Paul Isaacs' Blog

Autism from the inside


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The Currency Of Being An Individual?

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Mental Health & Lockdown

I suppose times are hard at these moments and one needs time to reflect upon the differing aspects of life, love and true connection.

Admiration, inspiration is not love or connection it is looking at someone from a far, human beings have learnt to live (through the western world) to project how they expect or are told to be feeling, thinking and acting and not connecting with how they are truly are from the inside.

Education & Learning

The education system is broken and needs to change goes beyond logistics,ethics timetables and class structure it is how children are taught, respected and listened to.

That has to be held to account. I have always seen children as “little people” meaning they are of equal valour and should not be patronised but seen on a level that embraces and acknowledges them as human beings.

When one is a teenager you are expected to be an “adult” which is a subjective phrase to you to use because biologically and chronologically a person isn’t anyway, emotions are not explored in a way which is not attuned to the individual.

A person at the very least in a structured educational environment should be given the opportunity to have a healthy relationship with them, to understand, process them and to explore them without fear of judgement or the vices of division.

Practically of life is one thing but love for a fellow human being is not. Why? Humans are not cookie cutter pre-molded mind-scapes or sausage laden meat blobs of sameness.

In an egalitarian framework we in practice could acknowledge all people’s realities, inner worlds and perceptions of equal and balanced valour with everyone else.

Mental Health & The Culture Of “Fame”

Is that why our mental health system is clogged full of people feeling unfurnished? Unsettled? and inferior? Is it to do with the trans-generational and false concept of emotions that is being passed down on to the next? Is societies currency of fame, money and the material and external as basis of “success” damaging and warping young mindsets into a journey not of self discovery but same discovery. This is worthy of reflecting upon not in a overly logical or intellectual sense but an internal one.

Connected Reasons For Actions & Choices

How many people are there in the world that do things only to oblige? All the time? That do things upon themselves because they have to keep up with the Jones? Like it has has been pre- written that this time and thus this moment they must be thinking, feeling, acting and doing like pre-programmed machine people to make friends on this level, have sexual intercourse on this level, marry on this level and have children on this level.

Now its not these life choices that I am bringing into to question, its the level of connectness with the ACT of doing these things on an emotional level that I am questioning. Never do things because you are shoe-horned under false pretences.

You do not got to a party as someone else for everyone would love and adorn under the falsehood of projecting, knowing full well that if you went as a real human being you would shunned at the doorstep.

Self Love Isn’t Selfishness

Unhappiness is sometimes a person who’s good character has been polarised, a person who has been made to feel expendable and exchangeable and this all comes down to what a person feels connection is. True connection is having a level of self-love and self-care but not at the expense of another persons reality.

Paul Isaacs 2020


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Why Are People Disconnected From Certain Emotional States?

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Culture of Conditioning 

Westernised society has conditioned many people to be enraptured by the such emotional rigidity, as to the falseness of how such perceived “negative emotions” and “positive emotions” are handled with.

“Faux Emotional” Responses & Polarising Negative/Positive Thought Patterns 

Smiles and joy are not painted on and should never be supplied as a shallow coping mechanism for darkly thought-scapes, that means you will never understand the lessons of both true sadness and happiness, they both exist to give each other meaning and clarity.

It you are disconnected from BOTH you will never get the timely validity of either.

I have noted that some of my expressions of sadness and melancholy have confused or even upset, however these emotions just “are” they are neither “good or bad”, “right or wrong” they are a human EMOTION to be explored.

Conclusion

Feel things without the threat of judgement. Or put up cladding that in the end distances you further from yourself and other people.

Paul Isaacs 2020


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Identity & “Actual Self”

 

Care nothing about how you think you WANT to appear to others and more on how you really ARE to others.

This will then in turn mean you have depthful and loving interactions that are more meaningful and laced with openness of the heart and substance of the soul.💓

Paul Isaacs 2020


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Be “You” In Your Dreamscapes

Be the the person you are, be the person that is, be the person that is the real you, be the person that is both insignificant but relevant, a failure but a success and be treaded in the infinite pathways of a novice and let go of perceptions of being an worldly expert.

