Paul Isaacs' Blog

Autism from the inside

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Autism, Shy Bladder Syndrome and Body Agnosias

Image result for shy bladder


Parcopresis, also termed psychogenic fecal retention, is the inability to defecate without a certain level of privacy. The level of privacy involved varies from sufferer to sufferer. The condition has also been termed shy bowel. This is to be distinguished from the embarrassment that many people experience with defecation in that it produces a physical inability, albeit of psychological origin.


Environmental Origins and Processing Event

When I was eight years old and was going to the toilet at primary school in came two students were playing out side the toilets and preceded to kick the door in unison until it forced opened they looked upon me a laughed it took me a long to the process the event due to visual perceptual and language processing disorders.

Reactionary PTSD

This has has a dramatic impact albeit subconsciously on going to the toilet in public forums I cannot defecate until I am in places of familiarity leaving a level of bodily tension.

Body Disconnection & Delayed Perception/Processing

Visual analysis of faces and nonfacial body stimuli brings about neural activity in different cortical areas. Moreover, processing body form and body action relies on distinct neural substrates. Although brain lesion studies show specific face processing deficits, neuropsychological evidence for defective recognition of nonfacial body parts is lacking. By combining psychophysics studies with lesion-mapping techniques, we found that lesions of ventromedial, occipitotemporal areas induce face and body recognition deficits while lesions involving extrastriate body area seem causatively associated with impaired recognition of body but not of face and object stimuli. We also found that body form and body action recognition deficits can be double dissociated and are causatively associated with lesions to extrastriate body area and ventral premotor cortex, respectively. Our study reports two category-specific visual deficits, called body form and body action agnosia, and highlights their neural underpinnings.

Dipartimento di Psicologia e Antropologia Culturale, Università di Verona, Verona, Ital

I have had a level of body agnosia and pain agnosia in my life which have caused, social emotional disconnect, alexithymia, language processing disorder and so forth. This can also cause problems with understanding and perceiving “pain”, “discomfort” and my case “being full”. Staying over a friends house made me realise the problems that still resonate eating food and then forcing your bowels not to move then caused an unfamiliar “sensation” which I was able to then realise was “nausea” in the pub.

The second the delayed response was in the home when my body moving without understanding why or where climbing up the stairs I projected vomit but had no understanding of what, why or how. A wave of exposure anxiety came over me I had to stop myself from self-harming wanting to hit my head and arms. I said sorry repeatedly for the mess which was made however they were very understanding and caring.


I luckily have a sense of humour and hold these things with a level of comedic reality and I was lucky to have like minded people in my company. 😉

Paul Isaacs 2017




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Tinted Lenses, Visual Perceptual Disorders and Bridging The Gap Between “Non-Visual and Visual Worlds”

Note – This is from a personal perspective

Visual Agnosia Image 2017 


Some people on the autism spectrum have problems with filtering visual information which in turn distorts perception and what one is seeing, interpretation what someone takes out of what is being seen in terms of context and association and mentalisation that ability to internalise and integrate the visual memory in the form of a coherent, connected and retrievable memory.


If people live in a world of being object blind and meaning blind and ultimately context blind this can have an impact on socialising, bounding, learning and having the ability to retrieve multiple forms of incoming visual information at once. Tints work for people in different ways (if they are needed at all) – for some its sensory integration disorder, for some it is a level of dyspraxia, information overload and coordination, for some it is building up a visual context because of simultagnosia and/or semantic agnosia, for some its processing faces, for some its recognising and building upon and reading social cues, for some it is getting a sense of “self and other”, for some it is visual learning difficulties such as dyslexia, dyscalculia and being able to read and write with coherence, for some its aphasia and/or verbal agnosia and gaining a better grasp of language.

Donna Williams 2011


70% of incoming information is visual and we take that information in as light waves – essentially as color. Tinted lenses are filters. They filter out different light waves. This reduces the level of incoming information which leaves a person more processing time. This can have different effects in different people. For some it may just help them relax more or feel more comfortable looking at faces or making eye contact, help them handle places with bright lights or being outside. For some it will allow them to read comfortably and with meaning or improve depth perception. For others it may help them better process language and ultimately speak more fluently. For some it may help them see things as a whole and recognise objects, faces, places, and begin to read context and social cues or have a better processing of a simultaneous sense of self and other.

Donna Williams 

Tinted lenses have helped me glue together a world which was largely bits and pieces that seemed shattered and unendurable, people shatter into fragments, objects floating with no clear base, foreground and background interchangeable, familiar voices with no face that seemed to match the warmth of familiarity. My language was also impacted to a certain degree with no internalisation of the visuals around me. Now I have tints they have made able to see faces with a level of coherence, looking at faces now I see a “whole” rather than “pieces” I am able to focus on their movements, body language and words, I can walk down the street and look at faces, places and people with a level with a level of coherence, I am able to better gauge “self and other” in conversations. I still have visual perceptual disorders however the tints have opened up and bridged my “non-visual to visual” world greatly.

