Paul Isaacs' Blog

Autism from the inside


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Lenny King – An Autism Journey With & Presuming Competence

Lenny & His Mum Sharon
Lenny & His Mum Sharon

I first met the friendly and welcoming Lenny many years ago during a consultancy session

Lenny King is an endearing, funny and compassionate young man whom is thriving in his teenage years. He has a deep and close relationships to have parents and sister Rosie and has a sense of wonder and interest about the world around him.

Oral Apraxia, Echolalia and Language Processing

Lenny was diagnosed with on the autism spectrum when he was 2 years old, meeting him it is clear that he has oral apraxia and this is to do with speech organs in the mouth (tongue, jaw muscles, lips) not going tandem with what someone is saying. He has echolalia and this is do do with having a language processing disorder and creating one’s own language (patterning, theming and feeling) – with emotional context, phonic relatability and feeling words as opposed to their interpretive use.

Lenny has a great affinity for music and enjoys and eclectic array of songs – this seems have a profound impact on him as his body moves, sways also most in its own synchronistic modulations.

Sensory Perception, Object Blindness (Simultagnosia) & Meaning Blindness (Semantic Agnosia)

Lenny navigation of his external world suggests that he has sensory perceptual challenges if one can imagine for a that your sensory organs work but the feedback or information gets fragmented or distorted in some way – what system would you use? To create connections he is tactile kinesthetic in which he will feel his external world with great intent such as sand, blades of grass etc, When walks into a rooms he goes in around “dead space” and at times looks through and use peripheral vision to free information processing to “see”. This is extends to the way in which Lenny communicates and interacts with people touching their faces could be a way of creating context and association on a personal and emotive level.

Faceblindness, Body Agnosias & Mirrors

Lenny is fascinated by this face in the mirror and he at times brings his face up close and makes very distinct contortions around his mouth, lips and teeth. He seems to pay great inspection to these areas and there could be many reasonings to why this is happening.

Some people can be faceblind to their own face and on a subconscious level building up an external movement based “map” of what certain gestures look like could be one option, the other could be that he sees this person as an existential “friend” or “familiar person”. It took Donna Williams well into her twenties to understand she was looking at “herself” and me until I was sixteen. The final one could be a marriage of the above and be an getting a sense of his own “body as a whole” with the specific sways, body pressure and movement a to great a sense of reality and clarity/association.

Competence and IQ

I remember saying Lenny once not long ago “You are intelligent” to which he quickly replied “Yes!” this suggests to me that although he has complex language processing, sensory perceptual challenges and communication disorders and that his systems are on the plain of sensing much live his sister Daisy – in which he feels, merges with people, places and his surroundings and is able to connection on an emotive/introspective level that must never assume that “intelligence has a look”.

Lenny is intuitive, friendly, personable and highly idiosyncratic and self driven in all areas of his life and it is pleasure to be in his company.

Paul Isaacs 2021


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Autism Bucks Workshop – Autism & Exposure Anxiety

This is the fourth workshop presentation is about autism and Exposure Anxiety – this overlaps with ODD, PDA, Reactive Attachment Disorder and Passive-Aggressive Personality Disorder

Further Information & Reading

Autism & Exposure Anxiety Video By Donna Williams

Autism & Exposure Anxiety Blogs By Paul Isaacs

Paul Isaacs 2021


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Why I Have Chosen Not To Have A Family & Thus Not Have Children?

I feel to have children you have to an emotional mindset that in turn is the ability to look after someone’s physical and emotional well-being.

The responsibility to be their primary care giver for a large portion of their lives is a massive ask.

I do not have the requirements to do this task as I struggle to do some of the most basic things. In and around daily living skills and porting over those skillsets into a parental framework would not be able to happen.

It would be neglectful on my part to also bring another life into this world under the false obligation that is what “adults do”. If you do something do it for connected reasonings.

Thinking you are up to a task and knowing are two very different frames of thought and it’s fine not to be a parent. As it is fine not to have children nor families.

Paul Isaacs 2020


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NAS Lambeth /A2ndVoice Workshop – Autism & Exposure Anxiety

This workshop was about the crossover between Autism and Exposure Anxiety. Presented and Hosted by Venessa Bobb.

Cross overs with Pathological Demand Avoidance, Oppositional Defiant Disorder, Reactive Attachment Disorder & Passive-aggressive Personality Disorder.

