Paul Isaacs' Blog

Autism from the inside


In The Last Ten Years

Looking Back

The last ten years have been very intersting in 2009 I was recently out of the Mental Health Services with two personality disorders, auditory hallucinations and psychosis, I was self harming and attempted suicide.

Early Infancy

By clinical observations I was serverely autistic, I was profoundly meaning deaf, meaning blind, body disconnected, oral apraxic and didn’t gain functional speech till later in infancy. I was and am thankful to my parents who had no means of any interventions (in the late 80s many were dated).

In 2010 I was diagnosed with autism and OCD and my speaking career started off in which I went freelance in 2015.

“Standards of Success”

By “non-autistic” standards I “made it” in many ways I suppose. I was considered “retarded” by the village I lived in and was targeted and bullied by the children and adults till my mid-teens.

Education

I was targeted and bullied at school from primary to secondary when I finally left in 2002 (with an isolated incident of sexual abuse) in the latter.

I went on to do an ICT coursecfor a year and had the greatest experience of my life from and educational perspective it proved I could be educated.

Bullying and Employment

The bullying in employment started in 2002/3 so multiple jobs were lost and gained.

I was thankful to the autism base in Chinnor in around 2008/9 for supporting me as well as the start of my speaking career in 2010. Over that period of time I wrote and authored 5 books.

The bullying in employment stopped in 2015 when I went freelance and started working for My World.

This is longest time in employment that I have been safe, comfortable and seen as a part of the team.

I Am A Person-First

People wonder why I use “person-first language” this is why because I do not want to be defined by a “label”. I do not like serperatist “them and us, us and them” rhetoric we (as beings) are all a part of the human race

From 2013 onwards to now I am pleased to have met some of the most wonderful and friendly people in both my personal and professional life.

Love and Life

I lost my Gramp in March 2017 due to metatastic prostate cancer, one of my dearest friends and mentors Polly (Donna Williams) in April that year also to metatastic breast cancer and my Nan in December 2019 due to pneumonia. I shall always cherish my fondest memories of them.

I almost lost my Dad in 2011 due to chronic lymphocytic leukemia and then meningitis in 2018 as well as my Mum in May 2019 due to a complex thrombotic disease.

Creative Mindsets

I have had great fun dabbling in art, poetry and what I call “insta-modelling” in which to my surprise and support from my friends up north has been rather enjoyable!

I have been interested in androgyny for many years prior and have been told I look as such.

One of things I can do well is pluck my eyebrows which I consider an achievement as much as anything else! 😉

Conclusion

So look beyond what is here, look beyond what is heard, what is seen, what is touched and sense people because every cherished little person is special and of equal valor and humility in this world.

Paul Isaacs 2020


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In Conversation With Sharon King – Autism Speaker, Author, Advocate & Mum

I first met the Kings in 2016 this was somewhat of an interesting meeting of minds, I was nervous it was my first speech/training session as a freelance speaker and it was in Telford at a National Autsitic Society Event. Her daugther Rosie diagnosed with Asperger’s Sydnrome was introducing the speakers in the main hall. I had seen Sharon and her family over the years on social media.

She was in the audience during one of my sessons and we sat down during one of the intervals to chat with her daughter Rosie. They were both very warm, friendly and welcoming I then went to their home the same year to do consultancy sessions with her son and daughter Lenny who was diagnosed with classic autism and Daisy who was diagnosed with Kabuki Syndrome.

It was a pleasure to meet them all including Sharon’s husband Richard who with their charming and down to earth manner it was had left me with a positive and reflective on impression and we have became all beomce friends. Sharon has since of 2017 publised a book “How To Best Help An Autism Mum.”

Sharon’s Ethos

What would you like staff to know about people with autism?

That each person with autism is an individual. Anyone who believes themselves to be an autism expert needs to get humble and go back to learning. The greatest barrier to learning is the assumption that we know everything.

What support benefited you the most as a Mum?

The greatest support has come from my children and othet individuals with autism who I have befriended. An arena of respect is where the best parenting happens. X

Further Conversation

Sharon King

I think. One of the most helpful things I have learned is not to take Daisy and Lenny’s behaviours personally. It is quite freeing. Ie ~ ‘this is happening, how can I deal with it?’ As opposed to ‘this is happening to me…poor me!’

Paul Isaacs

Yes I agree ever take things on the personal because it largely isn’t even the swearing and being bitten doesn’t bother once you know where it comes from.