Paul Isaacs 

Paul Isaacs 2017

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Autism, Semantic Agnosia & “The Eyes That Don’t See”


The Eyes Are Deceptive?

Think about it a person who eye’s are organically “normal” and the ability “see” from an psychical perspective is there but the brain is not able to process visual information that is coherent and meaningful.

Sensory Explorer 2

Reality vs. Context? The Hidden Link

As a child association was created through my body this could be through objects and or people. Touch gave me a reality and context that my eyes could not the contours of what touched beamed into my inner world as a way of saying “hello” to the outside from inside and secret bridge that was being made every time.

Quinn and I

Movement, Mapping and Tactile Association

I was eager to be bare foot and “mapped” out my surroundings, movements, twists and turns around the “dead space” that enveloped in was both my enemy and my friend all at once. Touching, licking, sniffing, tapping and rubbing gave “life” to everything around me on an unconscious level of was working out world.

• This is the most studied type: easier to detect.
• Stimuli misrecognized visually, can be recognized:
– through tactile manipulation
– from verbal description
– based on its characteristic sound or noise
early visual processing
image viewer-dependent
object-centered (3D)
(2 and 1/2 D)
episodic structural description
structural description system
semantic system
output phonological lexicon
object naming
AGNOSIAS & SEMANTIC DEFICITS Raffaella Ida Rumiati, Cognitive Neuroscience Sector Scuola Internazionale Superiore di Studi Avanzati Trieste, Italy
A Blindism

One could call this a “blindism” a state in which visual perception is not giving the associative signals and/or visual association of what an object “is” regardless of where you find it, what angle you see and so forth. This could lead problems with context and a distortion of memory.


As an adult I still rely more on my movements that what I am “seeing” this means that can still get lost in my surroundings but with my tinted lenses this is able to keep my conscious mind on track with meaning.

Paul Isaacs 2017




Diagnosis – Looking At What “Autism Is” Is That The Future?

I have been is the autism “world” as a speaker, trainer and consultant for well over seven years, I do not pretend to know all the answers nor I do project or promote that I have them all I can only speak from first hand experience of myself and the others that have been involved in professional capacity.

A 3D Diagnosis For The Future?

I what would like to offer a foundation of empowerment not because I know best but to give people the opportunity to find out about their “autism” what is made up of and the “mechanics” that go with it.

I have wrote and documented my autism the fact that is made of being brain injured at birth, speech and language delays, sensory agnosias, aphasia, apraxia the fact that I have dealt with mood, impulsive and anxiety disorders also.

Information processing such as

  • Sensory Agnosias (being Faceblind, Object Blind and/or Meaning Blind)
  • Attention deficits (ADD, ADHD)
  • Learning Disabilities
  • Apraxias (Oral Apraxia, Fine and Gross Motor Apraxia and Dyspraxia)
  • Aphasia (Receptive, Expressive and Mixed)
  • Gut, Immune and Metabolic Disorders
  • Tissue Connectivity Disorders
  • Seizure Disorders
  • Mild Brain Injury (Affecting Developmental Pathways and Trajectories)
  • Sleep Disorders


  • Development (Gender, Sexuality, Self Perception, Environment, Viewing yourself and as a “child”, “teenager” or “adult” regardless of chronological age)
  • Adjustment (Family and.or Personal Environment)
  • Disorder Extremes (Personality Types/Traits that are not balanced causing problems with overall functioning)

Psychiatric Co-Morbids

  • Mood Disorders (Emotional Dysregulation
  • Anxiety Disorders (OCD, Social Anxiety, Generalised Anxiety)
  • Psychosis
  • Impulse Control
  • Attachment Disorder
  • Dissociative Disorders


  • Dietary/Nutrition Disabilities
  • Morning the Child
  • Isolation/Alienation
  • Learned Helplessness (Dependency Personality Disorder/Co-dependency)
  • Presuming  Incompetence
  • “Cat” People vs. “Dog” People (Exposure Anxiety. PDA, ODD RAD)
  • Eating Toothpaste (Gut Disorder and Fluoride Toxicity)

Human Variants of Learning

  • Visual
  • Verbal
  • Logical
  • Physical
  • Aural
  • Solitary
  • Social
  • Mixed

The fact that being borderline made me emotionally unstable, struggled with boundaries and also being schizotypal made me odd, aloof and detached from people and at times society. These “elements” are all about of my “mix” and words not only for these “pieces” empower not only the person in question but the services they come into contact with also family and friends.


Fruit Salad 2017


Looking Deeper, Looking Forward, Education & Empowerment

I went through my autism “fruit salad” at an event recently and asked if the diagnosis had pointed out the specific pieces how would they have felt? Also would this model benefit them I came to the conclusion yes because understanding  that the word “autism” isn’t  one thing but understanding the pieces of their children’s autism was felt to be very important, helpful, empowering and overall was a beneficiary to the services that they would come in contact with. Giving them not just the word “autism” but what it meant for them specifically.