Additional Links

Autism & Exposure Anxiety By Donna Williams

PDA & EA Cross Over By Donna Williams

Paul Isaacs Personal Experience of Exposure Anxiety

Paul Isaacs 2020


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Autism Bucks Workshop – Autism As A Fruit Salad

This second workshop is an expansion of autisms using Donna William’s “fruit salad” analogy as the basis. I shall be adding links to expanding on some of the aspects which I spoke about.

Further Reading and Links

Autism & Social Emotional Agnosia

Autism & Alexithymia

Autism & Simultagnosia

Autism & Faceblindness

Autism & Auto-immune Disorders

Autism & Genetic Syndromes

Autism & Dietary Disabilities

Autism & Language Processing Disorders

Autism & Communication Disorders

Autism & Dyspraxia

Autism & Self and Other Integration & System of Sensing

Paul Isaacs 2020


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Doing It Your Way – A Long Road to Autism & Self Care Skills

IMAG1230

Haha love this blog about autism and splinter skills and were one skill set can baffle and be up for contradiction in another.

Bathing, Temperature & No Sense of Time or Body 

It took me until sixteen onwards to understand the concept of bathing as a tool to wash your body in prior to this I would urinate in the bath, smear bubble bath liquid  on the tiles along with shaving foam.

A lot of times bathing the water would be too hot, too deep and would cause me to get light headed. I would sometimes lay in the bath for hours (until the water was cold), get lost dissociate, disconnect and focus on a fixed point and/or using the bath products.

The Art Of Toothbrushing

Tooth brushing I have yet to master, I have bouts of mild gingivitis, and a recent salivary gland infection which has “switched off” my left salivary gland. (I lose the patterns of how to brush my teeth for how long, the amount of pressure etc.) Dentists kindly remind me each time of how to do it.

The Delicacy of Shaving

Shaving my face I find odd too most of the hair density is below my jaw line, as such I am still so disconnected from body (so again losing patterns, strategies, movement and motion.) Leaving me with a blotchy and blood ridden skin at times.

Toilet Trouble 

Toileting is a lot about were my body is in relation to the toilet and pan, knowing the internal reasonings, feelings and sensations that go with it. This is secondary to shy bladder and bowel syndrome.

Mop Maintenance 

Hair brushing is a trial I have long thick curly hair and I have days and moments in which struggle  to obtain and use right brushes and the stratagems to untangle.

Learning, Context & Conclusion 

Context and meaning blindness, the inability to visually mentalise, visual perception, motion perception and body agnosias mean I rely on placement, position and associated contexts.

I suppose I did it my way.😉👍

Paul Isaacs 2020


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Rapists, Molesters & Sexual Abusers

See the source image

 

Manipulation Of Facts & Events

Some people whom commit sexual abuse on other people which includes rape, sadly may project innocence to the point in which they believe their own story and present it to the world.

Molestation and touching without consent is also not only a breach of trust, it’s a selfish, egotistical and narcissistic, it’s putting a person’s needs before another.

“Normalisation” Of Events 

The fallout for the victim could well be forced “normalisation” of the event, through false apologies, gaslighting and manipulation of the facts.

An overall disregard for the emotional impact by the predator will no doubt have an impact on the victim.

Mental Health Conditions Related to Sexual Abuse

Dissociation, PTSD, detachment from sexual organs and an unhealthy distortions in identity, sexuality, gender, intercourse and masturbation will have lingering and serious consequences.

So of course a predators nature should be accounted for, however the catch 22 will be if they are willing to admit to themselves what they have done.

Boundaries Are Needed

I have a personal peeve with people who disrespect other people’s bodies, a body should be touched only when their is a connected agreement between both parties. If there isn’t one must stop, if it continues then that is breaking boundaries, trust and seeing the person as a lust is not true connection.

Paul Isaacs 2020


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Do Things Out Of Connection, Not Forced Obligation

Never do things because you were told they will make you feel eternally happy, do not get married, do not have children, do not pursue a career on that basis.

One must be happy from within first, one must know themselves first, one must do things on the basis of a collective want as opposed to a shoe horned narrative then true connectivity blossoms from the fertile ground of honesty.

That is what makes those pursuits above valid, you do things and likewise don’t do things on connected energy not a disconnected one.

