Paul Isaacs' Blog

Autism from the inside


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Autism, Information Processing and Train Travel

This is an article about autism and travel, on the context of a train station the potential pieces of a person’s autism and specific information processing challenges.

Face blindness

When on a train, waiting for a person at a station and/ or destination one may struggle with the ability to recognise someone by their face this is called prosopagnosia. Some people may need to different compensatory strategies to make the connection that they are a person that they know.

  • A board that has their name and the person’s name.
  • A familiar piece of clothing such as shoes, earrings, glasses etc.
  • The sound of the person’s voice.
  • The way in which the person moves such as gait, walk and stride.
  • Tactile and alternate sensory modulation to create association, such sniffing, tapping, rubbing etc.

Visual Perceptual Disorders

If a person has related visual perceptual challenges within a train station this can cause distraction but the way in which that connects with association is vast because of different experiences, variations and the personal emotions that got with.

  • Becoming increasingly “meaning blind” may mean the person goes into the system of “sensing” within their surroundings.
  • May experience intense euphoria and induced chemical highs due to simultagnosia and/or semantic agnosia’s. (fragmented vision).
  • May experience intense aversion and induced chemical highs due to simultagnosia and/or semantic agnosia (fragmented vision).
  • May need contextual means to be able to ground themselves this could be self-regulated or from another person.


Topographical Agnosia

When a person is in the same surroundings but cannot process or perceive where they are (even though they have been to this place many times) this could be to do with many factors – coming on a different train that is resided in a different place at the station for example or moving to the same location from a different angle.

  • Needing to find a place of association that is a landmark
  • Needing to be able to mentalise the new surroundings (through different modulations and associations).
  • Needing to be able to go to a place of safety.


Language Processing

This is a broad definition in which a person’s information processing ability to express and/or receive language may be for example be distorted the person loses words within a conversation. In a train station with external stimuli this could compound the ability to receive language further.

  • The person may need the aid of gesture and tone to get meaning.
  • The person may need the aid of objects of reference.
  • The person may need the aid picture/word association (if they do not have visual perceptual disorders).
  • The person may have delays in connections and a shared sense of “social” this means the person may only be able to do all self no other or all other no self.


Personality Types, Temperament & Resilience

It is worth noting that within the context of this article that other factors that come into is a person’s personality type which has its own values, systems, associations, temperament and varying degrees of resilience and association.

This means that if a person is idiosyncratic for example may have more novel ways of dealing with stress induced situations say than a more conscientious person who may be more linear.

Conclusion

In the context of autism this does count for a person is more than their information processing and one’s personhood rides with the latter and vice versa. People given the balanced nature of caregivers and other means of support can and do have the ability to change and adapt be healthily acknowledging their “autism fruit salads” but also their personhood to, for people are more than labels and so humanity starts with seeing people and everything that comes along with it.

Paul Isaacs 2021


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NAS Lambeth/A2ndVoice Workshop – Autism & Education From A Personal Perspective

This workshop is about Autism & Education. Hosted by Venessa Bobb.

Further Information & Reading

Donna Williams Autism Hangout Video

Donna Williams The Fruit Salad Approach

Paul Isaacs 2021


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The Problems With “Autistic Identity”& Stereotyped Perceptions

“Neurotypical” A Word Misused & Inaccurate?

There is no such thing as “neurotypical” in terms of a collective definition of people, viewpoints or principles.

It’s a word I never use as it seems to adorned a slur like status in projection. Bigotry is as such is not only based on stereotypes but I feel hinders more balanced narratives and objective dialogues and information sharing.

We Live In A Human World First Identities Come Second

This isn’t a “neurotypical” world either it is world full of different and sometimes conflicting ideas, notions and perceptions of “other” which then lead in extreme cases to towards conflicts in bias.

Autism Militant Projection & Distorted Narratives

Militant narratives burns more bridges than it claims to build, by having a narrow lense of how someone who isn’t on the autism spectrum acts, thinks, feels etc.

How does this build a platform for idea sharing, life sharing and forming healthy agreement and disagreement?