My Autism Fruit Salad 1 Updated 2017

Autism Fruit Salad 2 2017

Autism Fruit Salad 3 2017

Autism as “Fruit Salad” Video by Donna Williams



“Autism” is not “one thing” it is specific to each person also people do not have an “autistic personality” exclusively although personality types like solitary, idiosyncratic and conscientious would look more “autistic” but are smaller elements in the overall mix.

I do not believe that a person’s autism is everything about them because human beings are made up much  more than one element/label/word.

You can get  “non-autistic” personality types the people that challenge the stereotypes who could be equally adventurous and mercurial in their ways. For 2017 lets look at this from a broader perspective and empower people with knowledge that is worthy of making a difference.

I am not negative about autism but I am realistic and grounded about what the word means. By finding out the mechanics of what is going that is a positive approach to leading a more fuller, healthier more balanced life.

Paul Isaacs 2017


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Sub-Clinical Autism & Having Pieces Of What Can Make Someone “Autistic”


As odd as it may sound people can have “pieces” of what can someone on the autism spectrum. This year I want to an event in Cardiff and spoke towards the end of the speech I asked if people in the audience related so some of the issues around autism presented many put their hands up. These people weren’t on the autism spectrum but the could relate to the some of  “pieces” I had been describing.

DW Fruit Salad Model - most common



This is because “autism” is made of pieces and these pieces differ from person to person that means that different “expressions” and “presentations” will be shown. So if people who are considered “sub-clinical” or as having “traits” what help is there for them?

The question I would say is what do you relate to? How does it present itself? What help is there for those people whose issues maybe considered not important but at the same time have a significant impact in certain areas of functioning.

With this increased awareness could mental health services and other professionals be able to help diagnose people with these issues?


Paul Isaacs Autism Fruit Salad Part 1 2016Paul Isaacs Autism Fruit Salad Part 2 2016Paul Isaacs Autism Fruit Salad Part 3 2016Paul Isaacs Autism Fruit Salad Part 4 2016


Each “piece” of my “autism” has its own reality and function some of them you may well be able to recognise others you may not.  By saying that “autism” is one thing  (and can then only be owned within that group) when people with acquired  brain injury, strokes, cerebral palsy, genetic syndromes can inter relate to these issues presented (and may well have or have not have autism in mix) it really begs the question will the term autism be used in the future?

I spoke to a neurologist some years ago who said in 20 to 30 years the word will not be used and instead the pieces of that person’s profile would be diagnosed instead this would certainly be progression for people with autism and also others who have “pieces” to.

Paul Isaacs 2016



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“Autism” what does it mean?

Note this is froDad and I Dancingm a personal perspective

When I was diagnosed with autism in 2010 one of the first things that I was told is that was still a “person” even if I didn’t the mechanics and/or “pieces” of my autism that nevertheless was a sage piece of advice that has stayed with me on a personal and professional level.

“Autism” is different for each person so here is a breakdown of the “mechanics”

  • Emotional perception (alexithymia) problems with recognising and verbalising emotional states.
  • Visual perception (visual agnosias) problems with perceiving faces, objects, reading words, colour and “sorting out my visual field into a “whole”.
  • Language processing (receptive aphasia) problems with processing and interpreting “meaning” and “significance” from language.
  • Auditory processing (auditory agnosias) problems with organising the origins of sounds.
  • Body perception (body agnosias and hemiplegia) problems with processing and perception on the right side of my body which affects coordination, problems with recognising pain, hunger and thirst.
  • Body and Movement (visuospatial dysgnosia) left-right disorientation.
  • Light Sensitivity (sensory integration disorder and related learning difficulties) problems with light creating distortions as well as dyslexia and dyscalculia.
  • “self” and “other” processing simultaneous information which requires this can be difficult.
  • Mental health and personality disorders.



I have four main personality types which intermingle with each these are human in terms of presentation but will differ form person to person – human beings under stress may develop “disordered” versions of these types affecting social and personal perception, mood management and interpersonal relationships and friendships.

  1. Idiosyncratic
  2. Mercurial
  3. Self-Sacrificing
  4. Serious  



I do not see my whole being as “autism” nor define myself by it. I see it apart of me, in my case the pieces are emotional perception, visual perception, language perception, auditory perception,
body perception, light sensitivity, information processing and learning difficulties
 with associated mood disorders, exposure anxiety, somatisation disorder, dissociation and personality disorders but they are not a total nor finite definition of my being. I can only speak from my perspective and that is all.

I am “Paul” first with the all the positives and negatives that come with it the likes, dislikes, regrets, dreams and the sense of just “being”. I shall never adhere to the “club” there is to much militancy, over-investing and politics. I see myself as apart of the human race – no more, no less, no more worthy, no less worthy just a person like one of the billions of people on the planet everyone has a story to tell don’t they.  😉

Paul Isaacs 2016


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Bucks Autism Conference Video 2015

Note – These are from personal and obervational perspectives

Sensory Issues in the context of Autism Bucks Autism Conference

This video is about covers these topics


Paul Isaacs 2015