Paul Isaacs' Blog

Autism from the inside


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Managing Grief and Loss with Visual Perceptual Disorders

Note this is from a personal perspective

Grief is a normal state to be in when you lose someone you love and have connected to and I know that this feeling or more accurately abundance of differing feelings that accompany it are part of the process.

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Visual Agnosias – Deficits In Memory Perception & Visual Association? 

I have no pictures of my Gramp none that “spring to mind” I cannot “visualise” or have pictures in my mind my “meta-reality” (a person’s inner world/consciousness)  is not made of pictures or movies as a form of association. It is made of of smells and textures I made a point when I said goodbye to my Gramp at the chapel of rest to stroke his face and hair so would have a physical association of the firstly the bond we had and secondly my way of saying goodbye to him and his body.

Paul Isaacs communication profile 2017

Bereavement Counselor 

I went to see a bereavement counselor today and I was thankful that he was able to assist me not only in the human element of my grief but also adapt his way of describing different interventions and explanations to me.

 This is what he used in  the session 

  • Contextual telegraphic language “painting his words” with gesture and placement and meaning
  • Allowed time for me to do “all self no other” and “all other no self” in order for me to express and receive the information
  • Compartmentalised my  own emotional states giving them a reference point and also suggestions in how to manage my emotions
  • Understood I have a history of mood, compulsive and anxiety disorders associated with somatisation disorder
  • Allowed me to be creative in expressing my emotions through creative writing, poetry and art

 

autism-pyramid-updated-2017

 

Addressing The “Pieces” Of The Jigsaw

So what parts of my “autism” are being addressed?

  • I would say firstly his looking at a level of information processing delay and giving me time
  • The next would be that fact that because of visual perceptual disorders having a level of visual agnosia in the areas of meaning (semantic), object (simultagnosia) and faces (prosopagnosia) means that using gesture, placement and telegraphic language backed up with word emphasis in the right areas helps me internalise the words better assisting with the level of aphasia I have
  • Looking at my own emotional states is assisting with alexithymia and overall giving me time to integrate “self and other”.

 

Conclusion 

I would say that my grief is human and that I will get through this with at times very basic but meaningful interventions I do however hope this helps people with similar issues to my myself regardless of being on the autism spectrum or not.

 

Paul Isaacs 2017

 

 


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Autism – Conscious Negative Behaviour, Social Mistakes, Meltdowns & Shutdowns

OVERVIEW

This is from a personal observational perspective and the reasons/contexts stated are of many different scenarios 

Autism Is Not An Excuse For Genuine Bad Behaviour 

Autism is not an excuse for genuine bad behaviour – Imagine a circumstance where a person said I have “non-spectrum syndrome” and that is the reason why I did it, that would be appalling, equally so if a person on the spectrum used their Autism for genuine misconduct that would be to.

Equality comes from not only having good things happen in your life but also accepting and taking responsibility in other areas of life too.

Social Mistakes Vs Conscious Negative Behaviours

It is the context – where the behaviour comes from if it comes from for example sensory overload, sensory processing, language processing and metabolic pain with no conscious want and or intent to harm others such as meltdowns and shutdowns.

Sensory overload. processing and agnosias can be seen as “bad” behaviours even if the trajectory isn’t.

Conscious Negative Behaviours 

If the behaviour comes from  a conscious to place to hurt and or harm either emotionally or physically (or both) then it’s coming from a different place altogether the intentions, reasons and contexts are completely different to ones stated above.

Sometimes it is hard to know which place and a bit of detective work is needed.

Paul Isaacs Adult With Autism 2014