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Autism from the inside


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Most Common “Pieces” in People’s Autism “Fruit Salad”

Autism Most Common Image

Donna Williams’ (Polly Samuel) set a legacy in what the adjective “autism” meant it was like a bowl of fruit and different pieces of fruit mean different things in this overview she covered in the image above the most common aspects of someone autism “fruit salad.”

 

 

Social Emotional Agnosia – Not perceiving body language, tone of voice and facial experiences means that person only “sees” and “hears” facts that means that the person maybe socially anxious and may need information shared to them (including emotional supply) in factual/pragmatic way.

Faceblindness – A person who doesn’t recognise people by their faces this means the person may connect more with the what the person is wearing, hairstyles, jewellery, voice patterns, walking gait. context is also an issue such as meeting people and/or getting used to seeing someone one context may not translate to another. You may need to ask them is they struggle with faces.

Simultagnosia – (Object Blindness) – A person who only see’s pieces of a their visual field and not wholes this could mean that the person finds certain environments difficult to navigate, people, places, objects may be hard to track causing anxiety, overload and on the opposite end euphoria and “sensory highs” that is person who is addicted to their own “chemical highs”. Lightening, colours, patterns, colours, stairs (surface changes), shadows will all have an impact on perception.

Alexithymia – A person who does not process and/or perceive their emotions in “real-time” this can cause a reactionary delay meaning the person is always “trailing behind” to some degree and may give surface “responses” rather than “connected” responses. Give the person time to respond.

Dyspraxia & Overload – A person is struggles to motor-ordination issues, the movement of their body and limbs in and around their environment being prone to overload could be due to the brain and bodies movement not being in tandem causing/triggering chemical imbalances.

Lack of Simultaneous – Self and Other – A person who can do either “all self no other” and/or “all other no self” this means the a shared sense of “social” may be delayed and the mono-tracked way of conversing may have to be adapted to allow time between “switching”.

Language Processing Disorder – A language processing disorder can come in many forms and presentations the ability to find words (anomia), the ability to construct sentences (pragmatics) and the ability to receive and express meaning with interpretation some people may be “meaning deaf” (aphasia, verbal auditory agnosia) and need for example object of references gesture and tone and other who are literal in their perception and have atonia may need facts and to limit body language.

Communication Disorders – Some people may get tongue tied, stammer, are “tone-deaf”, have tourette’s, have verbal agnosia and talk through echolalia (TV shows, Jingles, DVDs and TV shows), some people have oral apraxia (the ability to use their tongue and facial muscles) having visual perceptual issues and associated personality types which in turn have an impact on style and/presentation.

Exposure Anxiety – A person who is triggered by direct communication and “exposure” triggering compulsive, avoidance, retaliation and diversion responses meaning that “direct communication” you may need to use a “indirectly confrontational response” such as focusing on the object, situation not the person, humanising objects.

Lack Of Mentalising – The inability to “juggle” information with a level of coherence this could be to do with information processing delays, sensory perceptual disorders, social perception and/or language processing this means that you need to work out the person’s “system” of integrating information with associated meaning.

Personality, Identity and Attachment – This is how the person sees themselves, differing personality types will colour a person’s interpersonal wants and needs and communication styles, sexuality and gender

Mental Health – These associated conditions will have an impact on presentation such as mood, impulse control, anxiety, dissociation and attachment disorders.

Physical Issues – They may have auto-immune disorders, disorders of metabolism, dietary disabilities, genetic anomalies which have an impact on overall functioning.

Paul Isaacs 2018

 

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Autism & Personality Types – They Do Exist

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Personality Types & Autism 

When we look at “autism” looking at personality types is just as important as any other factors. We could look at these aspects of a human being they are very much the “soul” of the person they pepper one’s temperament, personal outlook, emotional regulation, friendships, relationships and aspects of social and emotional interaction.

Identity Crisis

For people who are on the autism spectrum not all their “being” is dictated by the diagnosis that they have. This of course will vary from person to person depending on what part of their “fruit salad” are impacting and how they view their personhood within that. Is it hidden by language processing disorder? Is it being tempered and challenged by health issues? Or are there underlying mental health issues that are being called “the autism” when they are not?

Autism Isn’t a “Collective” 

Some people see their autism as “ego-syntonic” that is all their person and they feel it all of the time, others like myself see their autism as part of their “being” this means that other factors come into it such as environmental factors, mental health, identity and learning style all human being are made of up these things . For me it seems to over simplified and reductive to suggest that people on the spectrum share common goals, values and outlooks as a collective experience.

The “Sameness” Machine

“We” do not all come from the same place, we do not have a carbon copy autism “fruit salad” that is  shared from person to person. That means that one should be seen as an individual not just a sausage machine of traits. People are born with no labels what so ever and no one person is defined by “one word”.

