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Autism from the inside


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Autism – The Crossover from “Sensing” to “Meaning”

Sensing vs Interpretation 2918 image

 

Note this is from a personal perspective

Talking yesterday to friend about speech and language I thought it was interesting to see progression the inner feelings of someone who has gone through significant challenges in receptive and expressive language. I can remember a whole host of disconnected emotions that came flooding towards my person when speech slowly developed in terms of expression, a whirl wind of patterns, phonics and placements in my collective unglued memory and figured out by the ages of eight a system of external placement, phonic placement and movement sequences that helped me connect with the outer world around me.

However what was challenging from both emotional and integration point of view was taking a step away from the system of “sensing” (Donna Wiliiams 1998) a state of pre-consciousness, patterns, thematics and “feelings” that answered and questioned, that supplied and didn’t demand, that sang but didn’t shout, that gave and took in relevance of the moment it was captured. A place which “being” was the name of the game and “storing information” was redundant and futile.

It was a world in which in my own way I had found connects through external sensory modulation as explained so switching my “systems” was much a painful and frustrating experience as I can ever remember my connected chatter annoyed and scared me and the connected words would then bring upon the attention of connected response to which I was not readily to respond.

So was it like losing a friend well at that point yes I was making subtle yet significant transition into the world of interpretation, cladding, hierarchy and applied meaning for someone who was profoundly meaning deaf and meaning blind to those concepts it certainly makes sense why I wanted to “go back” into a world of “sensing” it was in reflection both a prison and sanctuary, solitude and disarray and home and wilderness all at once.

We (human beings) all come from the system of “sensing” however my personal experience is being “there” for a longer allotted period and many ways I am still there with reflective gaining and personal developmental progressions that have come with it.

Paul Isaacs 2018


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Altered Developmental Trajectories In Autism Are Not Mutually Exclusive

Note this from a personal perspective reflecting on aspects of development

Donna Williams’ wrote a blog which I have included in mine about the connection between “autism and trauma” now these two things are not mutually exclusive. She was very much a person who thought outside of the box and did not her confine her views to rhetoric or fads making for refreshing and reflective reading.

Early Experience “Nature vs. Nurture” 

Many things part of my autism are to do with early birthing issues such as placental abruption, brain injury, c-section, circumcision due to phimosis in 1991 age 5 and ear infections which lead to grommets and adenoidectomy age 4 in 1990. Many of these factors had an impact on my developmental trajectory some of them are to do with altered states of development which then in turn create a person who nervous system reacts.

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What “Makes Up” My Autism?

For me my autism is due to birthing complications placental abruption, prematurity hemiplegia, language processing disorder and visual perceptual disorders making up about 70% of my autism.

The 30% remaining is genetic components such as a family history of dyslexia, mood, anxiety disorders and OCD on my Mother and Father’s side.

Auto-immune disorders of various types are on my Father’s & Mother’s side. Mum had chronic childhood Ezchema, My Nan on my Father’s side had Non-Hodgekin Lymphoma and My Father Chronic Lymphocytic Leukaemia.

A Broader Perspective Of “Autism” 

Looking at the broader palette of what is “autism”? What if people are becoming progressively distant and/or scared of different “Roads To Rome” when it comes to the different factors that come with an “autistic package”. What if things that “look like autism” can actually be apart of what makes someone “non-autistic” and vice versa? Maybe we need stop finding the magic “bullet” for what autism “looks like” and what it is made up of and start looking a specific realities and all that is within them?

People Who Don’t Have Autism?

People who don’t have autism can have things that can be apart of person’s “autism package” to varying degrees – developmental delays, personality types, mental health, environment and learning styles can have an impact on anybody in the end.

Lets Stop Calling it ‘the autism’: Autism and Trauma – what’s the connection?

Donna Williams’ Blog

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Recent studies in reputable medical journals have linked Autism to seemingly farfetched things like being born to mothers with pre eclampsia, being born prematurely, being born to older fathers, being born to smokers, being born by cesarean, being circumcised under the age of 5.

And as an autism consultant since 1996 I would say that of over 1000 families I saw as a consultant, that a rather strikingly significant number of them claimed to notice the onset of their child’s autism in the week following the child’s first birthday party (being posed for photos, candles, cake, room full of visitors, clown etc). And then of course are the plethora of families who swear their child began developing autism anywhere from 24 hours to 3 months after heavy vaccination schedules. Could these seemingly unrelated things have anything in common? Could it even be there is a cascade effect where the child’s autism is present (subclinical) but not showing following a cesarean birth, then becomes progressively more obvious if the same child gets circumcised, has a heavy vaccination schedule and is then thrown a full on first birthday party? It may sound utterly whacky, but is it possible?