Paul Isaacs 2020


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What Is Friendship?

 

Sometimes what is needed in this tempest most consumed in the worldly minds of others, is to know that someone else of equal candour whom maybe going through the same experiences offers out their gift of listening. To wipe away the tears of depthful melancholy when you feel your body is enveloped in bitter tear drops, to show them yourself at moment when the mirrormind is cracked, to open doors that have been bolted with rust and to give you new feathers so you can fly once more.

As I have been unpicking the system of sensing theory, it has become apparent that mergence of feeling is a beautiful way to connect however one must be thoughtful to each other’s learning process’.

After decades I finally understand the perspective of having a true and meaningful friendship with balance, love and humility, I have all ways sensed this (through bonding) and if there is any a wonderful time to know it. The time is now.

I have learnt something today is that space is as much valuable form of love, care and consideration as being there which is of equal validity.

I apparently have this “skill” of mergence but need to know how to manage, regulate, monitor and use it. I love to help people, empower and to try and be objective which is an important process.

I like people for their raw energy, honesty, humility and empathy and I as people must and try to give them something back.

Paul Isaacs 2020


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The System of Sensing, Inverted Trauma & Dissonance

The System of Sensing

Is a world a still live in its world before ego, before conscious mind, before self and other, before interpretation of your sensory world it is where things are FELT, first it is a world of pattern, theme and feel, it is ethereal, not quite tangible in a logical and literal sense but very much about togetherness and the mergence.

FEEL speak is experienced by all human beings its called being baby in which your nervous system is underdeveloped, its sensory systems are young and interpretation of these senses isn’t there.

For me being profoundly meaning blind and meaning deaf meant that I lived this system (and continue to do so) for a far longer time, this mean I could merge with things, people and places.

Sensing Emotions, Trauma & Dissonance

If some one was to MERGE with someone on a sensing level that is picking up on frequencies that the other person may not be aware of this can mean I can get confused about “self emotions” and “other emotions”, I have unknown awareness of someone because I can SEE them in all their rawness it is beyond cladding, false projection, lying an manipulation.

I can FEEL peoples energies and I can put them into two camps.

Connected With The Sensing World

“Straight & Grounded” these people’s feel speak is well connected, they are natural empaths (who may also be able to sense), their interpretive “speak” marries up with their “feel” speak, I sense fluidity and balance and my communication does in general flow much better because their isn’t dissonance. I tend not to overly apologise to these people, can be assertive and not be triggered by exposure anxiety.

Disconnected With The Sensing World (to differing degrees and reasons)

“Wobbley & Uprooted” these people’s feel speak is not as well connected, they may be extremely empathetic but disconnected from their emotions in some shape or form (information processing, trauma, personality disorder and/or identity crisis) or they they have empathy erosion, they may well have learned to overly rely on the “interpretive system” to hide from themselves due to trauma and/or be deceptive and overly use this “interpretive” system for personal gain.

So these people do two things with the empathics I MERGE with their trauma to the point in which it is MINE on a sensing level and/or if they have empathy erosion they trigger my exposure anxiety and “self” gets protected.

My communication style for both the empathic and non-empathic people in this camp is stilted, laboured, I tend to apologise more and there is less fluidity because the cladding usually contradicts the feeling. I usually “go along” with interpretive thread regardless of if I want to or not. I on some level feel great empathy for them many of them are on journeys in their own right and I have since learned that MERGEING can in turn cause PROJECTION in which I sense the dissonance feedback BACK to the person. This is what I call the mirror effect. (for obvious reasons). If they consciously interpret this they may think that is MY Trauma.  

This causes me great stress and pain and I can get emotional dysregulation.

Dissonance In People Who’s Perceived and Actual Self are Warped

I tend to “sense” people who lie, manipulate and who are superficial because that is based on the ability to use you interpretive system to “pretend” you are something you aren’t, these people can be lost, lonely, friendly, confused, lack a firm sense of self and on the other hand they can be narcissistic, selfish, ego-focused and shallow.