Paul Isaacs 2020


Is Bullying “Normal”?

Here is an interesting observation, many people who bullied me at school and during my time in education I have heard have always said they “observed” the acts never instigated implying overtly they were witness’ not people to take part in the act.

Let’s be frank you did on a daily basis commenting on my appearance.

  1. How I talked
  2. How I walked
  3. My weight
  4. My lack of friends
  5. My lack of intelligence
  6. My emotions
  7. My parents, my grandparents
  8. My social status.

This would happen at class, during breaks/lunchtime, waiting for transport home/during transport and at the place were I live from the ages of 5 to 16 years old.

This also included parents and teachers.

However just because I have made conscious and dedicated effort to see and take the good out of your actions, to not let them define me, to not be bitter or hold on to reductive actions of revenge or futile bitterness of the past that doesn’t not mean your acts were correct.

I can be objective and say it was your homelife, your sense of unfulfilment socially and/or academically, clashing of personality, the chemical imbalances that come with teenagehood, the peer pressure etc.

To which is true, however in terms of projection and hurt you flung on me was vile, cruel and cowardly you made me feel worthless and at multiple times I wanted to not live.

Bullying isn’t a “normal” part of growing up, it isn’t a right of passage, it isn’t a phase and the word itself trivialises the actions which is, psychological and/or physical abuse and projected trauma onto another human being.

I thank you for bestowing these actions on me because you gave me a framework how not to treat people, I understand a lot of you have families and children.

I hope you have matured and changed as you have grown and I sincerely wish your young one’s do not go through what I went through.

I refuse to be a victim of the past, for I do not want it to live in my future.

Paul Isaacs 2020


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A Tall Tail Of Somotisation Disorder

The Beginning

I started getting symptoms of this in late infancy around 11 years old this was related to mitigating factors both to do with neurological processing such as aphasia, alexithymia and visual agnosias, environmental factors bullying and emotional triggering.

Psycho-Somatic Trauma Based Response to Negative Environment Experiences?

I would get sensations of my body “melting”, headaches, stomachaches, tingling in limbs, face and lips and by the time secondary school came and chronic bullying persisted in the first two weeks the pain would start again as stated above.

In particular, the pattern of shrinking was observed in two parts of the brain called the putamen and the caudate, a change oddly reminiscent of adults who have experienced early life stress, such as childhood maltreatment.

These sensations would cause me to have intestinal discomfort ranging from chronic constipation to nausea.

I would go to the school reception during lunch break sometimes on a almost daily basis saying either about a stomachache and/or headache. I would sit in floods of tears wanting to go home this went on for approximately 18 months as my nervous system was also being pushed as panic attacks usually followed before and/or after an episode of pain.

This meant that obsessive-compulsive disorder manifested in persistent hand-washing, counting, checking and reassurance around illness and disease began which last from the ages of 12 to 15.

Psychological Pain Presenting as Physical Pain?

What is Somatic Symptom Disorder

People with somatic symptom disorder experience real physical symptoms — they are not imagined. These symptoms can vary in intensity from mild to severe and often include breathlessness, exhaustion, or weakness, though pain is the most commonly reported symptom. Doctors may be unable to pinpoint a medical reason, or there may be a clear and diagnosable medical cause. However, people with somatic symptom disorder are likely to experience the symptoms of their illness more severely than is common.

 

Fast forward to this year and very recently I woke up in tremendous pain it started with an “itching” sensation in my lower arms and legs, then they felt like they were on fire, I got up and moved my legs persistently for 40 mins trying to “release” the sensation

I went to the GP this week who confirmed somatisation disorder secondary to an anxiety disorder, PTSD, depression and hypercondriasis which makes sense.

Pain would be triggered by talking about illness in any context,so for example people on the bus sat behind me and in the GP waiting room for example the described pain would migrate and move from my lower back, to my upper back from upper limbs to my lower limbs my body would begin to shake and adrenaline fired through my body, my stomach muscles would cramp up and it would gurgle.

I went for a walk two nights ago and my feet went “numb” this caused great distress and panic as I walked home however bursting into tears was a great release for me.

Conclusion

Now most of pain has subsided but what does psycho-somatic pain represent? For me I feel it is unprocessed emotions, recent environmental distress and need for my body and brain to calm down.

Paul Isaacs 2019