartfelt intentions and questions with regards to this subject.

THE NEURODIVERSITY MOVEMENT

Donna Williams 2011

Donna Williams has also written highly reflective blogs with regards to the this subject. She has too shares the same qualities with a firm realistic approach, empathic genuine and heartfelt in her words and intentions. I consider their sage advice forward thinking in the context of the autism “world”.

NTs’… When a Word Becomes ‘Loaded’ and Why I Don’t do Bigotry

People Are People 

I like people on the basis of being people it doesn’t matter who they are or were they come from I like them for their personalities not because of anything other – human beings are all unique and that means we are all equal in the world.

Paul Isaacs 2015