Paul Isaacs' Blog

Autism from the inside


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I Am Glad I Got Bullied And Here’s Why

Me Holding Something 1

Note this is from a personal perspective 

I was speaking with two friends this evening and the subject of school-life came up it was an interesting exercise in subjectivity, objectivity and personal experiences shaping people’s lives but not defining them as we all move on.

My friend respectfully and realistically pointed out the fact that when students are at school (regardless of disability or otherwise) they are on their own unique journeys and difficulties can arise from all sorts of areas which have an impact of self-esteem, confidence and the ability to thrive on a functional level.

Enviroment vs. Social-Emotional Development

I was diagnosed late after my mainstream education had finished the best foundation for “social” I was given was through my tenure in education. It gave me the ability to cope with stressful situations, integrate and overall gave me the invaluable skills of living a “human life” rather than a “autistic life”. I was around people and my disability was not being flag waved to the point where I lost myself and was only defined by one single factor.

Is Bullying/Psychopathy Normal in Educational Settings?

I was surrounded by people who used interpretive speech. I still find this mode of speaking difficult and it is something I have aqquired a long the way in the context of school yes that was true. I cannot deny the verbal and at times physical abuse I encountered at school by other students on a daily basis as ‘normal‘ as their conscious psychothapy and narcissism was allowed run free regardless of the emotional damage that ensued.

Yes it is subjective and many of the students that bullied were emotionally insucure however being so doesn’t give you a free ticket to do it to others, however they did. I see this as a learning curve and lessons in life and I am thankful to learn from the shit and make sculptures out of it. 🙂

They may have changed which is great, found families, bared children etc I wish them well on their journeys.

Human Journeys

We (as people) are all on our journeys and bullying and victimisation was part of my experience however many others have been in the similar situations and I refuse to define my present situation by the past experiences. I am indifferent and objective about my past it happened and I am done with the “what could have beens” and “what ifs” I am thankful for my overall experience I would not have had it any other way.

I consider my reality no better or worse than any others, I don’t consider myself “special”, “better” and/or “superior” to anyone else. Affirmation has to be contextual and real not dished out like candy with hollow self-praise. There are too many people in the western world who just want their cake and to eat it all if only it was to shared out a bit more so other people’s realities could be shared and equally acknowledged with the sub-test of mine is better/worse than yours.

Tides of Glory 

I strayed and came about

Eager to scream and longing to shout

I have travelled a life which has been painted

I refuse to see my deepest memories as tainted

Come up and down and my thoughts fleeting around

I pick my body and ground my mind with the comfort of sound

A cloud full memories embraced and feetful of walking to be chased

A human being am I no better nor worse living a madless time at even pace

Paul Isaacs 2017

 

 

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Managing Grief and Loss with Visual Perceptual Disorders

Note this is from a personal perspective

Grief is a normal state to be in when you lose someone you love and have connected to and I know that this feeling or more accurately abundance of differing feelings that accompany it are part of the process.

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Visual Agnosias – Deficits In Memory Perception & Visual Association? 

I have no pictures of my Gramp none that “spring to mind” I cannot “visualise” or have pictures in my mind my “meta-reality” (a person’s inner world/consciousness)  is not made of pictures or movies as a form of association. It is made of of smells and textures I made a point when I said goodbye to my Gramp at the chapel of rest to stroke his face and hair so would have a physical association of the firstly the bond we had and secondly my way of saying goodbye to him and his body.

Paul Isaacs communication profile 2017

Bereavement Counselor 

I went to see a bereavement counselor today and I was thankful that he was able to assist me not only in the human element of my grief but also adapt his way of describing different interventions and explanations to me.

 This is what he used in  the session 

  • Contextual telegraphic language “painting his words” with gesture and placement and meaning
  • Allowed time for me to do “all self no other” and “all other no self” in order for me to express and receive the information
  • Compartmentalised my  own emotional states giving them a reference point and also suggestions in how to manage my emotions
  • Understood I have a history of mood, compulsive and anxiety disorders associated with somatisation disorder
  • Allowed me to be creative in expressing my emotions through creative writing, poetry and art

 

autism-pyramid-updated-2017

 

Addressing The “Pieces” Of The Jigsaw

So what parts of my “autism” are being addressed?

  • I would say firstly his looking at a level of information processing delay and giving me time
  • The next would be that fact that because of visual perceptual disorders having a level of visual agnosia in the areas of meaning (semantic), object (simultagnosia) and faces (prosopagnosia) means that using gesture, placement and telegraphic language backed up with word emphasis in the right areas helps me internalise the words better assisting with the level of aphasia I have
  • Looking at my own emotional states is assisting with alexithymia and overall giving me time to integrate “self and other”.

 

Conclusion 

I would say that my grief is human and that I will get through this with at times very basic but meaningful interventions I do however hope this helps people with similar issues to my myself regardless of being on the autism spectrum or not.

 

Paul Isaacs 2017

 

 


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Celebrating My Gramp’s Life

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My Gramp had a wonderful send off yesterday the night before we said our goodbyes at the chapel of rest. He looked serene and calm in blue. I touched his face for the last time his skin soft and his hair the texture of snow. The next day we went to Oxford Crematorium to pay our respects and celebrate his life.

I firmly believe that in order to go to a funeral you must have known the person on a superficial level and that you aren’t there for your own selfish agenda to cleanse your sins of not being there while they were living, treating them poorly in life and making it all about you it is the ultimate hypocrisy.

I am so glad it was a celebration of his character, ethos, humour and outlook.

