Paul Isaacs' Blog

Autism from the inside


Leave a comment

Managing Grief and Loss with Visual Perceptual Disorders

Note this is from a personal perspective

Grief is a normal state to be in when you lose someone you love and have connected to and I know that this feeling or more accurately abundance of differing feelings that accompany it are part of the process.

20160829_172026

Visual Agnosias – Deficits In Memory Perception & Visual Association? 

I have no pictures of my Gramp none that “spring to mind” I cannot “visualise” or have pictures in my mind my “meta-reality” (a person’s inner world/consciousness)  is not made of pictures or movies as a form of association. It is made of of smells and textures I made a point when I said goodbye to my Gramp at the chapel of rest to stroke his face and hair so would have a physical association of the firstly the bond we had and secondly my way of saying goodbye to him and his body.

Paul Isaacs communication profile 2017

Bereavement Counselor 

I went to see a bereavement counselor today and I was thankful that he was able to assist me not only in the human element of my grief but also adapt his way of describing different interventions and explanations to me.

 This is what he used in  the session 

  • Contextual telegraphic language “painting his words” with gesture and placement and meaning
  • Allowed time for me to do “all self no other” and “all other no self” in order for me to express and receive the information
  • Compartmentalised my  own emotional states giving them a reference point and also suggestions in how to manage my emotions
  • Understood I have a history of mood, compulsive and anxiety disorders associated with somatisation disorder
  • Allowed me to be creative in expressing my emotions through creative writing, poetry and art

 

autism-pyramid-updated-2017

 

Addressing The “Pieces” Of The Jigsaw

So what parts of my “autism” are being addressed?

  • I would say firstly his looking at a level of information processing delay and giving me time
  • The next would be that fact that because of visual perceptual disorders having a level of visual agnosia in the areas of meaning (semantic), object (simultagnosia) and faces (prosopagnosia) means that using gesture, placement and telegraphic language backed up with word emphasis in the right areas helps me internalise the words better assisting with the level of aphasia I have
  • Looking at my own emotional states is assisting with alexithymia and overall giving me time to integrate “self and other”.

 

Conclusion 

I would say that my grief is human and that I will get through this with at times very basic but meaningful interventions I do however hope this helps people with similar issues to my myself regardless of being on the autism spectrum or not.

 

Paul Isaacs 2017

 

 

Advertisements


1 Comment

Autism, Processing Emotions & Alexithymia

autism-and-alexithymia-image-2017

Note this is from a personal perspective 

Alexithymia is a condition in which person cannot find words to express inner emotional feelings, now this doesn’t mean that the person is devoid or lacking in emotion however it can from a outside perspective look like that despite the inner mechanics being quite different.

FILTERING THROUGH EMOTIONS 

I shall give you a personal account of this and look at other potential factors. I have a processing and recognition delay of emotion feelings in the context of the event that has happened – in other words from the time the event has happened to the time I get a self response is delayed this can come in the form of

  • Words for the the bodily messages that I am feeling 
  • Being able to piece the situation together from a emotional standpoint
  • Talking and having a conversation about a situation that in real-time has long since past
  • Having raw emotions that through time, experience, awareness and age I am able to better filter them

As a teenager I would harm myself when these raw emotions would take hold like attacking one’s self for their own emotions because the person in question hasn’t yet pieced together they are coming from themselves this to me a that point in time a a paradox but a worthy one to working through.

OTHER FACTORS THAT COULD BE INVOLVED

Other factors would depend on the person’s autism profile and fruit salad that would have an impact on the presentation of alexithymia such as

  • Visual perceptual disorders and not having a visual memory to process people, situations, words and mentalise thoughts.
  • Language processing disorders such as aphasia and verbal auditory agnosia needing time to find and extract words that have inner meaning to the person.
  • Body disconnectivity and not sensing or perceiving their own bodily messages
  • Diet and food intolerances are undiagnosed food intolerances having an impact on their functioning?

