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Autism from the inside


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Book Review How to Best Help an Autism Mum By Sharon King

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BOOK REVIEW

Sharon brings to the life a world in which people need to know about and the confines of subjection opened up deeper and emotion as a well placed flower, gathering water and sun in equal measure. Sometimes people do not realise the awareness and complexity of the flower and sundered people look back tracking the enlightenment and darkness as forms of reflectivity and an eternal promise of and finding of happiness and stability. Through expereince one does grow and Sharon presents her own beautiful journey of grownth to the eager reader.

Sharon conveys deep emotional introspection and wit in equal measure and she takes us on a journey that is like dark chocolate mixed with sugar bitter sweet and to her own admission it is so as she explains that with glorious and saddening anecdotes, personal examples and gentle direction to aid, advise not only the autism mum but the friends and family around her.

She talks of her feelings of her three children being all diagnosed on the autism spectrum, her husband, family and friends with a whole family dynamic in tow opening up a social context to which autism should and has to be put in. How else would one learn of differing forests and pastures not trod? Unless the delving experience hasn’t been shared to others? Sharon’s wit, desire, vitality, vulnerability, realism and clear devotion to her family burst forth from page to page.

I highly recommend this book to people on the spectrum parents, siblings and professional to let lose parental, practical, emotional and empowering grasp on the realities that are faced.

Paul Isaacs 2017

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Autism & Asperger’s Syndrome and “Doing vs. Being”

When we some people look at Asperger’s Syndrome and Autism it can be used interchangeably as the “same thing” but a “different presentation” between the two. If we look a little (or a lot) deeper you can actually find that the differences lie in brain hemisphere dominance and neglect and all that comes with it.

Autistic’

Reliant on the mapping of pattern/theme/feel known as ’Sensing’, with intermittent use
of interpretative processing at the level of the literal
Mono tracked processing with moderate to severe information processing delay.
Indirectly Confrontational, self in relation to self

The struggle here is the use of switching between “being” and “doing” states this means that the person is going from a “sensing” state to an interpretive state.

Asperger’s’

Interpretative processing at the level of the literal intermittent processing
beyong the literal to the ’significant’,
Generally Mono tracked processing with mild information processing delay

Those with Exposure Anxiety are indirectly-confrontational and self in relation to
self. Others are able to manage directly confrontational other-initiated social
interaction but generally lack a simultaneous sense of self and other

The struggle here is the opposite the use switching between “doing” and “being” this means that although the person gets a level of “significance”  they may get “stuck” in a state of over thinking.

Exposure Anxiety is one of the three faces of “Autism”
Notes from a presentation by Donna Williams
At Flinders University, Friday Jan 16th 2004

Autism Doesn’t Run On”One” System

There is not one “system” in autism and that is part of the larger issue, by promoting tired stereotypes and linear 2D presentations of “collective autism” in which the person is assumed to think, act, react and behave in the same manner is rather passe and potentaily dangerous.

Looking deeper, being objective and opened minded to the varying presentations that both “Autism” and “Asperger” fruit salads supply as an adjective and a description can lead down to meaningful roads of empowerment.

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Paul Isaacs 2017


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Autism and Asperger’s Different Trajectories and Different Presentations?

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Today I was doing autism training and in the team was lovely and inquisitive man with Asperger’s Syndrome as the session went on he shared some of his experiences from not picking up verbal cues, being literal and having sensory integration disorder as well as issues with emotional regulation and possible alexithymia.

It amazes me still that people think that “Autism” and “Asperger’s Syndrome” are still considered to some to be the “same thing” when is clear that even if on the surface some of the issues may be similar many of underlying components are very different. If I use both the gentlemen in question and myself as examples so here goes.

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  • The gentleman seemed to display a level of Social Emotional Agnosia which meant he struggles with non-verbal cues, tone of voice and facial expression he acknowledged that he use past experiences to build up a format of how to understand someone
  • He didn’t have Prosopagnosia (30% of people with social emotional agnosia do so)
  • He was literal in processing of verbal language and seemed to have less impaired visual-verbal processing
  • Possible Alexithymia which is “knowingness of your own emotional states”
  • Seemed to mentalise in a more logical, literal and pragmatic manner which suggests the use of the “left brain” person.

With Myself

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  • I have a mixture of Simultagnosia (Object Blindness) and Semantic Agnosia (Meaning Blindness) which means my visual field is fragmented, distorted and incoming visual information does not have any meaning, context or reasoning
  • I have Prosopagnosia (Faceblindness) as an extending of the already existing issues around visual perception meaning I “recognise people” primarily by patterns of movement and voice
  • I have a level of Receptive and Expressive Aphasia (Meaning Deafness) which even in its current residual form means I “lose” the ability to keep up with interpretive verbal information and struggle with visual-verbal processing
  • I have less literal, logical and pragmatic style of thinking or organised thoughts  I am very much a “right brain” person.