I have a real personal peeve with people whom lie (as a form of control, emotional manipulation). Because I can see it.

Paul Isaacs 2020


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A Lesson in Time – Mental Health Assessment Pre-Diagnosis

Paul 7 Years Old

Family Assessment

Tuesday 11th February 1997

Presenting Problems

Mr. Isaacs was unable to attend today as he is a shift worker and since accordingly this date he has been changed to day work. My initial impression of Paul was of a much younger lad (he is eleven in May) physically and psychologically.

Paul was eager to explain his concerns to me and at times was very insistent on not letting his mother give a more comprehensible explanation of the situations that had occurred.

Paul’s major sense of unhappiness and the reason for his referral is that he feels he is verbally bullied at school. he gave examples of being taunted primarily about 1.) The he way walks. 2.) Shuffling his feet. 3.) He wears glasses – and he has been called “four eyes”. However, he feels that the teaching staff are against him . In year 4 he had an unhappy relationship with his form teacher. It does seem one particular occasion he was humiliated – but to the infants so they could show him how to behave.

Mrs Isaacs also incited another incident which seemed to have upset her more than Paul. It became apparent that when Paul was explaining his situation at school his explanations tented to be repetitions of his parents points of view.

Paul after became muddled and it seemed there gaps in connecting and associating. It was also significant that when Paul referred to “she!”- his pronunciation was really that of “he” – I did check several times, but it appears that both Paul and his mother were unaware of this – which was marked. (receptive hearing problem? speech difficulties?).

Mrs Isaacs pointed out that Paul always had difficulties “concentrating” and settling down to work – she remembers this as stemming as far back as three year of age – When he attended play-group. she also recalls at this age and ever since that has had problems with “interacting with others” (her words). Paul has not many friends and it was brought to Mrs Isaacs’ attention by the teaching staff that he was a “solitary figure” in the playground. His mother also pointed out that they lived close of approx ten houses and that there were other children of Paul’s age, but he tended to say in.

Her explanation for this was that he felt safe and secure behind closed doors. Paul did mention some of his friends, but found it hard to articulate what he felt about his friendships with them. He did admit to hitting out at people at times is was significant that he mentioned his father hit him when he was angry. Mrs Isaacs denied this. Paul’s response was “I suppose Mum must embarrassed that I said that.”

Paul’s self-perception is that his “fairly sensible” , however he admits to being influenced by others into “being silly”, but he feels other children are being “sillier” the than him – “going over the top”. He feels he doesn’t go over “the top”. Paul has recently had to go back to the very basics in Maths with one other pupil. Mrs Isaacs conveyed concern and irritation that the teaching staff had not picked up on Paul’s severe difficulties with Maths; especially in view of him starting upper school at Lord Williams East in the new academic year (Sept 1997). Paul’s reading age is estimated as that of a nine year old. it appears the only positive subject that could of was Paul’ art. Mrs Isaacs believes and feels the teaching staff convey negative messages surround Paul’s overall performance. Mrs Isaacs explained that Paul gets very “worked up” over homework assignments, Paul also stated that he cries very easily hence his vulnerability at school in being bullied. It appears Paul suffers from anticipatory anxiety and expressed his fear of commencing upper school as he has heard he will get “beaten up”. Is is of significance that Mrs Isaacs was unhappy at ‘Long Crendon Primary School’ and suffered “bullying” at ‘Lord Williams’ East’. Mr Isaacs is also being scapegoated at work – he is being ‘verbally bullied’ (Mrs Isaacs’ words) and harassed and feels under a lot of pressure.