Sharon King

Yeh like rubbing crap (with regards to smearing) into radiator nor personal ~ just a bit smelly! X

Paul Isaacs

Haha Humour is an ally! I used to urinate in the bath in my infancy I liked how the colour changed in the water I also got confused and would treat my bath as a “very large toilet” it looked like a duck, sounded like a duck so I thought it was a duck no? That is context blindness

Sharon King

At least you admit to it lots of ppl do it in secret! X

Paul Isaacs

Haha 🙂 The sods 😀This conversation proves that open-mindness is the key
open doors rather than closed.
Of course poo smearing can have different motivations for some it could exposure anxiety and keeping “people at bay“.
For others it could be to do with severe sensory perceptual and/or language processing difficulties.
For some it could be to do with addiction, habitual and compulsive in nature.
For others it could be to do with co-dependency.
One “behaviour” can have multiple reasons why. 😉

 

Sharon King

I think with Lenny it stems from a genuine interest and delight in textures x

Paul Isaacs

Sensory perception yes 😊

Its been a very interesting chat as always Sharon as there certainly is a positive an objective theme going on here with your permission could I use your answers on a blog? This then can be put on your page. 🙂

Copied with kind permession of Sharon King

Paul Isaacs 2018

 


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Mick Foley – American Wrestler Retrospective

When I think of wrestling in the USA I tend to think of at least three The Undertaker, Stone Cold Steve Austin and Mick Foley.

I started watching wrestling via VHS in the mid-nineties when a friend of my Father lent him videos of old WWF/E pay per view events this included The Royal Rumble, King of the Ring,  Wrestlemania and Summerslam as amongst others. Then a friend of mine recorded them on VHS and lent me house shows too.

Image result for mankind entrance summerslam 1997

Summerslam 1997 Copyright World Wrestling Entertainment 

MEMORIES

One of my earliest memories of Mick Foley was in his Mankind persona for the first match of Summerslam 1997 in which he had a rivalry with the King of the Ring contest winner Hunter Hearst Helmsley. As this strange character staggered out of the mist with melancholic music (fitting the characters personality) he had long hair and wore a tightly bound leather mask, it was a fun match to watch.

I was was in awe of this character slammed into the a cage but never seeming to give up. He changed personas towards the end of the match, with symbolic removal of the leather mask and the change of character Dude Love appeared and dropped the show stopping elbow drop for the win.

I eagerly looked forward to seeing this character again with his ever changing personas such as Cactus Jack his gritty and often humorous promos in interviews and to  the eager crowds. I liked  watching and his shoot from hip style of wrestling.

Image result for mankind king of the ring 1998

King of the Ring 1998 Copyright World Wrestling Entertainment 

PASSION AND COMMITMENT

He was a risk taker and his body has taken his toll from many chairs shots, insane bumps and falls (notably the 1998 Hell in a Cell match) which he opened up about in the recent WWE documentary about his in-ring career but is was for the fans and he always wanted to give a his all for them. He had a short career in the WWF/E but a highly memorable and progressive one (Wrestling in other promotions WCW, SMW NJPW and ECW)  with unforgettable matches and rivalries with The Undertaker, Stone Cold Steve Austin, The Rock . His story and progression is just as interesting as the things I have highlighted above his autobiography  with his rags to riches rise to the big time slowly going up the ranks, his future wife and his love for all things Christmas. 🙂

GIVING SOMETHING BACK 

He also seems a conscientious and caring with not an ego to boot, who is warm friendly and approachable to fans and other professionals and likes giving his time to charities and organisations. He is an successful writer and author who shows great introspection and detail for the business he has worked in for many years.

Paul Isaacs 2016

 

 


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Living Through The Haze: 2nd Edition

living-through-the-haze-2nd-edition-paperback-image

When I wrote Living Through Haze in 2012 it was a journey of finding out why I ticked the way I did and what that meant to me it was year in the making and I thankful for it being published to help other son the spectrum and professionals.

I was also glad that I got a foreword by Dr. Michael Layton the psychiatrist who diagnosed me in 2010 with keen introspection he is in many ways the opening of the book a precursor to the journey.

Now in 2016 I feel I have gained a lot of new worldly experiences and wanted to update part of my book which I felt needed to be. With the kind help of Tracy Kilner who is on the autism spectrum she assisted in the editing process with multicaulis attention to grammar, punctuation and  sentence formation.

Image result for Dr, Manuel Casanova

The next was an Afterword by Dr. Manuel Casanova who reviewed the 1st Edition of my book  he clearly illustrates what can learned from a person’s experiences and how that can be a foundation for the future, he also in no holds barred fashion clearly demonstrates the emotional  and mental health difficulties that have happened due to circumstances difficulties during my life.

Image result for James Billett Irlen

The next person is James Billett he diagnosed me in 2012 with visual perceptual disorders and gives a formal introduction to the book using statistics and reflecting on what can be learned from the reading this book.

Other elements included additional chapters and the expansion of the “autism fruit salad” section of my book.

Image result for donna williams

The final person who I would like thank in the process of this book is Donna Williams (Polly Samuel) as you know I have written many blogs, articles and presentations in conjunction with her extensive work in the field of autism. I would not know anything about he mechanics of my autism with her kindly help during the early 2010s. I would not be able to speaker in such away about my autism or autism in general without help. I value her professional input, caring nature and friendship.