 

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I was asked what I thought the main different feature was between Autism and Asperger’s. I think you’ll maybe find in reading through the site on brain hemisphere specialisation that there are many Aspies who may be better at left brain stuff and many Auties who may be more right brain but not nearly recognised for the abilities they do have as much as they are recognised for the left-brain abilities they don’t have. Whilst most people have a balance of both abilities, being extremely one side or the other clearly means the abilities of that other side are far less practiced. Processing incoming information in a non-Autie manner usually involves using a good balance of the two. So feel free to try the test yourself.

Donna Williams

Related image

 

Different Trajectories 

Maybe its is because I spent large part of my infanthood exploring through my senses and/or through patterning, theming and feeling struggling to get a sense of what “interpretive information” is and what it means? To be around such information and how to connect all the dots within in my mind. However I appreciated and acknowledged the validity of it in my previous blog post.

I flourish in areas of typing, writing poetry and creativity I love wordplay, sounds,  pitches and the seemingly infinite kaleidoscope colours, shapes, textures and shines they “talk to me” as much as next person.

Things Foundly Remembered

I saw your face with my hands

A voice a distant echo but foundly acknowledged

The smell of the wise tree in the garden the leaves did dance

A new place everywhere to be eagerly explored upwards and onwards

Flomping along the globblyness unstuck and unshackled my hands are free

Looking at the gloaming and silvering shape what plotunes and envelopes my soul

I thank you old friends you are me and I am likewise swashing around in the ink clouds

 

Paul Isaacs 2017

 


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Future Diagnosis’ – A Further look Autism and Asperger “Fruit Salads” & The Inner Mechanics

The Changing Landscape of Autism Diagnosis

Looking how the scope of how the autism diagnosis has changed over the decades here is an overview

  • 1940s and 1950s – Autism was considered a form of attachment disorder
  • 1960s – Autism was considered a form of “childhood psychosis”
  • 1970s and 1980s – Autism was considered a form of mental retardation
  • 1990s – Asperger’s syndrome was added as a diagnostic criteria
  • 2000s to now – Autism and the impact of sensory integration issues

The truth is autism is has different trajectories and components it is best to look at autism as 3 dimensional a stacking of pre-existing syndromes/conditions/disorders that are person-specific.

So let’s look at the breakdown between “Autism” and “Aspergers” Fruit Salad looking at through the lenses of Donna Williams’ analogy.

 

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Autism “Fruit Salad”

 

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Aspergers “Fruit Salad”

 

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Conclusion

On the surface “Autism” and “Aspergers” may appear the “same” but digging deeper and looking at the profile differences and what makes up the differing profiles surely means that the wants, needs and interventions will be specific to the person in question and what they need will not be the same. Autism is not a generic “one size fits all” condition it is made up of many different elements specific to the person.

It is my wish that in the future when some is diagnosed with autism they will look a the full package this would include potentially different professionals being involved if differing diagnosis are willing to be made such as –

  • Speech and Language Therapists
  • Neurology Specialists
  • Dietary Specialists
  • Genetic Counselling
  • Gut, Immune and Metabolic Specialists
  • Mental Health Psychologists & Psychiatrists
  • & Other Empowering Interventions

 

Paul Isaacs 2017


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Thomley Families A Place To Thrive

 

Thomley

 

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It has been a year since Warren CEO and Joe Service Manager came to me with regards to being one of the many patrons of Thomley Families.

Moving Forward

I continue to enjoy the ventures, commitment that is made to improving the lives of people with disabilities at Thomley with the new construction of new Pavilion, expansion of the site, a dedicated staff team, fundraising ventures and community projects that set out not only to help the young people that attend Thomley but the family and friends also.

Empowerment

I have always been made to feel welcome and apart of the team this a firm reflection of the ethos that is instilled into the very fabric and ethos of Thomley Families as a place for people to be empowered, supported and to be connected. Many thanks

Paul Isaacs 2017


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Diagnosis – Looking At What “Autism Is” Is That The Future?

I have been is the autism “world” as a speaker, trainer and consultant for well over seven years, I do not pretend to know all the answers nor I do project or promote that I have them all I can only speak from first hand experience of myself and the others that have been involved in professional capacity.

A 3D Diagnosis For The Future?

I what would like to offer a foundation of empowerment not because I know best but to give people the opportunity to find out about their “autism” what is made up of and the “mechanics” that go with it.

I have wrote and documented my autism the fact that is made of being brain injured at birth, speech and language delays, sensory agnosias, aphasia, apraxia the fact that I have dealt with mood, impulsive and anxiety disorders also.