Paul Isaacs 2017


Leave a comment

To Friends for Friends What is Happiness? :-)

Smile .jpg

 

 This is sage works, thoughts and feelings from social media when I said about doing a blog about “What is Happiness?” I am pleased with the diverse and really lovely responses. 🙂

  • being understood by people
  • Happiness is what you make of your life and live it to the whole without
  • Happiness is fleeting
  • Joy
  • Happiness for me is seeing my children happy – x
  • I think he’s writing in the broader sense x
  • Happiness is my aspergers. [13 year old] son making me a fan from parts he savaged from dead DVD / equipment and lego – powered by USB and a solar panel to help me with my [menopause] hot flushes.
  • Happiness is walking around with a clear head, able to observe and enjoy the surroundings without anxiety.
  • Or eating a different food 🙂 x
  • Still seeing my little one even though I’m away visiting my Mum who’s 300 miles away.
  • Seeing my amazing son grow from being an angry, confused boy who struggled with ‘the world’ into an ever growing confident , young man with so much to look forward to 💙
  • Happiness is my dog x
  • A fleeting feeling when things are going well. All the more potent when it arrives unexpectedly 😊
  • All of my children bring happiness to me. I am so proud of who they are. I am also happy when my baby makes progress.
  • Happiness is being relaxed, safe and challenged in an enjoyable way.
  • GBU
  • Happiness to me is enjoying the moment without stress or fear but feeling completely at one with the world and relaxed . Its a strong rich feeling making life feel good when you experience it. X
  • Happiness is making a genuine difference through collaborative and creative autism awareness workshops. Nobody wins unless everybody wins 🙂 Hope to see you at one of your future talks, Paul. Best Wishes
  • Happiness is our son being happy. (We only have one child) 😊
  • Doing something I enjoy doing!
  • For me, I think there are very different sorts of happiness. Perhaps the most intense is being aware that someone I love is happy; if it is because of me, that’s even better. Another is feeling that I have done a good job intellectually in some way and increased the sum total of human knowledge. Another is the great feeling of physical well-being that endorphins give you after you’ve been exercising. I climb whenever I can, partly because it is great fun in itself and partly because whatever stresses and anxieties are bugging my life, I feel great once I’ve worn myself out doing it. These are all very important to me.
  • Happiness happens when i’m alone. Its like my brain gets some high by being alone
  • Happiness is being fulfilled. I don’t think the pursuit of happiness is very helpful in itself but the pursuit of being fulfilled..? That’s a slightly different goal but changes entirely how you look at life!
  • Happiness to me isn’t a result of anything, despite its arrival often being influenced by certain things or thoughts or thoughts of things – it is the glowy thing, that glowy thing within, and when it glows inside me, it beams around my bodymask making everything else seem more glowy than usual, and it can be passed around and shared like a flowy magnetic glitter-ocean, though can also be snatched and disappeared at an instant by the click of the claws of a happy-snatching monster.
  • Happiness for me, is…
    As a mum: To see my children achieve even the smallest thing independently. For my boy with autism, especially, when he’s made an independent decision, and when he chooses to hug me and show love. For my NT girl, hearing her laugh big and loud with her friends; watching her dance and hearing her sing.
  • As a professional: Feeling productive and part of a process to produce something worthwhile. Being individual but within a team.
  • As an autism volunteer: When a parent tells me that they no longer feel alone; seeing parents’ reactions when their children reach out to another child or young person and socialise for the first time at Parents Talking Asperger’s.
  • As a friend: Being there for friends whatever in good times and bad.
  • As daughter: Just being with my beloved parents even for five minutes.
  • As a Christian: Learning to be what God wants me to be to serve him and help others. Thanks Paul.
  • to me happiness is knowing that I have the resources to deal with whatever comes up. Not much to ask hey? X
  • You can choose happiness no matter what is going on around you. Happiness isn’t just being content – God gives us the opportunity to see good in all by allowing happiness. But it is a choice.
  • I’ve come to realised that for me, happiness is acceptance of the journey. 😁
  • Easy company with the people I love who are wholly accepting of who I am. X
  • Sitting outside with family and friends during a breezy day. And having a bon fire at night.