Paul Isaacs 2018

 

 


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“Neurotypical”, Reverse-Bigotry & The Warped Lense Of Equality

 

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Not this is from personal experiences

“Neurotypical” Is Inaccurate & Misleading? 

The word Neurotypical is used to describe people who are “non-autistic” but what if we have got that all wrong? What if the barriers are being created by the assumptions of what “autism” is that then thrusting one’s own presumptions of what it is like to be “non-autistic”?  I think that there really is no such thing.

Bigotry Is Still Bigotry 

Reverse bigotry is still that bigotry and if someone is using the words “NT” or “Neurotypical” to dehumanise, belittle or bully someone then surely that very generalised assumption if wrong? How does that become validated? Is it a sense of one’s own self importance, ego, group think and conformation bias, upbringing and/or past experiences? What gives someone the right to say these things and not take social emotional impact it has on the people in question?

“Autistic Identity”

This has worryingly been created through a “narrow” bandwidth of what autism “is” and “isn’t” but also what being “non-autistic” “is” and “isn’t”. The truth is there are far more similarities between people than not so why over invest in stereotypes? Which in the long run give people  a generic tick list of “traits”?

More Voices? More Perspectives? 

If we created so many degrees of separation do we strive to lose our objectivity? Being grounded means looking at things from the angle of non-bias. I have seen too much militancy that means that some people’s experiences have been silenced because they have not fitted the status quo that means there is rhetoric and that is unhealthy. Equality is for everybody.

No one “owns” autism it is not a thing to be bought or sold, no one should be able to cherry pick what autism “should look like” because guess what? It doesn’t have a “look” and more you give it one ironically the more voices will be lost.

Paul Isaacs 2018


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Is Stereotyping & Glamorising Autism A Dangerous Path to Tread? Balance Is The Way Forward

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I think of Polly a lot and as it is coming near to a year since she has passed and autism awareness month. I think of the valuable and human lessons she taught me and other advocates who keenly listened and understood not only her perspective on the matter but her overall out look and ethos.

Paul 1995 - 1

Autistic Person? Or Person With Autism?

I think when I was born and all that was around me that I wasn’t fully aware of yet, the people, trees, the buildings, the modern world, the natural world. I think of cladding and chosen identities and when comes to defining a person by one aspect of themselves. I often wonder and worry about what that means. If we see everything as the “autism” from the moment one gets up to the moment one goes to bed what is left?

Cannot we see the other aspects the mould a person such as the environment they live in? The personality types they have? The mental health conditions? Their sense of identity? (other than being “autistic”) And their learning styles?

If we are addressing “autism” surely we should be looking at the bigger picture rather than tired and easily digested rhetoric such as “all autistic’s are logical, literal thinkers” or “all autistic’s have special interests” not taking into account the broader perspective on neurological and biological aspects, the social emotional aspects and very specific wants and needs of that person themselves and/or their families and loved ones.

An “Autistic Mind”? Or a “Human Mind? 

Last time I checked there is no such thing as a mind cannot have be clear cut as “autistic” and “non-autistic” many aspects to do with information processing can have an impact on presentation. Such as a person with social-emotional agnosia not being able to read body language, facial expression and/or tone of voice, aphasia and being able to express and/or retrieve words and apraxia with living in a body that doesn’t obey its commands of the “owner”.

Personality types in human beings regardless of autism effect the presentation of the person such as being solitary and a preference for being alone, idiosyncratic and not confirming to the cultural and social expectations and conscientious and wanting logic, linear thought and perfection to name but a few.

Balance

If we ditch the rhetoric, the cash-cows, the money makers, the politics and get to what is “real” then that is the greatest and most honest foundation of them all. True empowerment is knowing what something is and working from there not making things up to suit the make-shift package you want to “sell” to people.  I think there is nothing wrong with showing the example of just “getting on with one’s life” as the greatest one.

I am not famous, “special” or “unique” words like that scare me. It puts me on some invisible pedestal that quite rightly I don’t deserve nor want to be on. 😉

Paul Isaacs 2018


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The Importance of Recognising Personality Types In Autism

Note this is from a personal perspective

Personality types are just as relevant to in which a person behaviours and responds to the environment around them, this includes interaction, communication, lifestyle choices, interpersonal choices etc.

Personality Types A Mix & Match

We can break down these personality types into their basic forms. In example I will use three different personality variants (people can have to 4 to 6) however this will simplify the point in question.

Personality Types in Autism 2017 Image

Personality Types Are Valid 

People on the autism spectrum will have personality types within their “autism fruit salad” like all other human beings people have overlapping personality types which can be fluid or concrete, complex or refined, narrow or lengthy which will be dictated by genetics and the environment they are in. They can also spill over into “disordered” extremes.

Is “Autism” All Of A Person? 

 I think that the main factor that gets missed in the overall ensemble when looking at ASD is personality traits/types. To define one’s whole neurology as one’s “self” ego-syntonic were as I see my neurology in terms of autism as part of “self” not the overall picture “ego-dystonic”.