“Children can develop a kind of ̳hard-wired‘ autonomic nervous system response to trauma and its triggers due to the ongoing need to utilise the circuitry to promote adaptive defence strategies. Over time they decrease their capacity to access their social engagement system (since this has not been used successfully in great amounts), and as more and more of the world is perceived as unsafe, they come to rely on their defensive states to negotiate their environments, making social engagement very difficult.

Porges research has revealed that how our nervous system interacts with our environment depends on not just the absence of threat, but the absence of nervous system perceived threat. He has developed the term ‘neuroception‘ to describe our perception of safety not just consciously but also – and often exclusively – at a below cognitive level (Porges 1998, 2001, 2003). It is this neurological response of safety that promotes the ability to utilise our newer system and circuits, whilst conversely, the lack of safety promotes a return to using older circuits to mobilise or immobilize in the face of neurologically perceived danger.

When our nervous system detects safety our system adjusts and makes it possible to enjoy closeness without fear, and keeps us from entering defensive physiological states of mobilised hyper arousal and immobilized hypo arousal, whilst still enable the use of these circuits in safe ways.”

Chronic ear infections have been linked to PTSD so why shouldn’t Upper Respiratory Tract Disorders or gut disorders, even chronic severe constipation in children with immune and autonomic dysfunction equally result in such entrapment with pain from their bodies that some children might develop a neurological developmental response akin to PTSD?

In mild brain injury could the brain similarly interpret as trauma things like chronic sensory confusion/overload, extreme emotional dysregulation, the CNS disorientation from untreated food allergies and intolerances, the entrapment of being non verbal in a verbal world or having a body you can’t make work for you. And as one reached age 2-3 when functioning demands of the environment dramatically increase, could inability to organise one’s senses, emotions, communication, self help contribute to a trauma related cascade that progressively derails development accordingly?

What of the trauma potential to an infant of relentless torment from hyperacusis, or the whooshing sounds of Pulsatile Tinnitus, or severe Tourette’s, even relentless ear popping tics nobody can see, the repeated disorientation, unpredictability and loss of control of constant seizures?

If being born to a carer who is in the grip of post natal depression would predispose a child to not having established that initial bonding, would this leave such a child more predisposed to PTSD than one born to a healthy mother? And what of infants who fail to develop normally whose carer then goes through years of mourning the loss of the ‘normal’ child they had expected? Is this also experienced by the child in a similar way to being born to a carer with post natal depression? And what of the maternal separation of premature babies too small to be held by their mothers?

What of immune deficient or other unwell infants left in the care of hospitalswhere they experienced the absolute vulnerability of and utter foreignness of significant medicalisation in the hands of a range of strangers? With a 45% higher incidence of autism associated with circumcision before age 5, could this be traumatising for those children already genetically predisposed to trauma? Could this be extended to children handed over to doctors for heavy vaccination schedules without any later autism having anything directly to do with the vaccinations themselves?

And what of the trauma of a birthday party? We all have different personality traits. Babies too. Some of us are simply not wired for full on, in your face sociable parties when we are one year old. If our personality traits would later make us an attention seeking, self confident, adventurous party animal there’d be no foreseeable problem. But what if our nature was sensitive, solitary, vigilant, idiosyncratic…

It seems predisposition to PTSD is genetically predisposed. Would there then be children already more at risk from a progressive cascade effect of accumulated perceived traumas that would leave other children unaffected? If the children of older dads are more prone to mental illness would this include a higher predisposition to PTSD?

Ehlers Danlos Syndrome is a genetic collagen disorder with overlap with autism. Collagen is the stuff of connective tissue throughout the body, including the vascular system and the brain and is also responsible for immune regulation and brain connectivity but those with EDS also have autonomic dysfunctionassociated with sudden fluctuations in blood pressure (ie floppy veins) due to faulty collagen. These sudden fluctuations commonly get interpreted by the brain as panic attacks. So a child experiencing continual panic attacks caused by autonomic dysfunction would logically also be predisposed to developing chronic fight flight states and associated compulsive involuntary avoidance, diversion and retaliation responses.

