Paul Isaacs' Blog

Autism from the inside


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What is Communication & Interaction? Should We Look Deeper?

All people have different ways of interacting with people based on many different factors. This is from a personal perspective.

Personality Types, Conversation & Self

For example I am idiosyncratic so I have deep, introspective emotive conversations with people as a preference, I am solitary by nature so I feel comfortable with my own self, I struggle with praise and prefer sometimes more balanced and objective, real observations of things, I am mercurial so I can flit between different cultures, friendships but I am mindful about the challenges of borderline – lack of self identity, sloppy boundaries and emotional dysregulation (which has a 60 percent crossover with autism), I am self-sacrificing so I am willing to aid, support and help others in need but must be care not to present myself as a doormat, I am serious and can be intense and conversations and prone to depressive episodes.

Ego-syntonic Nature of Co-conditions & Complex Information Processing

OCD drove my to be solitary out of the shackles of the conditions, Exposure Anxiety caged me from the want to connect, dissociation was both and ally and enemy when I was severely meaning deaf/blind and being context blind at least allowed me to appreciate (and partly retain) the system of sensing being etc.

Information processing stuff such as faceblindness, simultagnosia mean I struggle with a shared sense of social, language processing disorder means I can go “deaf” to meaning however just KNOWing this information gives me something to work upon.

A lot of Contrast & Subjective Natures?

I think the situations you talk about are mixture of culture, environment, expectations (social, intercultural, gender, context) and how one’s brains are able to keep up (regardless if they are on the spectrum or not), personality types/clashes of ideals, perceptions, rules, outlooks.

Conclusion

It’s a melting pot that people look yourself accordingly – in the end it is what works best for you.

Paul Isaacs 2021


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The Problems With “Autistic Identity”& Stereotyped Perceptions

“Neurotypical” A Word Misused & Inaccurate?

There is no such thing as “neurotypical” in terms of a collective definition of people, viewpoints or principles.

It’s a word I never use as it seems to adorned a slur like status in projection. Bigotry is as such is not only based on stereotypes but I feel hinders more balanced narratives and objective dialogues and information sharing.

We Live In A Human World First Identities Come Second

This isn’t a “neurotypical” world either it is world full of different and sometimes conflicting ideas, notions and perceptions of “other” which then lead in extreme cases to towards conflicts in bias.

Autism Militant Projection & Distorted Narratives

Militant narratives burns more bridges than it claims to build, by having a narrow lense of how someone who isn’t on the autism spectrum acts, thinks, feels etc.

How does this build a platform for idea sharing, life sharing and forming healthy agreement and disagreement?

Non- Autistic Realities & Autistic Realities – All Human Beings Are Walking “Fruit Salads

There are different forms of non-autistic realities and some parts of those realities may be relatable to an “AUT-istic” experience such someone whom has faceblindness, object blindness or language processing disorder. In other words there are multi- faceted realities of being “non-autistic“.

For the AUT-ism is not a collective reality either, not everything is sensory, not everything is language processing, not everything is dyspraxia etc.

For these are potential facets of an AUT-istic experience but are separate and identifiable pieces in their own right, that can exist on their own terms and have different presentations.

The Problem With Identity- First Narrative

That is why Identity-First language is misleading because what “parts” one is choosing to relate may not be the “autism” (in their “fruit salads) anyway.

Paul 2020


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Autism Bucks Workshop – Autism As A Fruit Salad

This second workshop is an expansion of autisms using Donna William’s “fruit salad” analogy as the basis. I shall be adding links to expanding on some of the aspects which I spoke about.

Further Reading and Links

Autism & Social Emotional Agnosia

Autism & Alexithymia

Autism & Simultagnosia

Autism & Faceblindness

Autism & Auto-immune Disorders

Autism & Genetic Syndromes

Autism & Dietary Disabilities

Autism & Language Processing Disorders

Autism & Communication Disorders

Autism & Dyspraxia

Autism & Self and Other Integration & System of Sensing

Paul Isaacs 2020


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Autism The Personhood Acknowledged

Humility, Humanity, and Rhetorics

Laura Corker thank you for sharing sadly this treatment very common (common does not mean right, moral, acceptable) and nor should time be used as a reason or excuse.

Historical Accounts


This open, honest and saddening blog I feel helps explain my reasonings, for it is when people are reduced to being seen as one thing that the wheels of injustice begin to turn.

Autism, Identity and Historical Underpinnings

Frames of reference change from centuries to decades etc. People wonder why as person on the autism spectrum why I want to be seen as a person first and foremost.

To seen as a person, to be seen as a human being, to have healthy acknowledgment of one’s abilities and disabilities.

Conclusion

If we strip militancy and autism politics then I feel more realities will be touched with the depthful knowledge of shared realities.

Echoed within the eternal halls of telling that the mind scriptures do not become dust but are laid bare for futures to come.

Paul Isaacs 2020


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White Privilege Is A Fact Not A Fiction

See the source image

Definition Of White Privilege

Accepting white privilege is not enough, acknowledging it is not enough, saying racism happens with indifference and apathy is not enough.

the fact of people with white skin having advantages in society that other people do not have:
Jane Elliot On Making People Aware Of Racism 

Apathy, Indifference & Ignorance

Acts of apathy and indifference is compounding the problem can imagine being told your reality was not “real”? Or that your reality was something that “just happened” and was met with almost chronic indifference from a social and systematic perspective?