Family History

When referring to the history of the pregnancy Mrs Isaacs requested to speak separately – she explained she told no one of the pregnancy – only her partner (whom she is married to). She had been rushed into the JR as Paul “was distressed” – he was a month premature and was in SBCU post birth. She was unable to breast -feed Paul remarking they had said “she was too big”. Transition to weening had been unproblematic. Had been slow in walking – 18 months? He was sleepy baby and had to be woken up for feeds – He had been a “good baby”. However Mrs Isaacs had fond toddlerhood difficult – his “boisterousness”. Paul has had three operations 1.) Circumcision at 2 years 2.) Grommets 3.) Adenoidectomy at 4 years – at the JR and Radcliffe. Tonsillitis – query – Tonsillectomy otherwise healthy. Mother with Paul for all operations – no significant complications

Paul would like help with “the teasing” – he said it although it had been easier recently he wants to be able to cope with it better if it worsens again. He also says he is very sensitive and works himself into a state easily. There is also much anticipatory anxiety regarding this move to Lord Williams’ East in the Autumn. In ascertaining his mood he expresses no helplessness or hopeless feeling and denies suicidal ideation or such thoughts. He does covey and sense of confusion and bewilderment over the treating of staff’s “rude words” (his words) about his self-presentation. (persistent anxiety).

  1. Assessment from Psychologist (educational?) to check on cognitive abilities and overall school performance.

  2. Social skills group at “The Park Hospital for Children”. (mother drives) for interaction with class.

  3. Possible Family Therapy – concerns regarding Paul;s parents and levels of depression. Re-enactment of mother’s unhappy school experience and father’s “bullying” at his workplace, especially regarding “authority figures”

Cognitive Abilities , Cognitive Impairment & “Mental Retardation”

“It became noticeable he had very slow speech”

There was a massive transition in 1993/1994 prior to this interaction before this I was echolalic, meaning deaf to large degree around 80 to 90 percent and unable to speak in a fluid manner. Having visual agnosias, oral apraxia and challenges around receptive language meant that getting an interpretive and expressive framework was slow, stilted and lengthy. I went through bouts of selective mutism and hating my “connected” voice which then in turn triggered exposure anxiety.

there appeared to be a gap in connecting and association.

Still having complex visual and verbal blockages meant that my “cognitive abilities” were hidden and therefore not “seen”. I have no doubt that the lady in question had her own frame of reference on how I was processing the information so thinking I was “retarded” was just the tip of the processing iceberg.

Bursting into tears quickly’ – Alexithymia, Body Agnosias and Trauma

There are many overlapping reasons why this was happening at this point – the reason in which I was at this assessment was the persistent and verbal bullying from a senior member of staff at the primary school which I attended.

Having body agnosias meant that I couldn’t gauge or manage my own emotional states this would be related to alexithymia the inability to “know” your own states of emotion, the ability to “internalise” them and mentalise them on a “conscious” level. However many years later when I wrote my first book I came to realise that on a “unconscious level” all my experiences were unlocked through typing.

(receptive hearing problem? speech difficulties?)

I was traumatised from an early age by expressive language (but at times would be intermittently intrigued) due to a language processing disorder (aphasia).

I was triggered by exposure anxiety, dissociated easily and would struggle to get incoming information with “meaning”. Living in the world of the system of “sensing” before awareness mind and the ability to make interpretive connections.

Battling Books & Formulas & Artism

He has severe difficulties in maths.

His reading age has been estimated at an average age of nine.

Not being able to mentalise in a visual – verbal way meant that I had challenges around comprehension and getting meaning from books, written words and maths. (dyslexia, dyscalculia and visual-verbal agnosias). I found the process of writing very difficult the way in which I held the pencil, the ability to concentrate on each letter and sentence formation. The same goes for maths.

My solace for extraction and distraction was art which was were my mind was freed and felt “at home”. I started from a very young around 5 smearing paint on to a piece of paper and I was hooked from that point on then transitioning to drawing by route during this period of my development.

Prematurity & Height
“There is some evidence that babies who were born premature tend to be shorter in childhood, but they usually catch up with those born at term in late adolescence. But our study shows that women who were born very preterm fail to reach the stature you’d expect based on their parents’ and siblings’ heights.”12 Dec 2016

She noted that developmentally and that I seemed “younger” than my age from a psychological and psychical perspective. There is a link between having a short stature and prematurity, currently I am only about 5’8′ I do not think I will be growing vertically anytime soon.