Being born c-section leaves the child with lower levels of the calming hormone Oxytocin which is essential to having resistance to heightened threat and anxiety. We also all begin life with a reflex for crawling out of the womb. After using this infantile reflex it becomes neurologically inhibited which leaves us ready for the use of other reflex responses, each essential in the developmental process. Being born c-section leaves this infantile reflex uninhibited.

“Normal performance of primitive reflexes in newborns can be linked to a greater likelihood of having higher Apgar scores, higher birth weight, shorter hospitalization time after birth, and a better overall mental state”.

>http://en.wikipedia.org/wiki/Primitive_reflexes

What about if the mother experienced trauma during the pregnancy? If a mother was living in an abusive relationship would the unborn child be experiencing her own trauma as its own? Is the baby awash with stress hormones? Does the baby also feel this same level of threat that the mother is feeling?

Pre-eclampsia and other pregnancy and birth related emergencies have left mothers acutely anxious and sometimes traumatised and pre-eclampsia in particular has been recently shown to have another high association with autism . In response to this blog article I heard from a commenter who drew my attention to the recent links between Paracetamol and both pre-eclampsia and autism.
They wrote:

I would suggest that the missing link is not trauma but the use of paracetamol (acetaminophen, Tylenol). Rebordosa found that paracetamol use during pregnancy increases the risk of pre-eclampsia. Paracetamol is often used in conjunction with vaccines,ear infections and viruses. We have been circumcising for centuries but autism is a new and escalating phenomenon. So how could circumcision increase the risk of autism? What has changed about circumcision in recent times? The use of PARACETAMOL (acetaminophen, Tylenol) with the procedure to treat pain. This practice began in the mid 1990’s, with recommendations by WHO and the American Academy of Pediatrics. It has been shown that infants have significant difficulties metabolizing paracetamol in the first days of life. Paracetamol is known to have a narrow threshold of toxicity under the best of circumstances.

Three studies investigating prenatal use of paracetamolhave found adverse neurodevelopment in the offspring- ADHD and autism phenotypes in 3 year olds. It is not such a stretch to think paracetamol given directly to the infant could also have deleterious effects. This study supports the paracetamol hypothesis set forth by Bauer and Kriebel and highly warrants further investigation.

Could it be that in some cases paracetemol (acetaminophen, Tylenol) derails neurodevelopment pre-nataly which in turn leaves the child neurologically less equipped to handle acute stress and so has an early trauma response to things someone else would not, then once an acute fight-flight states becomes a chronically triggered/regenerated pattern, that becomes the default social-emotional response to such a wide range of new experiences the person is then further developmentally derailed. Paracetemol is also given to babies following circumcision and after the MMR vaccination. Parents have systematically given Tylenol to their infants for teething, for nappy rash, even for trouble sleeping.

In adults, single doses above 10 grams or 200 mg/kg of bodyweight, whichever is lower, have a reasonable likelihood of causing toxicity.[4][5] Toxicity can also occur when multiple smaller doses within 24 hours exceed these levels.[5] In rare individuals, paracetamol toxicity can result from normal use.[11] This may be due to individual (“idiosyncratic”) differences in the expression and activity of certain enzymes in one of the metabolic pathways that handle paracetamol (see paracetamol’s metabolism).

US television adverts of this drug psychologically target carers to ‘care for their child’ by quickly reaching for the Tylenol. These advertisements do then rush through the disclaimer at the end, often so quickly it is hard to process and usually completely out of sync with the reassuring tones used in advertising the product moments before.

IF trauma is found to have the most significant impact on brain development, communication development, social and emotional development presenting as ‘autism’, then what is the future? Would it also mean that autism is both born and made? Would we have to accept that a more mildly autistic child could become progressively more autistic if progressively accumulating further retraumatisation through everything from a bad fitting form of intensive intervention to bullying at primary school, to actual abuse from a carer unequipped to healthily care for a challenged child?

Do we have then develop screening for genetic predisposition to PTSD before a child is put through the same approaches and treatments as those without such predispositions? Would the strategies used to turn around chronic fight-flightstates and involuntary diversion, avoidance and retaliation responses in Exposure Anxiety become the most important first interventions?