Non- Autistic Realities & Autistic Realities – All Human Beings Are Walking “Fruit Salads

There are different forms of non-autistic realities and some parts of those realities may be relatable to an “AUT-istic” experience such someone whom has faceblindness, object blindness or language processing disorder. In other words there are multi- faceted realities of being “non-autistic“.

For the AUT-ism is not a collective reality either, not everything is sensory, not everything is language processing, not everything is dyspraxia etc.

For these are potential facets of an AUT-istic experience but are separate and identifiable pieces in their own right, that can exist on their own terms and have different presentations.

The Problem With Identity- First Narrative

That is why Identity-First language is misleading because what “parts” one is choosing to relate may not be the “autism” (in their “fruit salads) anyway.

Paul 2020


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NAS Lambeth /A2ndVoice Workshop – Autism & Exposure Anxiety

This workshop was about the crossover between Autism and Exposure Anxiety. Presented and Hosted by Venessa Bobb.

Cross overs with Pathological Demand Avoidance, Oppositional Defiant Disorder, Reactive Attachment Disorder & Passive-aggressive Personality Disorder.

Additional Links

Autism & Exposure Anxiety By Donna Williams

PDA & EA Cross Over By Donna Williams

Paul Isaacs Personal Experience of Exposure Anxiety

Paul Isaacs 2020


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Autism Bucks Workshop – Autism As A Fruit Salad

This second workshop is an expansion of autisms using Donna William’s “fruit salad” analogy as the basis. I shall be adding links to expanding on some of the aspects which I spoke about.

Further Reading and Links

Autism & Social Emotional Agnosia

Autism & Alexithymia

Autism & Simultagnosia

Autism & Faceblindness

Autism & Auto-immune Disorders

Autism & Genetic Syndromes

Autism & Dietary Disabilities

Autism & Language Processing Disorders

Autism & Communication Disorders

Autism & Dyspraxia

Autism & Self and Other Integration & System of Sensing

Paul Isaacs 2020


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Autism, Mentalising & Gestalt Perception

Note this is from person perspective

Gestalt perception can account for both strengths and weaknesses of autistic perception. On the one hand, they seem to perceive more accurate information and a greater amount of it. On the other hand, this amount of unselected information cannot be processed simultaneously and may lead to information overload. Autistic people may experience gestalt perception in any sensory modality.

Olga Bogdashina 2014

About a month ago I was a friend of mine who is a speech and language therapist who works with people with autism, brain injuries (associated with language processing) other other neurological conditions.

Visual Perception & Memory

She asked me about how I mentalise the world around despite having challenges with visual-verbal connections and the ability to “marry” words and images together. This made me think about how I piece my “world” together and what tools I have used to do so. So she suggested about a simple memory comparison which was to see in the mind’s eye a generic church figure which she could.

Sensory Associative Memory

I said that when I think of a church I think of the feel and texture of the grass, the feel of the aged stone walls, the loud squeak of the wooden door, the musky smell of the aged church. She said can you bring all the those senses (experiences) together. I said I cannot as I think of them one sense at a time.

There appear to be multiple pathophysiological mechanisms that result in apperceptive visual agnosia. These may be related to the misperception of shapes due to defects in representing the elementary properties of curvature, surface and volume149 or failure to integrate multiple elements into a perceptual whole.150 Patients with severe apperceptive agnosia usually have extensive and diffuse occipital lesions and tend to have residual field defects.151

D. Tranel, A.R. Damasio, in International Encyclopedia of the Social & Behavioral Sciences, 2001

Conclusion

It’s clear that I have documented about having faceblindness, object blindness and meaning blindness which of course leads to “blindisms” in visual surroundings in which one has “context blindness” in which objects, faces and places lose their significance and visual-verbal meaning.

However it is clear from this conversation that the way in which I store memories through fragmented pieces of information bring about and evoke an emotional connection with what I am talking about.

Paul Isaacs 2019


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What if Life Was One Big Metaphor?

Image result for melting pot

Language and the use of it can be varied to the point that if you tried to think about all the language that people process and the variety of differing ways people interpret, receives, express, share, not share, avoid, connect, disconnect etc it is rather big and somewhat scary!