My family and friends have always been there during times of need and I value and cherish their company and being the rocks that they are.

LIVING THROUGH THE HAZE 2ND EDITION PAPERBACK 

LIVING THROUGH THE HAZE 2nd E-BOOK 

Paul Isaacs 2016


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Bucks Autism Conference Video 2015

Note – These are from personal and obervational perspectives

Sensory Issues in the context of Autism Bucks Autism Conference

This video is about covers these topics

 

Paul Isaacs 2015

 

 

 


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Autism & What About Humanity? And Connectivity?

Family Christmas Early 90s

Dad, Gramp & Me Just “Being”

Autism it just “is” when I go out in the world the biggest thing for me is to be apart of humanity, people, beings – so when I go down the street what do you “see” and what do.

I “see” – “Autism” is a name for a clustering of pre-existing conditions which I have which for me are (PERCEPTUAL, LANGUAGE EXPRESSION, AUDITORY, LANGUAGE RECEPTION, BRAIN INJURY, MOVEMENT, COGNITION) this is PERSONAL to me but they affect how I process things/understand things – they do not define my TOTALITY nor are they “ME” I am artistic, idiosyncratic, emotive, emotional, creative, solitary, serious, funny, silly etc those things are what is called shared things with other people (regardless of any disability or not).

Autism is something I am neither proud or nor ashamed of it just “is” I was born a person so I would rather people see me as a person (as everyone else should be) not to be swept up by stereotypes, or militancy or “them” and “us” perceptions, but be seen as person. I am not a an “object” to be observed nor am I a “genius” to be revered – so if we look at being balanced about things then we open up more doors then close them. I am no “better” nor “worse”. We (as human beings) are all equal. 

Paul Isaacs 2015


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Up and Onwards – Finding Balance

THANK YOU

Thank you for all your comments and shares of my poems. I have decided not to over-invest in the autism “culture” or politics anymore.

I will STILL continue to blog, present speeches, present training and advocate about autism BUT in balanced & neutral manner (in terms of NOT over-investing content wise, politics and “culture” wise and invest in personal time and so forth) this means that I will mentally be in balanced place. I am human being and to all of you I say to parents and people on spectrum (The Whole Spectrum) you are people fiMe Toddlerrst. 🙂

I am a writer, poet and an artist I say those are things worthy of pursuing. 🙂

I have stated in my opinions and listened to others that is great . My view still is we are all human and can learn from each other and in the context of autism that still applies no one person is the same, no one person can speak for all, but one can talk about their reality and if it helps someone great and if it doesn’t? Well that’s great too we learn from others not just ourselves. 🙂

Paul Isaacs 2015


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Peyton Goddard – Advocate, Speaker & Author On The Autism Spectrum

Peyton GoddardOVERVIEW

“Understaters utter I’m no one. I’m broken, moldy bread, throwaway trash, great leper. Now I know I’m a voice of never-heard voices. Nothings need to be heard.” – Peyton Goddard

What  amazing and emotive words from Peyton Goddard who have overcame the odds and assumptions put on her, I admire her positivity and drive for empowering others on the autism spectrum and seeing them as worthy capable people  – she uses Facilitated Communication to communicate and has written a book entitled – “i am intelligent” what an amazing person who is breaking the walls of stereotyping on the autism spectrum. 🙂

What an amazing lady. 🙂

PEYTON’S WEBSITE

PEYTON’S BOOK 

PEYTON’S WRITINGS

PEYTON’S BLOG

Peyton and Darlene Typing FC

Paul Isaacs 2014


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Rudy Simone – Singer, Songwriter, Composer & Author on The Autism Spectrum

Rudy Singing – Copyright Rudy Simone 2014

 

OVERVIEW

Music & Albums

Rudy Simone is a very talented lady on the spectrum has is an author, singer, songwriter and autism speaker and advocate. I have have her first album “Gothic Blues”its  haunting,  beautiful, moving and  dreamlike and amazing. She is currently has a 2nd Album in the works which is going to equally amazing I think.

BUY ALBUM AT AMAZON.COM

BUY ALBUM AT AMAZON.CO.UK

BOOKS & AUTISM WORK 

Rudy has Written 5 Books and has empowered others on the spectrum by delivering inspiring, productive and thought provoking  keynote speeches in the USA and UK her books have won many awards and have been translated into multiple languages

  • 22 Things a Woman Must Know: If She Loves a Man With Asperger’s Syndrome
  • Aspergirls: Empowering Females with Asperger Syndrome
  • Asperger’s on the Job: Must-have Advice for People with Asperger’s or High Functioning Autism, and their Employers, Educators, and Advocates 
  • 22 Things a Woman with Asperger’s Syndrome Wants Her Partner to Know
  • Orsath

BUY BOOKS AT AMAZON.COM

BUY BOOKS AT AMAZON.CO.UK

RUDY’S OFFICIAL WEBSITE

Paul Isaacs 2014