Paul Isaacs' Blog

Autism from the inside


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When People Have Cancer And Others Are So Selfish

Dad 2012Think About This?  

I like this a lot me Dad gets this all the the time you “look well”, “you seem well”, “you look ok”, “you look healthy” or the best on “you can take a tablet for that?” well when my Dad is

  • In Perssiant pain
  • Fatigue
  • Depression
  • Reacting to drugs on a daily basis
  • Blood infusions (cleaing his blood) on weekly basis
  • Muscles that tighten on a weekly basis
  • Soft tissue that is so damaged that he has scarring on his lungs
  • Graft vs host disease that leaves him in pain and fatigue
  • Nearly dying in hospital on five separate occlusions
  • Leukaemia that effects his auto-immune system and has done for over 6 years

Then maybe just maybe will people think about my Dad ‘s or our family’s reality? Rather than ignoring him on the street or where he lives (yes that has happened on more than once) even if you don’t speak to him. don’t be so selfish, narcissistic and ignorant to think that everything is going to be on your terms and is always about you.

My Dad is a humble, easy-going, socially accepting man and is still a very positive man despite the difficulties listed above. 🙂

What is Sick Supposed To Look Like Anyways? Video Link 

Paul Isaacs 2016

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In The End We Are ALL Human Beings & That Is Fine

To stay grounded and not get whipped up be the construct of “other” through “fame” – to be seen as a “being” that is on an equal plane is far more rewarding, beneficial socially, emotional binding empowering. People are after all are people and one is no better nor worse than anybody else be yourself.

Then maybe we would live in more selfless (rather than selfish) society.

Paul Isaacs 2015


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Take A Break From “Autie-Land” & Regain Perspective of “You” & “Other”

SDC10045I have had a month off from the “autie-land” and I can say it has helped me very much with with perspective, with mindfulness, with balance and neutrality – the old saying about “I have found myself again” is something to strive for at least in me eyes. Being balanced means you can cope, adapt and manage things better in your life that means in essence you can be a more “functional person” this helps with both positive and negative things that happens in ones life this to me is very important in not only finding oneself but also connecting with others.

I have a strong belief that if one is on the “stage” one is not the centre of but one is “apart of” this that means everyone in principle is on a equal playing field even if at times it doesn’t feel like it (media, magazines, TV shows etc). However lets strive and make it a reality anyway. I have laughed more, procrastinated less, created more (drawings and poetry), walked more, enjoyed the company of good friends and people – I think that is telling me something right there. So if you are around people who are selfish, hollow, fake, lack empathy, are controlling and so forth how many chances do they need?

How many minutes, hours and years does one waste on this? This is something I have learned and lived in just over month when one is is balanced you “see more” as I have said I am person first and if we see people as “people” rather than “objects”, “things” and “labels” then maybe humanity would have a better chance of getting along. Strip the militancy and extremism out of it and have a better chance of ALL people being listened to.

Paul Isaacs 2015


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The Autism World – When Our Hearts & Ears Have To Be Open To All Realities

Things Need To Change?

It’s my opinion that indulgent self-gratification and the selfishness in parts of “autism world” is what I feel will eventually make it implode and full-apart. If it all becomes about “me,me,me”, point scoring, back-stabbing (being two faced), office politics, game playing, “them and us” separation, object using (psychopathy and sociopathy) not listening, stereotype investing and not learning then people like myself (who try to do their best to empower and stay true to themselves) and others on and off the autism spectrum are going to continue to get hurt, told to be silent not believed or to just told “get on with it” no one seems to care about such repercussions on one’s character and mental health. I process things slowly but get there in the end.

If we listened to one another and appreciated other’s realities we would learn SO MUCH more. It is not the act it is the heart of where the act comes from I do things to empower not monopolise or manipulate.

Conclusion

Listening is a very important tool it means not only showing an interest but in the context of this chapter it means taking into account someone’s thoughts and feelings. What journey have you been through? What paths did you take to get there? Every human being is on there own specific journey and is important to acknowledge that.

“Them and “Us” – We Are All Human 

We can all learn from each other if politics and tired old stereotypes which are churned out through oppression in and around the “autism world” then voices will and are most certainly going to be lost. The them and us scenario causes friction ASD (Autism Spectrum Disorder) and NT (“Neurotypical”) or vice versa.

We as human beings are all equal and when neurotypical  becomes a loaded word (spiteful, derogatory, other or sub-human etc) that is not right. I say people who aren’t on the spectrum myself. Inclusion is about everyone getting involved in the context of this chapter it means that both views are valid.

Conclusion 

All views and opinions wherever someone is on the spectrum or not should be taken into account that is because one can learn from the act of sharing each other views, what they mean. How do they differ? What are the similarities and having healthy look at the whats and whys.

Neurotypical? A Word That Doesn’t Make Sense?

What is an NT? There is no such thing in my opinion. We are all human and taking all realities into account is far more positive and inclusive than creating what I call man-made barriers we could from metaphorical perspective “holds hands” in this regards everybody has a story unique to  a view and/or viewpoints that are as equal and as valid as the next persons.