I can rote learn fun lines from advertisements, jingles, songs. Metaphors are some of these funny lines. I can learn metaphors as fun lines just like any other. And I commonly jumble them or use them in the wrong places, boldly certain I’m being linguistically creative and sounding like a total pratt. It is many the time I have looked at a supressed giggle or cringed at the overt ones as I fall over metaphors. I like metaphors, they are funny, but there’s a difference between learning language through rote and grasping, retrieiving and applying it based on interpretive understanding.

But to say Autistic people can’t understand metaphor is also a myth.

I may struggle with metaphors I haven’t had fully explained to me but boy oh boy… my entire life is like a metaphor.

Donna Williams

My late Grandfather was literal, pragmatic and had social emotional agnosia so he had a very linear, direct and conscientious in his way of expression. I have met others who are very much non-linear with their language tumbling, with neologisms, idiosyncratic and poetic . I have meet people who sense rather than interpret and other who interpret rather than sense.

It is in the end a massive melting pot of expression.

Paul Isaacs 2018


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Autism – The Crossover from “Sensing” to “Meaning”

Sensing vs Interpretation 2918 image

Note this is from a personal perspective.

Overview

Talking yesterday to friend about speech and language I thought it was interesting to see progression the inner feelings of someone who has gone through significant challenges in receptive and expressive language

A Whirlwind

I can remember a whole host of disconnected emotions that came flooding towards my person when speech slowly developed in terms of expression, a whirl wind of patterns, phonics and placements in my collective unglued memory and figured out by the age of eight a system of external placement, phonic placement and movement sequences that helped me connect with the outer world around me.

The System of System & Interpretation

However what was challenging from both emotional and integration point of view was taking a step away from the system of “sensing” (Donna Wiliiams 1998) a state of pre-consciousness, patterns, thematics and “feelings” that answered and questioned, that supplied and didn’t demand, that sang but didn’t shout, that gave and took in relevance of the moment it was captured. A place which “being” was the name of the game and “storing information” was redundant and futile.

It was a world in which in my own way I had found connects through external sensory modulation as explained so switching my “systems” was much a painful and frustrating experience as I can ever remember my connected chatter annoyed and scared me and the connected words would then bring upon the attention of connected response to which I was not readily to respond.

So was it like losing a friend? Well at that point yes I was making subtle yet significant transition into the world of interpretation, cladding, hierarchy and applied meaning for someone who was profoundly meaning deaf and meaning blind to those concepts.

It certainly makes sense why I wanted to “go back” into a world of “sensing” it was in reflection both a prison and sanctuary, solitude and disarray and home and wilderness all at once.

Conclusion

We (human beings) all come from the system of “sensing” however my personal experience is being “there” for a longer allotted period and many ways I am still there with reflective gaining and personal developmental progressions that have come with it.

Paul Isaacs 2018


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Autism – Communication Beyond Speech? Sensing A System Before Interpretation With Sharon King

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Sharon King Speech is only the tip of the iceberg. There are many more ways to communicate

Paul Isaacs I have had many a good conversation about Sharon with regards to the “system” of “sensing” a world before “you”, “I”, “self”, “ego” etc. All human beings go through this developmental phase some people on the autism spectrum stay (to varying and differing degrees) in this framework. A world before cladding and concepts that build on to some degree intellectual understanding vs. introspection. If someone is still in this system they may well pick up on things/situations/emotions that are raw, they may see other functions for things rather than its “interpretive use”. 🙂

Paul Isaacs For example I would use the toilet an its flush system as a “toy” a place to contextualise, a place to feel and get “sensory/chemical highs”, I used shaving foam, litres of bubble bath to create patterns on the tiled surfaces for hours and hours, would/do take in the smells of nature around, its textures, its feeling. I have learnt that some people want to know how you are feeling this moment, at this time and in which order that doesn’t make their system wrong as it is system they are using just as much I am using mine so I think there are more degrees of humanity between people who are on and off the autism spectrum than people actually think. Boxes only muddy the issue. I also think there are many people off the spectrum who live in this system of sensing as well.