Paul Isaacs and many contributors 2016


1 Comment

Being Thankful For My Parents

Mum and Dad Early 80s

Please note this is from a personal perspective

It may sound like a cliche in many ways to create a blog with a title such as “Thankful for my parents”  but that is how I feel I know that many people may not for many reasons feel the same as me and that is fine.

I am thankful for them because they  have given me good boundaries, have treated me as a human being then growing up as an infant, teenager and now as an adult, they do not let my disability “define the whole package” (I have written many a blog about that subject), guided me to know that failure and being wrong is normal part of life, to accept and take responsibility for both positive and negative actions, to help people who need it, to always be truthful and be true to yourselves.

I value their sage wisdom as many of these “mantras” and “life skills” come from past mistakes and “failures” but as my parents have noted failures are the fruits of success and success comes in many different forms as example setters for us all.

Paul Isaacs 2016

 


2 Comments

Abuse, Identity & Not Being an “Object”

Paul and Dad 2005 2A Dark Secret 

I can remember flashbacks, the terror, the feeling of being small,  worthless, subjected and cold this happened not that long ago as the thousand yard stare raised its ugly head from the fold. The realisation that something happened to me in my past which was buried under years of dissociation and memory based fragmentation a memory of an event at the heart strung up by a mass of tangled spider’s webs it truly was the widow of the web at its heart, her dark secret and revelation

Face To Face With The Reality Of The Past

A sad realisation of one incident which was sexual abuse is not an easy task to talk about in any forum I was 16 years old when it happened, but if it can help one person then in many ways my job is done. I decided to deal with this one alone to me I needed no therapy or endless talks about the what’s and the why’s etc, I went to the source it is near to me so I took that step on to hallowed ground with memories ripe or which I could remember soundly. This was a cleansing  exercise and I was going to sweat this one out.

Looking Forward

Like some sort of scene in a movie I was there alone. I found the place I patterned it out and looked, simple just looked at the door that is all I needed to do I stood there for a few minutes nor more no less and made my peace with the past I had to because I knew if I didn’t this would eat me up inside.

Many A Road To “Rome”

Has this on a subconscious level had an effect on my personality? behaviour patterns, triggers and is apart of the package of my “fruit salad” I would say yes it has may I would have been a less vigilant person, a less closed person in some areas of my life. I have learnt that I will not let this mould me but I shall mould it and if that is the road to tranquillity I shall take it. I am no one’s victim.

I Am Person 

Some people may think because of the nature of the work I do that I am detached, not accustomed to feeling out control, feel sadness, anger, confusion or despair I have got news for you. I am a person – when you cut me I shall bleed.

I don’t mind disagreement, I don’t mind people coming into my life and out again (if they wish), I don’t mind people  deciding to not to be my my friend (they have their own path to lead), I don’t mind disagreement, I don’t mind anger or venom spilled in my direction, I don’t mind a lot of things believe it or not. Just as long as with me you know that any judgement is NOT made prior to knowing because that is when one fills up bullshit loaded with assumptions and preconceptions.

I wish you well in your ongoing journeys. I would rather pave a road full of positivism and compassion than a road full of gold and greed. 🙂

Paul Isaacs 2016


2 Comments

Mental Health: Reflections Of Moving On From Negative Environments

ShortsNote: This is from a personal perspective

Negative environments

Negative environments can leave “hidden difficulties” that become about to the mix of things that may not of been there when the person entered them. Mental health is tempestuous subject in itself but looking after one’s own mental health and being aware of the “warning signs” of mental health issues can be a very difficult one to acknowledge and accept that is happening.

Slow escalation of events

Sometimes events can slowly build up from behaviours of others, this may have a slow gradient like effect that initially may seem quite “mild” in the sense that the overall impact is small and may well be just secluded to the event which happened and the person is able to get on with their day with no trouble at all.