Conclusion

If someone calls someone a name that is meant to make them feel worthless that has knock on effect on their self-esteem and self worth “typical” doesn’t sound very nice and if the situation was reversed I am sure it would feel equally hurtful. When I talk about equalism I am meaning everybody. Setting good examples is a way move forward.

Militancy – When People Take Things Too Far 

That is true when people attack whether they are on the spectrum or not – one must take responsibility for their actions. That is what worries me there should be no single representation of autism even by people who are in a position of being an advocate on the autism spectrum. One can only talk about their profile and how autism affects them – the key is that their so many other different and diverse profiles.

Militancy creates too many barriers and shuts off a lot other people on and off the spectrum who have different ideas, profiles and presentations. Surely hearing different views is good?

Conclusion

If we talked and discussed our views in a manner which is respectful we may learn that we share things and have insights that are common – however one may learn that are viewpoints and ideals come from different areas this isn’t a bad thing but when views get extreme it has a “pebble in a pound” effect it causes problems for other whose view may be lost in the mix of extremism.

Autism Politics – The Two Extremes

You have people who are are curists and people who are culturists both demographics go to the extreme to get their points of view across to others – what saddens me is that both have points to say but the way in which they’re either presented and said are not practical nor respectable .Wouldn’t it be nice if people listened – I stand neutral believing that everyone is equal (you hear that a lot in the post I know) and human.

Fruit Salad Analogy Copyright D.Williams

Fruit Salad Analogy Copyright D.Williams

What is Autism?

Autism is different and unique for each person who has the it – it’s made of different “ingredients” that means that the overall profile is unique to that person how they process information, if they have additional learning disabilities or not, if they have food intolerances, auto-immune disorders and so forth – in other words it is a set of pre-existing conditions and has a “stacking effect” and a point of origin which in itself is unique to each person- Olga Bogdashina calls it Autisms  and Donna Williams calls it a Fruit Salad. That is why all realities of Autism are different and diverse.

Looking Towards the Future – Equalism and Egalitarianism

If one would strip all the militancy, bullying and aggression by people on and off the autism spectrum – would that create a bigger pathway of diversity? Would more voices be heard? More realities listened too and acknowledged? Would new ideas flourish? I certainly hope so. We are equal in this world and no one is above or below anyone else we all have our stories to tell.

Final Conclusion – Everybody Having A Say 

Every human being on earth has right to be listened too, supported, acknowledged, cared for a appreciated for being them and seeing their personhood. So by bringing everyone into the scene you don’t  have “them” and “us” you see and have different points of views for and by different people on the spectrum or not but equal in their validity, by not having extremism you having balanced acknowledgment of both agreement and disagreement.

Inclusion is Bringing a Diverse set of views from Different Places

  • People on the whole of the autism spectrum
  • People who are functionally non-verbal
  • People with autism and learning disabilities
  • People from different cultures and backgrounds
  • Parents, family members, carers and guardians
  • Autism professionals (neurologists, psychologists, psychiatrists etc)
  • Educational teams
  • Other services

Paul Isaacs 2015


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Up and Onwards – Finding Balance

THANK YOU

Thank you for all your comments and shares of my poems. I have decided not to over-invest in the autism “culture” or politics anymore.

I will STILL continue to blog, present speeches, present training and advocate about autism BUT in balanced & neutral manner (in terms of NOT over-investing content wise, politics and “culture” wise and invest in personal time and so forth) this means that I will mentally be in balanced place. I am human being and to all of you I say to parents and people on spectrum (The Whole Spectrum) you are people fiMe Toddlerrst. 🙂

I am a writer, poet and an artist I say those are things worthy of pursuing. 🙂

I have stated in my opinions and listened to others that is great . My view still is we are all human and can learn from each other and in the context of autism that still applies no one person is the same, no one person can speak for all, but one can talk about their reality and if it helps someone great and if it doesn’t? Well that’s great too we learn from others not just ourselves. 🙂

Paul Isaacs 2015


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Spirit Of The Wolf

Dad's Tatoo 20152My Father is a spirited person and is very positive and assertive in his outlook on life he is a very balanced individual and knows that having leukemia and graft vs host disease means to him everyday is a blessing, every moment is precious and making use of what you have have got (rather than what you haven’t) is so needed he wants no pity from others nor feels sorry for himself nor wallows in lament or self pity. It puts trivia in its place and makes me at least value the now.

Paul Isaacs

Adult With Autism 2015


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Somebody Somewhere By Donna Williams – Finding Yourself To Help Others

OVERVIEW

Someboy Somewhere Book Cover

Copyright Donna Williams

Donna Williams’ Second book in her autobiographical saga “Somebody Somewhere”  is yet another inspiring read about the a person finding out about themselves and using this knowledge to empower and give to others.

BUILDING BRIDGES

As the title suggests it is the self realisation of validity, equality, beingness and in turn giving others the empowerment and help to find themselves in their own unique journey.

A highly reflective and inspiring read. 🙂

 

Paul Isaacs Autism 2014

SOMEBODY SOMEWHERE BOOK

DONNA’S WEBSITE

DONNA’S BLOG