Paul Isaacs' Blog

Autism from the inside


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Autism As A Describer Not a Definer – Combating “Label Lust” and “Overidentification”

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I have been an autism and advocate for over seven years I have seen many autism “fruit salads” in my time some people with auto-immune problems, other with complex mental health issues, others who see their autism as a curse, others who see their autism as special and unique, others who identify as their whole being as “autistic” others who don’t. I have seen militancy and anger towards people who go against old rhetoric who propose realism as opposed to glamorisation, people should allowed to give their own perspective from different angles, perspectives and offering multiple realities. 

Differing Profiles

With all the the “pieces” I describe in my training sessions and/or presentations are “describing” words the reality for that person will differ from “piece to piece” however that “piece” will have its own name and describing it allows the people understand a fragment of it albeit from a personal and/or observational perspective. Its hard to get the balance right but it is worth it.

Definition vs Describing vs Identification 

It isn’t defining people by the labels offered which is from an educational, resource perspective and even a self-reflective perspective. It is offering a window of what could be going on. I am not the speaker for all (never have been) but I put the questions out there.

 

Human Beings First

If we (as human beings) all defined ourselves by a set of labels it would be rather reductive and in reality a real shame. At the end of my sessions I offer a reality that despite the differing levels of “pieces” and/or disability  they are not defined by  their condition, they are human beings first like everyone else.

Paul Isaacs 2017

 

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I am not a “Label” I am A Human Being First

Baby Pictures High ChairI don’t know about you but when I was born I was born a person, lets ditch the rhetorics and start listening to other peoples realities and opinions (regardless of were they come from) and accept that disagreement will come but everybody as their own things to say. Lets not be restricted by a “box” or the what is “in crowd” I thank the people who have said their realities with conviction, honesty, rawness and carrying on their lives as best they can be the example and don’t just claim it. I am not “autism” if doesn’t “define” my being it rides along life it not a “definition of my life”. I acknowledge those on  and off the spectrum who are honest about the realities lets start listening and going from there keep going even if you don’t do not feel listened to, no popular do not worry at the very least (or most you have been true you and have not be influenced by the dominant wave.) 

Fanciful fable a baby in a cradle
New life and new wonders able
A hand from “in crowd” does beckon
I walk in feel more lonely I reckon

I’m not those things you said “we” all are
I am not a part of a redundant single star
You say things as fact, straight lines so subjective
When all I want to be is “me” more reflective

A puppet on a string I cut them off and look around
The strings a still attached with words and the same sound
I got back to the “real world” so eagerly with open arms
It may not be perfect but honesty has its ethereal charms

I am part of the humanity no label defines me I shall deface
Of flesh and blood and gleefully I move from place to place
The words are rubbed away sounding through the sky
I now what I am from life to death a smile and a sigh

Paul Isaacs 2016