My World = One’s Own World. This is our first world. Before all of its later cladding and contortions, it is at first a place of sensing, beingness, the preconscious mind and unknown knowing. It is the place where we understand self in others and others in self through the skill of mergence.

The External World = The physical world known through our sensory experiences as processed through our bodies/brains and experienced as sensations, thoughts, emotions, connections. This is a directly hands on world where sensing and beingness may be relatively strongly intact.

The Interpretive World = the world of applied meaning to incoming experiences that progressively builds mental structures and frameworks that ultimately filter our direct sensed experiences of the physical world and develops conscious mind as the primary guide.

Ego World = Ego contortion that further clads, alters and filters the logical meaning we get from experiences of the physical world and further buries our original capacity for sensing and beingness. This can be indoctrination, culture, economics, identifications, rewards, honed addictions and competition for social, economic, cultural ‘currency’.

Donna Williams

Sharon King Sometimes I wonder if feelings are more real than the external reality as they are our first point of contact being ‘within’ and everything else is ‘without’ to be filtered through our senses.

Paul Isaacs I FEEL before I interpret so its almost like a translation with knowing on a conscious level translating. The main difference I see between auties and aspies is the the system of sensing (to some degree) is far more “there” this also is taking into account the information processing blockages that come with that.

For example my Father is very much OPPOSITE he build up frameworks first, concepts first and then feeling and reflections come second. Its in the end a differing system of understanding information around you.

Paul Isaacs 2018


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I Am Glad I Got Bullied And Here’s Why

Me Holding Something 1

Note – this is from a personal perspective

I was speaking with two friends this evening and the subject of school-life came up it was an interesting exercise in subjectivity, objectivity and personal experiences shaping people’s lives but not defining them as we all move on.

My friend respectfully and realistically pointed out the fact that when students are at school (regardless of disability or otherwise) they are on their own unique journeys and difficulties can arise from all sorts of areas which have an impact of self-esteem, confidence and the ability to thrive on a functional level.

Enviroment vs. Social-Emotional Development

I was diagnosed late after my mainstream education had finished the best foundation for “social” I was given was through my tenure in education. It gave me the ability to cope with stressful situations, integrate and overall gave me the invaluable skills of living a “human life” rather than a “autistic life”. I was around people and my disability was not being flag waved to the point where I lost myself and was only defined by one single factor.

Is Bullying/Psychopathy Normal in Educational Settings?

I was surrounded by people who used interpretive speech. I still find this mode of speaking difficult and it is something I have aqquired a long the way in the context of school yes that was true. I cannot deny the verbal and at times physical abuse I encountered at school by other students on a daily basis as ‘normal‘ as their conscious psychothapy and narcissism was allowed run free regardless of the emotional damage that ensued.

Yes it is subjective and many of the students that bullied were emotionally insucure however being so doesn’t give you a free ticket to do it to others, however they did. I see this as a learning curve and lessons in life and I am thankful to learn from the shit and make sculptures out of it. 🙂

They may have changed which is great, found families, bared children etc I wish them well on their journeys.

Human Journeys

We (as people) are all on our journeys and bullying and victimisation was part of my experience however many others have been in the similar situations and I refuse to define my present situation by the past experiences. I am indifferent and objective about my past it happened and I am done with the “what could have beens” and “what ifs” I am thankful for my overall experience I would not have had it any other way.

I consider my reality no better or worse than any others, I don’t consider myself “special”, “better” and/or “superior” to anyone else. Affirmation has to be contextual and real not dished out like candy with hollow self-praise. There are too many people in the western world who just want their cake and to eat it all if only it was to shared out a bit more so other people’s realities could be shared and equally acknowledged with the sub-test of mine is better/worse than yours.

Tides of Glory

I strayed and came about

Eager to scream and longing to shout

I have travelled a life which has been painted

I refuse to see my deepest memories as tainted

Come up and down and my thoughts fleeting around

I pick my body and ground my mind with the comfort of sound

A cloud full memories embraced and feetful of walking to be chased

A human being am I no better nor worse living a madless time at even pace

Paul Isaacs 2017