Paul Isaacs' Blog

Autism from the inside


In The Last Ten Years

Looking Back

The last ten years have been very intersting in 2009 I was recently out of the Mental Health Services with two personality disorders, auditory hallucinations and psychosis, I was self harming and attempted suicide.

Early Infancy

By clinical observations I was serverely autistic, I was profoundly meaning deaf, meaning blind, body disconnected, oral apraxic and didn’t gain functional speech till later in infancy. I was and am thankful to my parents who had no means of any interventions (in the late 80s many were dated).

In 2010 I was diagnosed with autism and OCD and my speaking career started off in which I went freelance in 2015.

“Standards of Success”

By “non-autistic” standards I “made it” in many ways I suppose. I was considered “retarded” by the village I lived in and was targeted and bullied by the children and adults till my mid-teens.

Education

I was targeted and bullied at school from primary to secondary when I finally left in 2002 (with an isolated incident of sexual abuse) in the latter.

I went on to do an ICT coursecfor a year and had the greatest experience of my life from and educational perspective it proved I could be educated.

Bullying and Employment

The bullying in employment started in 2002/3 so multiple jobs were lost and gained.

I was thankful to the autism base in Chinnor in around 2008/9 for supporting me as well as the start of my speaking career in 2010. Over that period of time I wrote and authored 5 books.

The bullying in employment stopped in 2015 when I went freelance and started working for My World.

This is longest time in employment that I have been safe, comfortable and seen as a part of the team.

I Am A Person-First

People wonder why I use “person-first language” this is why because I do not want to be defined by a “label”. I do not like serperatist “them and us, us and them” rhetoric we (as beings) are all a part of the human race

From 2013 onwards to now I am pleased to have met some of the most wonderful and friendly people in both my personal and professional life.

Love and Life

I lost my Gramp in March 2017 due to metatastic prostate cancer, one of my dearest friends and mentors Polly (Donna Williams) in April that year also to metatastic breast cancer and my Nan in December 2019 due to pneumonia. I shall always cherish my fondest memories of them.

I almost lost my Dad in 2011 due to chronic lymphocytic leukemia and then meningitis in 2018 as well as my Mum in May 2019 due to a complex thrombotic disease.

Creative Mindsets

I have had great fun dabbling in art, poetry and what I call “insta-modelling” in which to my surprise and support from my friends up north has been rather enjoyable!

I have been interested in androgyny for many years prior and have been told I look as such.

One of things I can do well is pluck my eyebrows which I consider an achievement as much as anything else! 😉

Conclusion

So look beyond what is here, look beyond what is heard, what is seen, what is touched and sense people because every cherished little person is special and of equal valor and humility in this world.

Paul Isaacs 2020


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Autism and Anti- Bullying Week – Advocating & Acknowledging Different Autism “Fruit Salads”

Image result for bullying image

The word “autism” is a describing adjective of and “experience” and multi-layered condition of “conditions” a “fruit salad” as the late Donna Williams had noted from looking at her own autism and observation of others through her consultancy work.

So with that in mind what can bullying be down to? Many factors of course can be noted such as perceived vulnerability and/or threat, a noted and/or varied amount of insecurities within the bully themselves and of course any other contributing environmental factors that propel and/or ignore or not acknowledge that bullying is happening so what can be the contributing factors? Within in a person’s “autism fruit salad”?

Social emotional agnosia

This is to do with social perception so if someone doesn’t read body language, tone of voice or facial expression all they have left is facts this could lead the person to being picked on, left out and struggle to integrate into conversations between their peers and/or left overwhelmed.

Simultagnosia (Object blindness) & Prosopagnosia (Faceblindness)

The person may perceive things in pieces and not wholes making visual tracking of the environment difficult to manage meaning they are “lost” and struggle to find connections and visual coherence.

They may also have faceblindness as well meaning blindness meaning that bounding with the peoples via their peers faces is difficult. Leading to errors in communication and not knowing who people are, this may lead to teasing and/or bullying by their peers.

Semantic Agnosia (Meaning blindness)

Seventy percent of information is visual so what if a person on the spectrum is only using thirty percent information to perceive? They may use their hands, feet, tongue and body to externalise their surroundings in order to internalise, this includes objects and people.

As this system may not be fully understood by their peers around them it may lead to social misunderstandings, fear and/or exclusion due to a person being highly tactile.

Integration of “Self and Other”

Some people with autism may struggle with a “shared” sense of “social” the developmental underpinnings are to do with development of language and possibly having a more multi-tracked system of bringing together multiple forms of information at once.

So the person may only be able to do “all self no other” meaning the person may seem to not listen to others and project, and/or not project and not answer when it’s the other way round “all self no other” this could lead to teasing because of the lack of fluency between the “switching” by peers.

Meaning Deafness

Differing levels of language processing means that the person may not be able to keep track of what is being said, its relevance and or significance. If the person is resorted to just hearing “sounds” and not bridging the sounds into “meaning” the person may struggle with interpretive language.

Exposure Anxiety

EA was first described by Donna Williams in her book “Nobody Nowhere” in 1991 and later and hand book on the condition in 2003. EA creates involuntary diversion and retaliation responses when a feeling of “exposure” is triggered the nervous system then reactions with such responses as echolalic litanies (that go nowhere), spitting, hitting (others and/or themselves), swearing, running away and/or freezing (mutism).

People are directly confrontational in their language to one another with EA the person may benefit from an indirectly confrontational approach. Peers may be baffled on/or even confused by the differing responses this may lead to being teased, left out and picked on.

Other Things To Consider

  • Personality Types
  • Learning Styles/Variations
  • Dietary Disabilities
  • Mental Health Co-Conditions

Conclusion

If we are looking at advocacy we must first look at all perspectives of what is being experienced by the person on the autism spectrum and their peers and bringing a hopeful inclusion tailored by

  • Information sharing
  • Perspective taking
  • Healthy validation 
  • Inclusion

Advocacy of Autism as a “Fruit Salad”

By looking at the multifaceted nature of the word “autism” one must look beyond the stereotypes, beyond the rhetoric and once people open up to being healthily challenged, empowered and acknowledged then we can look forward to the future.

Links

Books

Nobody Nowhere D.Williams 1991

Exposure Anxiety D.Williams  2003

Autism: An Inside Out Approach D.Williams 1996

The Jumbled Jigsaw D.Williams 2005

Living Through The Haze P.Isaacs 2nd Edition 2016

Understanding & Supporting Autistic Students In Specialised Schools P.Isaacs 2013

Blogs

What is Autism? D.Williams 2014

Differences Between Aspergers and Autism “Fruit Salads D.Williams 2012

There Are Two Types of “Social Emotional Agnosia P.lsaacs 2018

Visual Perceptual Disorders In Children With Autism D.Williams 2011

Tinted Lenses, Visual Perceptual Disorders and Bridging The Gap Between “Non-Visual and Visual Worlds P.Isaacs 2017

Was Michael Jackson autistic or one of the most famous people with Exposure Anxiety? D.Williams 2009 

Link to Original Article Anna Kennedy Online

Paul Isaacs 2018