Gramp was a kindly fellow who cared deeply for his friends and family and would spread his kindness to those who took time to get to know him. He was funny, serious, charming, witty and above all loyal. He took shit and as another friend said made sculptures out of them from the people who decided to damage his character by spreading rumours to the verbal tirades he always knew who he was and carried being true to himself thats is what I loved about Gramp he loved life.  xx

Paul Isaacs 2017


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Being Thankful For My Parents

Mum and Dad Early 80s

Please note this is from a personal perspective

It may sound like a cliche in many ways to create a blog with a title such as “Thankful for my parents”  but that is how I feel I know that many people may not for many reasons feel the same as me and that is fine.

I am thankful for them because they  have given me good boundaries, have treated me as a human being then growing up as an infant, teenager and now as an adult, they do not let my disability “define the whole package” (I have written many a blog about that subject), guided me to know that failure and being wrong is normal part of life, to accept and take responsibility for both positive and negative actions, to help people who need it, to always be truthful and be true to yourselves.

I value their sage wisdom as many of these “mantras” and “life skills” come from past mistakes and “failures” but as my parents have noted failures are the fruits of success and success comes in many different forms as example setters for us all.

Paul Isaacs 2016

 


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When Your Father Has Cancer And Life Is Comprised It Puts Things In Perspective.

20160708_194624My Dad is a foundation of why I do not wallow in self pity for too long, he is a trooper with a good sense  humour and a positive  outlook on life itself, for five years he has been in constant pain due to his leukaemia and graft vs host disease.

I am constantly reminded not only of the fragility of someones mortality but also the inner positivism of the human spirit, he seldom moans, complains or feels sorry for himself he is always pushing himself to the limit supporting the family as and when needed.

He takes 90 tablets a week all to aid his fragile immune system and he has weekly checkups and is on a high dose of steroids and has blood cleaning once a week also.

He is tired a lot with pain or high and emotionally unbalanced due to the psychological fallout of having a high dose of steroids. I am glad he is still with us and I am so glad I can spend time with him we support each other he is a practical, down to earth man, takes no bullshit and shoots from the hip. I respect his worldly wise advice giving  good foundation for accepting failure as normal, taking ownership of situations and humility. He is highly spiritual.

His life may well be shortened  but he is adamant to live it to the full. 🙂 I think we could all learn from this.

Paul Isaacs 2016

 


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Abuse, Identity & Not Being an “Object”

Paul and Dad 2005 2A Dark Secret 

I can remember flashbacks, the terror, the feeling of being small,  worthless, subjected and cold this happened not that long ago as the thousand yard stare raised its ugly head from the fold. The realisation that something happened to me in my past which was buried under years of dissociation and memory based fragmentation a memory of an event at the heart strung up by a mass of tangled spider’s webs it truly was the widow of the web at its heart, her dark secret and revelation

Face To Face With The Reality Of The Past

A sad realisation of one incident which was sexual abuse is not an easy task to talk about in any forum I was 16 years old when it happened, but if it can help one person then in many ways my job is done. I decided to deal with this one alone to me I needed no therapy or endless talks about the what’s and the why’s etc, I went to the source it is near to me so I took that step on to hallowed ground with memories ripe or which I could remember soundly. This was a cleansing  exercise and I was going to sweat this one out.

Looking Forward

Like some sort of scene in a movie I was there alone. I found the place I patterned it out and looked, simple just looked at the door that is all I needed to do I stood there for a few minutes nor more no less and made my peace with the past I had to because I knew if I didn’t this would eat me up inside.

Many A Road To “Rome”

Has this on a subconscious level had an effect on my personality? behaviour patterns, triggers and is apart of the package of my “fruit salad” I would say yes it has may I would have been a less vigilant person, a less closed person in some areas of my life. I have learnt that I will not let this mould me but I shall mould it and if that is the road to tranquillity I shall take it. I am no one’s victim.

I Am Person 

Some people may think because of the nature of the work I do that I am detached, not accustomed to feeling out control, feel sadness, anger, confusion or despair I have got news for you. I am a person – when you cut me I shall bleed.

I don’t mind disagreement, I don’t mind people coming into my life and out again (if they wish), I don’t mind people  deciding to not to be my my friend (they have their own path to lead), I don’t mind disagreement, I don’t mind anger or venom spilled in my direction, I don’t mind a lot of things believe it or not. Just as long as with me you know that any judgement is NOT made prior to knowing because that is when one fills up bullshit loaded with assumptions and preconceptions.

I wish you well in your ongoing journeys. I would rather pave a road full of positivism and compassion than a road full of gold and greed. 🙂

Paul Isaacs 2016


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When People Have Cancer And Others Are So Selfish

Dad 2012Think About This?  

I like this a lot me Dad gets this all the the time you “look well”, “you seem well”, “you look ok”, “you look healthy” or the best on “you can take a tablet for that?” well when my Dad is

  • In Perssiant pain
  • Fatigue
  • Depression
  • Reacting to drugs on a daily basis
  • Blood infusions (cleaing his blood) on weekly basis
  • Muscles that tighten on a weekly basis
  • Soft tissue that is so damaged that he has scarring on his lungs
  • Graft vs host disease that leaves him in pain and fatigue
  • Nearly dying in hospital on five separate occlusions
  • Leukaemia that effects his auto-immune system and has done for over 6 years

Then maybe just maybe will people think about my Dad ‘s or our family’s reality? Rather than ignoring him on the street or where he lives (yes that has happened on more than once) even if you don’t speak to him. don’t be so selfish, narcissistic and ignorant to think that everything is going to be on your terms and is always about you.

My Dad is a humble, easy-going, socially accepting man and is still a very positive man despite the difficulties listed above. 🙂

What is Sick Supposed To Look Like Anyways? Video Link 

Paul Isaacs 2016