Did I Have An Attachment Disorder?

I can assure you I was lucky that my parents gave me love, support and grounding even though they didn’t know that I was on the autism spectrum. Did they both have difficult childhoods and upbringings? Yes they did for many different reasons.

My Father had parents his whom were his primary caregivers who didn’t not show him love, affection, boundaries or a sense of meaningful inclusion. Both of his parents were cold and aloof and didn’t seem to understand (be it wanting or otherwise) the serious practicalities of what parenthood meant for in a child’s development and emotional well-being.

My Mother was seen as a disappointment to her Mother who was constantly comparing my Mum to other people explaining that she needed to be more like other people as opposed to building up her own sense of self identity, self-worth and autonomy.

The truth is I am and try to be a objective judge of character when it’s presented to me and the answer is no I did not have an attachment disorder and my parents were not to blame for anything.

My Mother fits the solitary, serious and self-sacrificing personality types. She is giving, emotionally connective and generous.

My Father fits the conscientious, mercurial and adventurous personality types. He is assertive, pragmatic and forthright.

I love and value them as human beings because despite their own “shit” they didn’t fling it consciously or otherwise on to me.

Paul Isaacs 2019


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My World- Autism, Ethos & Humanity

I am pleased an eagerly proud to be working for a small autism organisation called My World and day centre for people on the autism spectrum. This summer it shall be four years of service to which I have contributed my consultancy work.

With people who have a narrow, conceited and reductive view of what autism “is” and how one is supposed to “act” and “behave” noting that it has “one look” so therefore “one approach and intervention” is wrong and that doesn’t happen here.

At My World all the caring and empathic staff are valued, open-minded and willing to learn this means that what is taken is a person-centred approach, looking at the person’s mental health, learning styles, information processing challenges and ultimately sees them as people or equal worth and value going about their day and purcuits.

Our success is our ethos, open-mind natures, ability to learn new things and approaches and empathy which encourages people in the end to be the best version of themselves.

Paul Isaacs 2019


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A Journey With Cancer, Treatments & Side-Effects

Dad in his 20s 2

 

Cancer is a hard thing to talk about my Dad was diagnosed in 2009 with a type of blood cancer called Chronic Lymphocytic Leukaemia which attacks the white blood cells and comprises the auto-immune system. Early warning signs included fatigue and hard node underneath his armpit. After this diagnosis he got a second which would change the outlook of mortality and treatment in which he had genetic mutation of the p53 gene which is called the “guardian angel” gene for cancer. He in 2010 had been given three months to live if he didn’t have a bone marrow transplant (which came from Germany and the person had the same genetic deletion) it was then he had chemotherapy the the transplant.

He told me that one of the most difficult things prior was signing a piece of paper acknowledging that there is a 25 percent risk of him dying through this procedure. I am sad to say it but one of the worst things about the experience was the wards lack of knowledge on Autism and Asperger’s Syndrome and by letting staff members know actually made an already compromised and critical situation much worse he was name-called, laughed at and escorted out of his room during the his last day he belongings stuffed into black bags and told to wait in the communal room despite him almost dying almost three times in the 12 weeks due to fungal pneumonia. I trained them in autism for an hour.

The team gave him too much of the bone marrow donor swapping a life threatening disease to a chronic disease called Graft (donor) vs. Host (the person) disease which attacks the soft tissue, eyelids, foreskin, lips, mouth, gums etc leading to tooth decay, gum recession in my Dads case

The drugs he takes now is something called perdnisolone which was created in the 1940s in is a type of immune-suppressant which in the short term is very good but in the long term can have dramatic and even life-threatening consequences. My Dad has been on this drug for over six years and the effect on his life have been drastic mood swings, mania lasting days, explosive and odd reactions to sometimes the most trivial of comments, impulsive behaviours, personality changes (narcissistic and self-centred ideals quite the opposite to my Father’s kindly nature), psychotic episodes and paranoia. The hardening of the trunk of his body means he finds it hard to breath (dermatological disease), high blood pressure and muscle spasms and the constant flip-flopping of drugs (if you go over 20mg of pred you must take additional tablets to counter the side-effects of this). His body is steroid dependant meaning that I feel there should be alternate looks into helping a person safely ween off this drug.

