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Autism from the inside


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“Autism” Isn’t A Culture – It Has Been Created As Such

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A Created Construct

“Autism” is not a culture that is the premise of this post looking at the the diagram above you can see in simple terms how a “culture” works firstly it is a social construct it has been consciously created by other people, adapted, worded, it has its core values and within those vales it its has rituals, and within those rituals it has its “heroes” and within its heroes it has its symbols of recognition.

Say Your Prayers And Take Your Vitamins

Why is this a worry within the context and confines of autism because what if you don’t fit the culture? Follows rules? Pray to the right “gods”? Follow its values and customs and overall practices? Does that mean you have gone to the “dark side” that your value has been lessened because you don’t follow suit?

What If You Don’t Fit ? Are You Really The “Enemy”?

What if this construct is the very problem within the autism “world” what if is the overall restriction for commenting you own reality that doesn’t fit was the status quo? Why should a open and honest dialogue be challenged because is doesn’t fit in with what is going on? That to me that is the ultimate reverse prejudice you cannot talk about this sort of isolation if you are practising and enforcing that types of isolation (even if it is in the name of a “good cause”).

Reflection

I am by no means the brightest but something is wrong here. I am all for advocacy, information sharing and above all honesty and truth but that is so that all realities are to be taken into account. Even if they are tough to hear they are valid part of the learning process surely?

Live Your Life As a Person

The best examples of living life is by that very nature living it, ignore the politics, passe customs and overall dogma and just “be” there something fulfilling about just “being” and existing on a personal note my Father has helped by example to do this because life is short.

Paul Isaacs 2016


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The “Autistic Identity” Phenomena

When I was diagnosed was autism in 2010 – I wasn’t aware of such an “identity” because to honest I was never in that “world” at all. I often wonder that despite the obvious difficulties I had during my development and environment the one thing that I had going for me was the simple “human-hood” which was conveyed by the my parents as a way of connecting with me.

I don’t consider this perception from my parents to be “unique”, “specialised” or “autistic-specific” in its intentions nor in its thinking at the time (although it could have well be seen as that on reflection).

I Wasn’t Born With a “Label”

In many of my blogs I have spoken about the balance of being seen as “human”, “person” and “being” first and as I have been in this “world” for over five years. I have seen the firm importance of seeing people as “people”, by not defining their whole “soul”, “identity”, “being” by their label (or labels) nor having it being overtly defined for them so there is nothing else left.

“Labels” Are an Adjective Not an Overall Definition

If everybody was to be defined by solely by a “label” wouldn’t it be restrictive, suffocating and narrowing your bandwidth of experiences, perceptions, thoughts and feelings?

Not Towing the Line Meant I Could See “myself ”

I am glad that I haven’t towed the line into the realms of stereotypes, group think, confirmation bias and all the militancy that goes with it. I am glad that my parents after I was diagnosed said that I am still “Paul” regardless. I am glad that I see the importance of seeing somone as a person first. I am glad that I have other interests that take up my time productively such as drawing, poetry, walks in the countryside and meeting up with friends.

People Are People Regardless

I am free to think and feel and have a more refined outlook that I am firstly and thankfully not being the centre of the universe, not the big answer all to the questions, not speaking for “all” (because no one can) and have a egalitarian view that all people are of equal worth in this world no more and certainly no less.

Paul Isaacs 2016


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I Want The Dignity That I Have Slowly Lost – A Snapshot In Time

Me and Dad - Toddler 2

OVERVIEW

Snapshot In Time 

I said once sometime ago that in the Autism World I’m the square peg in the round hole, this certainly still applies – my dignity (currently what’s left of it) has been stripped, my mental health plummeted (I have had one month of stability so far) and it is too much for me. I have views that count just like anybody else and I don’t feel equal in a world (Autism) that told me I would be, I don’t feel equal when I accept others points of view but I am still “wrong”‘.

I don’t feel equal at all I feel I’m the lowest of the low because I don’t confirm to majority’s thought. We all need to listen and not project, I’m no better than anyone else but I have been made to feel worse because of this. No I’m not equal at all in the Autism world to many politics and it had had made me ill. I thought it was inclusion for all?

I was gravely mistaken. The only person apart from my close family and friends who has helped me retain my dignity is Donna Williams and I thank her for it.

All because I wanted to give the message that I’m a person? And so are others on the spectrum? I am saddened and ashamed at how I have been treated.

CONCLUSION

Why? that is the question? The reality came calling the day I wrote this and what I say is that in order to be oneself one must not be confined by militant, sycophantic , limerant and bullying behaviours (this includes people on and off the autism spectrum) and equally what I have learned is to learn to not be affected as I was when this was written. I have been bullied, lied to and manipulated in the Autism world (causing a nervous breakdown and 8/9 months of mental illness) by people I thought I could trust and quite frankly I want no part of a “world” that advocates such things This is indeed a snapshot in time.

CONDITION FIRST LANGAUGE & AUTISM Group Think

I will not be defined by a condition and I will always be “Paul” and I will not accept militant behaviours but must accept to let them get on with it – My message is not to get involved in Autism Politics unless you have a strong stomach. 😉 I have nothing to prove and nothing to fear from not being in the “in-crowd”.

The point of inclusion is to include everybody  and politely and democratically agree to disagree in circumstances of difference – As I have said before not one person can talk for all people on the spectrum (that includes people on the spectrum who are public speakers/trainers)

  • Not one person has Autism the same way as everyone else
  • There should be more inclusion for people who have a Learning Disability
  • People on the spectrum who use other forms of communication to get their inner words out
  • People on the spectrum who have Auto-Immune Disorders

I will always be a non-conformist, there’s conformity in that

Paul Isaacs 2014