I could suggest a protocol something like this:

Possible protocol for turning around chronic fight flight states.

a) inform the carers/diagnosticians about the presentation features of ‘autistic post traumatic developmental disorder’ and that trauma and the sources of retraumatisation can have a range of quite unconventional causes.

b) where possible identify initial traumas in each case and ensure these are addressed

c) identify additional re-traumatisation triggers that keep this being reinforced

d) put in place a treatment plan to address any underlying gut/immune/metabolic disorders and associated pain, sensory perceptual disorders and associated sensory distress, communication disorders, movement disorders, chronic information overload as socially non invasively as is possible to stop feeding chronic fight-flight responses.

e) to bring in omega 3s as a natural mood leveller and L-Glutamine where suited to raise GABA in order to facilitate lower doses of mood levelling/anti anxiety medication necessary to give respite to an overreactive nervous system.

f) to start a program designed to raise Oxyitoxin levels to tame over active anxiety responses: start music, massage, body brushing, art and movement programs, animal therapy, singing, laughter yoga, non invasive touch, to help calm the nervous system, get dissociated people feeling safe back in their bodies.

g) to counsel and support families in retaining the approaches that will progressively turn around chronic fight-flight states and thereby facilitate freed up development of more adaptive information processing, communication, and interaction.

And finally what of identification with one’s autism? What if it turns out that we do in fact ‘all have a bit of autism’ and that traumatisation (and retraumatistion) makes the difference in how much we each end up with? Do all people with autism then have ‘autistic post-traumatisation developmental disorder’? A kind of ‘Traumatism’? And would they want treatment or be happy with how they adapted?

At the end of the day, stress may break some of us, but stress also makes us. Stress trains the brain, trains the body. The trick is to build that slowly, progressively, so it isn’t experienced as trauma followed by continual perceived retraumatisation:

Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.donnawilliams.net

I acknowledge Aboriginal and Torres Strait Islander people as the Traditional Owners of this country throughout Australia, and their connection to land and community.


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Book Review Autism Decoded: The Cracks in the Code: Volume 1 By Stella Waterhouse

 

This books is a must read for parents, professionals and people on the autism spectrum 

Stella Waterhouse has been a professional in the field of autism since the 1970’s with a whole wealth information that taps into the very soul with resonance and deep thought, she clear has a passion for getting the knowledge out there by presenting different aspects in chapters with detailed and accessible writing.

From detailed historical elements of autism, professionals and advocates on the autism spectrum  written with eager candor, emotion and objectivity to the multi-faceted nature of autism broken  down into accessible  pieces.

  • Sensory Perceptual Disorders
  • Sensory Processing
  • Theory of Mind
  • Context Blindness
  • Language Processing
  • Exposure Anxiety 
  • Alexithymia
  • Personality Types
  • OCD, ADHD and other co-conditions
  • Short/Long Term Memory
  • System of “Sensing”
  • Facilitated Communication 
  • Left-Right Brain Functions & Brain Development 
  • Autism and Asperger’s Syndrome 
  • Savantism

The running theme in book contextual to the information based on the specific chapter is to give a human element that touches the reader, makes them think, reflect, perspective take, feel emotion and more.(with first person account and historical accounts).Woven with relative and  factual elements (such as the brain and nervous system) that broaden the palette and overall sphere of information giving rounded, objective and fluidity the runs from page to page.

This is a refreshing book that achieves the very title it was given looking beyond the stale and liner 2D nature of autism and opening up a broadening 3D perspective that will no doubt help generations to come. Highly recommended.

Paul Isaacs 2017

 


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Autism & Developmental Asexuality?

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Note this is from a personal perspective 

I was talking to a speech and language therapist after watching a program on a young lady he decided to be come asexual by choice in other words she had made a conscious decision to do so and very happy.

Developmental Asexuality 

I was then got me thinking about why I am asexual? I never made a choice to be so it wasn’t a conscious decision  on my part. Talking to the the speech and language therapist about different stages of development it would put in in the fold of wanting meaningful friendships and keeping and that is between the ages of 9 – 14 years old. This I would certainly agree with.

Studies? 

I wonder is there is a possible group in which this asexuality is due to a developmental “blockage”? If so would be interesting to see any studies on this.

Paul Isaacs 2016


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Life With Autism Videos Parts 1 and 2 – Autism From The Inside

OVERVIEW

Theses are two videos about life with Autism which cover developmental history, education and employment. 🙂

Enjoy. 🙂

Paul Isaacs 2014