Sometimes “resolve” doesn’t come in the form you expect

What if that situation lacks resolve but you yourself want a resolve? What is the situation is being mishandled? And you yourself want it to be handled correctly?

With a moral compass for feelings to not only be acknowledged but to withhold a balanced and healthy level of objectivity.

If those basic foundations aren’t in place for whatever reason and you feel trapped and/or obliged to keep going, there is going to be a tipping point and decision making that needs to be addressed, surely for the benefit of the parties involved.

Let go of the situation and the people within it

My reflections are only from a personal perspective on whence they happened but I believe that one of the primary mistakes that were made by me was to keep staying for the long term – I know why I did. It was primary because I didn’t want to leave; it made me feel uncomfortable for the future and what that meant in the long term.

Positivity and new experiences are valued

When I left the situation my mental health improved gradually to a point where my mental health was on an even keel and was not impacted by mood disorders, emotional regulation problems, clinical depression, and personality disorders. The “invisible chains” that had shackled me where gone I had gained a level of control, autonomy, roundedness with the ability to look back not in shame, self-pity but that a lesson was learned.

Paul Isaacs 2016


3 Comments

Alexithymia, Somatisation Disorder, Emotional Regulation & the Loss of a Dog

Sometimes words cannot express in times the grief those thoughts, feelings and wants that you had for a loved one once they have passed on. This is from a personal perspective.

Emotions within “the self”

Being aware that such an emotion exists within at all can be difficult to decode and grasp in the end interpret within the context of its own reality and within its own significance one can witness and event that was seen to happening and not “connect” with it in a way which feels that is “correct” , “just” and “suitable” to me that is fine I understand why this happens within my “internal” self this is a road that I cross with not being able to “filter” or “interpret” my emotional states in “real time” or course one would expect a level of delay in such circumstances – but over many years I have noticed patterns my own behaviour that manifest during these times of grief.

Alexithymia and “emotional perception”

In my first book I document times of emotional perceptual difficulty either displaying an emotion and not connecting its own context or significance (such as crying from an emotive reason for example but not “naming” the reason or reasons behind it) or having delayed emotional perception which means a situation could be happening on a constant basis and it could take me years to filter how “I” felt about it like a wave of raw emotion hitting me all at once, in my teenager years I feel as if being “attacked” by my own emotions hitting my arms and legs, tensing my face and knuckling the temples of my head.

Emotional regulation

Regulating ones mood I have found to be difficult because the “origin” or “starting point “may take to time to be seen, understood and processed within the significance of the “self” and then the “other” (if other specific parties are involved) this loop once stared may well be overwhelming so the filtering starts on a difficult level now understanding and significance come into play.

Somatisation disorder

DSM-IV-TR
The DSM-IV-TR diagnostic criteria are:
• A history of somatic complaints over several years, starting prior to the age of 30.
• Such symptoms cannot be fully explained by a general medical condition or substance use OR, when there is an associated medical condition, the impairments due to the somatic symptoms are more severe than generally expected.
• Complaints are not feigned as in malingering or factitious disorder.

This has manifested itself in many different forms over the years it could be a headache, stomach ache, back pain, limb tenderness the list goes on but it seems to have running theme within my “decoding of emotions” with the death of my dog recently I started to have what I perceived as a toothache this pain last for well over three months (have problems with perceiving pain and trauma) I recently went to the dentist for a check-up and low and behold the wisdom tooth which I thought was “decayed” was healthy and no problems persisted.

Days after the dentist appointment the “pain” disappeared – I believe there is a connection between personality types, my emotional perception, and mood management and somatisation disorder and how I deal with grief and deep emotional states.

Emotions are human

Human beings are emotional beings and there are many different ways in which a person shall decode, evaluate, self-reference, and acknowledge and ultimately “deal” with their own emotional states is seems there are many emotional roads to Rome.

Paul Isaacs 2016