This would surely help professionals, parents, guardians and people on the autism spectrum? To know that part of being a human is to do with the development of these aspects to?

“Autism” It Is Apart Of The Mix Not The Defining Factor 

To put in honestly that fact that I am face-blind isn’t “me” it is just how I processing faces, the fact that have simultagnosia as see in pieces isn’t “me” but is how I process visual information, the fact that I am aphasic and meaning deaf and struggle at times process the words being spoken to me isn’t “me” but is how I deal with receptive language they are part of the package, the fact that I struggle to do simultaneous “self and other” isn’t “me” but it means I need time to gauge and internalise information is again part of the package .

They come along for the ride and my personality types will dictate how I cope, manage and productively find an outcome for these different processing issues I have. If someone isn’t seen as person first then what are they?

Paul Isaacs 2017


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Abuse, Identity & Not Being an “Object”

Paul and Dad 2005 2A Dark Secret 

I can remember flashbacks, the terror, the feeling of being small,  worthless, subjected and cold this happened not that long ago as the thousand yard stare raised its ugly head from the fold. The realisation that something happened to me in my past which was buried under years of dissociation and memory based fragmentation a memory of an event at the heart strung up by a mass of tangled spider’s webs it truly was the widow of the web at its heart, her dark secret and revelation

Face To Face With The Reality Of The Past

A sad realisation of one incident which was sexual abuse is not an easy task to talk about in any forum I was 16 years old when it happened, but if it can help one person then in many ways my job is done. I decided to deal with this one alone to me I needed no therapy or endless talks about the what’s and the why’s etc, I went to the source it is near to me so I took that step on to hallowed ground with memories ripe or which I could remember soundly. This was a cleansing  exercise and I was going to sweat this one out.

Looking Forward

Like some sort of scene in a movie I was there alone. I found the place I patterned it out and looked, simple just looked at the door that is all I needed to do I stood there for a few minutes nor more no less and made my peace with the past I had to because I knew if I didn’t this would eat me up inside.

Many A Road To “Rome”

Has this on a subconscious level had an effect on my personality? behaviour patterns, triggers and is apart of the package of my “fruit salad” I would say yes it has may I would have been a less vigilant person, a less closed person in some areas of my life. I have learnt that I will not let this mould me but I shall mould it and if that is the road to tranquillity I shall take it. I am no one’s victim.

I Am Person 

Some people may think because of the nature of the work I do that I am detached, not accustomed to feeling out control, feel sadness, anger, confusion or despair I have got news for you. I am a person – when you cut me I shall bleed.

I don’t mind disagreement, I don’t mind people coming into my life and out again (if they wish), I don’t mind people  deciding to not to be my my friend (they have their own path to lead), I don’t mind disagreement, I don’t mind anger or venom spilled in my direction, I don’t mind a lot of things believe it or not. Just as long as with me you know that any judgement is NOT made prior to knowing because that is when one fills up bullshit loaded with assumptions and preconceptions.

I wish you well in your ongoing journeys. I would rather pave a road full of positivism and compassion than a road full of gold and greed. 🙂

Paul Isaacs 2016


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Anxiety Disorders and Autism

Sound Asleep 2Autism And Anxiety? 

When one looks at “autism” and what is “autism” to say that anxiety is autism or autism is anxiety we do you mean by that? When we look at the clustering and overlapping issues that can make a human being anxious it is not exclusive to  autism that someone gets anxious, depressed, lonely, isolated, confused and at a loss. One’s reality should be taken as it is not as a false projection of what is should be.

Autism Doesn’t Have A Collective “Look”

This is why I get worried about the “autistic culture” movement stating what “is” and “isn’t” an “autistic reality” personally I would like to know what such a “reality” that is?

A Human Life? 

I certainly don not live an “autistic life”. I live a human life like everyone else on the planet these stereotypes are not only unhelpful but can cut-off people whom do not fit the status quo and if that is the case then that is just reverse bigotry.

What Is Behind The Behaviour? Is It More? 

When look at different aspects of anxiety based disorders one has to look at what they are in terms of presentation and if they overlap with something this could be for example certain personality types that are more driven by hyper-vigilance, obsessive-compulsive states or over-thinking/analysis.

CATASTROPHIZING
EXPOSURE ANXIETY
GENERALISED ANXIETY DISORDER
PANIC DISORDER
PHOBIAS
SEPARATION ANXIETY DISORDER
SOCIAL ANXIETY DISORDER
SOCIAL PHOBIA

TECHNOLOGY RELATED
GAMING ADDICTION
INTERNET ADDICTION DISORDER

OTHER
BEHAVIORAL ADDICTION
OCD
TOURETTES

(taken from “what is autism” donna william’/polly samuel’s blog page)

Lets look at facts not fads.

Paul Isaacs 2016