Recently my Dad went “cold turkey” for over a month because of these side-effects his nervous system went into shock in the second week causing him to vomit, blood pressure to drop and so he self admitted to the triage in which he was giving pred as the only option. Chemotherapy, Radiotherapy and Predisoalone are all legal but destroyed and suppressed my Dad’s immune system to the point that he wasn’t my Dad anymore. I know there are other family members going through this I would like to say you have my sympathies.

I would to point out that my Dad is a positive and assertive person and through continued self direction, realist attitude, objectivity he strives to live his life as full as he can. 😊

#disablityandcancer #immunenology #autoimmunedisease #CCL#p53GeneDeletion #Aspergerssynrome #autism #sterioddependant #life#cancersupport #cancercare

Paul Isaacs 2018


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Paul Isaacs: Living Through the Haze 2nd Edition Review By Dr. Manuel Casanova 

 

Paul Isaacs’ book, “Living Through the Haze”, has been published (second edition). The book has new content, a new introduction and an afterword that I wrote. Paul was diagnosed as autistic in 2010. As a child Paul was considered to be a “naughty child” with no prospects for a future. At present Paul is a lecturer, trainer and consultant who promotes autism awareness throughout the UK. In the following paragraphs I provide the afterword that I wrote for “Living Through the Haze”:

Many times during his life Paul felt confused and detached from his surroundings. His attention could only focus on one aspect of his sensory experience. He lived his life as if wearing blinders, and as such, he could not react adequately to what people asked of him at home, at school or at work. His perceptual style made him seem odd to his peers. Parents, teachers and peers objectivised and bullied him.  In the end the reader can only wonder, how did Paul survive?

For many autistic individuals the environment overwhelms their nervous system with information.  Seeing a face is like looking at the sun. Blinking, when looking at the sun, is a response aimed at avoiding damage to your eyes by allowing only a sliver of sunrays to hit your retina. In autistic individuals, allowing only a sliver of available information into your brain is meant to protect it from overstimulation. Overall, autistic individuals can’t see the forest for the trees and it is easy for them to become thoroughly engrossed in the details of a particular situation but miss the larger picture.

Paul grew up displaying many of the classical symptoms of autism. Unfortunately, as is the case for many autistic individuals, his diagnosis came late in life.  Still, he prospered and found fulfillment in being a speaker, counselor and in helping others like him. In this book Paul publicizes his own plight with some of the darker aspects of autism. Through no fault of his own Paul was misunderstood and relentlessly bullied by even those who were supposed to protect him.  The psychological and physical aggression that he suffered is at the crux of a mixed mood disorder that at times has greatly handicapped him.

So we can ask again, how did Paul survive? In a longitudinal study sponsored by the NIMH on so-called recovered autism, it seems that the most salient commonality for those that “recovered” was caring parents who were quick to act on behalf of their children.  Paul in this regard was blessed with caring supportive parents and grandparents. He also found solace and purpose in a special education camp outside of school, which he called the “Autism Base”. There he found others like him living within a spectrum of severities. More importantly, within the Autism Base he found comradely and a social sense of togetherness.

Paul has not forgotten the painful experiences of the past but has learned from them.  Indeed, the excuses provided by the teachers who failed him are indelibly marked in his memory. He has a keen power for introspection.  His ability to self-reflect is one of the reasons why I believe that there is undue emphasis in the Theory of Mind conceptualization of autism. Paul was always keenly aware of his mental state and on occasion provides privileged access to the mental state of his parents.

This is a must read book for parents with autistic kids, especially if they are attending mainstream schools. The book is also a valuable aid to teachers. It portrays in a no holds barred way the effects of intimidation and the behavioral manifestations of bullying. Finally, Paul provides many constructive comments and guidelines as to how to improve the school system and teaches by example the positives of a supportive role by parents.

Source: Paul Isaacs: Living Through the Haze