Information processing such as

  • Sensory Agnosias (being Faceblind, Object Blind and/or Meaning Blind)
  • Attention deficits (ADD, ADHD)
  • Learning Disabilities
  • Apraxias (Oral Apraxia, Fine and Gross Motor Apraxia and Dyspraxia)
  • Aphasia (Receptive, Expressive and Mixed)
  • Gut, Immune and Metabolic Disorders
  • Tissue Connectivity Disorders
  • Seizure Disorders
  • Mild Brain Injury (Affecting Developmental Pathways and Trajectories)
  • Sleep Disorders

Identity 

  • Development (Gender, Sexuality, Self Perception, Environment, Viewing yourself and as a “child”, “teenager” or “adult” regardless of chronological age)
  • Adjustment (Family and.or Personal Environment)
  • Disorder Extremes (Personality Types/Traits that are not balanced causing problems with overall functioning)

Psychiatric Co-Morbids

  • Mood Disorders (Emotional Dysregulation
  • Anxiety Disorders (OCD, Social Anxiety, Generalised Anxiety)
  • Psychosis
  • Impulse Control
  • Attachment Disorder
  • Dissociative Disorders

Enviroment 

  • Dietary/Nutrition Disabilities
  • Morning the Child
  • Isolation/Alienation
  • Learned Helplessness (Dependency Personality Disorder/Co-dependency)
  • Presuming  Incompetence
  • “Cat” People vs. “Dog” People (Exposure Anxiety. PDA, ODD RAD)
  • Eating Toothpaste (Gut Disorder and Fluoride Toxicity)

Human Variants of Learning

  • Visual
  • Verbal
  • Logical
  • Physical
  • Aural
  • Solitary
  • Social
  • Mixed

The fact that being borderline made me emotionally unstable, struggled with boundaries and also being schizotypal made me odd, aloof and detached from people and at times society. These “elements” are all about of my “mix” and words not only for these “pieces” empower not only the person in question but the services they come into contact with also family and friends.

 

Fruit Salad 2017

 

Looking Deeper, Looking Forward, Education & Empowerment

I went through my autism “fruit salad” at an event recently and asked if the diagnosis had pointed out the specific pieces how would they have felt? Also would this model benefit them I came to the conclusion yes because understanding  that the word “autism” isn’t  one thing but understanding the pieces of their children’s autism was felt to be very important, helpful, empowering and overall was a beneficiary to the services that they would come in contact with. Giving them not just the word “autism” but what it meant for them specifically.

My Autism Fruit Salad 1 Updated 2017

Autism Fruit Salad 2 2017

Autism Fruit Salad 3 2017

Autism as “Fruit Salad” Video by Donna Williams 

http://www.interactingwithautism.com/section/living/donna

 

Conclusion

“Autism” is not “one thing” it is specific to each person also people do not have an “autistic personality” exclusively although personality types like solitary, idiosyncratic and conscientious would look more “autistic” but are smaller elements in the overall mix.

I do not believe that a person’s autism is everything about them because human beings are made up much  more than one element/label/word.

You can get  “non-autistic” personality types the people that challenge the stereotypes who could be equally adventurous and mercurial in their ways. For 2017 lets look at this from a broader perspective and empower people with knowledge that is worthy of making a difference.

I am not negative about autism but I am realistic and grounded about what the word means. By finding out the mechanics of what is going that is a positive approach to leading a more fuller, healthier more balanced life.

Paul Isaacs 2017


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Autism -The Three Stages of Empowerment

Autism “Fruit Salads”(© Donna Williams 1995/2005/2014)

This is bottom to top analogy which implements all aspects of what could be in a person’s “autism fruit salad” to start off with the foundation is to understand the mechanics of what is within a person’s “autisms” (rather than autism). By looking at this we can separate it into these aspects.

  • Communication profile
  • Social-emotional profile
  • Emotional processing profile
  • Sensory Integration profile
  • Sensory Perceptual profile
  • Receptive Language profile
  • Expressive Language profile
  • Motor-coordination profile
  • Dietary profile
  • Auto-immune disorders profile
  • Learning styles profile
  • Personality types profile
  • Identity profile
  • Co-conditions profile

Interventions

These will be tailored to the specific needs of person’s profile/profiles looking holistically as well as professional for empowerment, guidance, social support, emotional support and/or any aspect of the person “autisms” that is within the mix. For example you could have someone who has exposure anxiety and dislikes direct confrontation and prefers an indirectly confrontational approach, is profoundly meaning deaf and aphasic. Think how you would build up that person’s profile and empower them?

An example

  • Gestural language
  • Aiding Mentalising by building up meaning and association
  • Being a follower not a leader or an expectant doer
  • Leave them wanting more and giving positive affirmations

Solutions

They will come in many forms as they marriage of each step relies on the one previous with regards to the “final step” this will be looking at what is working, aiding and empowering the person, their families, guardians etc. This could be put in an report or functional document for educational and professional services to have or it could be used as an information pack for friends and family the choice is yours.

Remember autism is not ONE THING it is a CLUSTERING of pre-existing conditions within one PERSON and that is the thing to realise that one person’s reality does not mean that is representational of all because that would mean a lot voices and realities would be left unheard it is time to change the landscape and starts with being open minded.

Paul Isaacs 2017