The British Empire Was Driven By Racist Ideology

See the source image

White privilege is happening and it’s warped hierarchy has been happening for well over 400 years, when the British Empire stole land, resettled and uprooted the gears of this machine did start to turn.

It is irresponsible and insufficient to view the separation of family units in the Caribbean through a lens that ignores the massive legacy of slavery – which is how most those families came to live there in the first place – and its relationship with the Commonwealth.

Kemi Alemoru – It’s Time Britain Confronted It’s Racist & Oppresive Past, No Half-Truths Blog 2018

Changing Facts To Fit Narratives? 

It’s seeped into our “British Culture” as “normal”, in education, in employment, in media, in books and in movies etc.

“Before, people had to hide their racism. If you felt something bad about about black people, about Muslims, you had to shut up. Now these people have the confidence to come out in public to say everything. This is scary to me, that scares the shit out of me.”

Stormzy – Musician – The Guardian Article 2019 UK is ‘definitely racist’ an 

It’s time for white people to know what is happening from the other side, not just acknowledge as a point of interest

No person’s reality should traded as insignificant to another’s.

Paul Isaacs 2020


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Autism, Childhood Trauma Core Beliefs & Moving On

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Note – This is from a personal perspective 

Unpicking Trauma & Distortion Of Core Beliefs 

Defining Emotional Abuse

Emotional abuse is subtle – it comes in various guises and because there are no visible wounds or scars it is difficult to detect. Emotional abuse damages children’s self-concept, and leaves them believing that they are unworthy of love and affection. Emotional abuse is invariably present in all types of abuse, and the long-term harm from emotional abuse can be equally, if not more damaging, than other forms of abuse.

Childhood Trauma, Negative Core Beliefs,
Perfectionism And Self-Injury (2012) by Jan Sutton

Talking with my CBT therapist yesterday she described that young children are vulnerable to the projection and distortion of “core beliefs” if they are exposed to them from an early age, this no doubt can run into the sub-conscious mind and the person can then act out (with out knowing) these belief systems.

The memory came from when I was around the ages of 7 I was functionally non-verbal and I was told to have a meeting with the headteacher in her office at around lunchtime.

I was in this office for an hour, my parents had not been notified of the meeting, I was not fed or watered that day as a result. I shall bullet point the overall presentation of what she projected to me, during the meeting I had largely dissociated.

  • You do not walk properly
  • You do not talk properly
  • You cannot learn properly
  • You do not learn in the same way as the other children
  • You cannot tie your shoelaces
  • You walk around alone in the playground

This took due to visual-verbal processing and mentalising challenges not only a long time to sink in what she said, but also a level of self-awareness that this had an impact on my self-perception, development and functioning. Through out education my perspectives were often maligned, discarded, ignored or not acted upon in an objective, rationale manner. In 1996 I was sent for therapy at the Park Hill Hospital in Oxford.

The specialist in question had little understanding of my presentation or how I felt about the current situation, it was heavily implied towards the end of the assessment that my parents were abusing me and thus I was attachment disordered.

Sexual Abuse As Teenager

What to Expect After a Teen Is Sexually Abused

Being a teen is already a stressful and confusing time. Experiencing sexual abuse makes life even more confusing. Teens often act as if the abuse did not happen. The pain is too much at times so they work hard to avoid the pain. You may notice in your teen feelings of sadness, nervousness, guilt, and fear; changes in behavior such as withdrawing from friends and family, a drop in school performance, or trouble sleeping; avoiding reminders of the abuse such as people, places, or things; or engaging in unhealthy behaviors such as running away, substance abuse, self-mutilation, or suicidal ideation.

Melissa Reilly, LCSWBrian H. Williams, MD

I was around 15 at the time is came as repressed memory many years later in 2011 (night terrors) and I pursued counselling in 2013 I was made to believe that the repression was not real.

This not being believed and listened (by a professional) then lead me to make my own way to the place where it happened at get closure, I looked at the door for which seemed like forever and I walked silently away.

The incident itself was of anal penetration by a person older than me that was confined in the boys changing rooms and that is all I can remember on the subject, however I can piece to together problems it presented –

Perceived Self & Actual Self?

I am thankful for all my experiences that have happened in my life, positive and negative, good and bad, right or wrong. One has to thank people whom bestowed things onto you it has given me perspective, opened up the pursuit of a balanced self and objective happiness, the promotion of healthy boundaries and ethics has furthered my ability to be connected with myself as person as opposed to a false projection.

Paul Isaacs 2020

 

 

 


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What Is Friendship?

 

Sometimes what is needed in this tempest most consumed in the worldly minds of others, is to know that someone else of equal candour whom maybe going through the same experiences offers out their gift of listening. To wipe away the tears of depthful melancholy when you feel your body is enveloped in bitter tear drops, to show them yourself at moment when the mirrormind is cracked, to open doors that have been bolted with rust and to give you new feathers so you can fly once more.

As I have been unpicking the system of sensing theory, it has become apparent that mergence of feeling is a beautiful way to connect however one must be thoughtful to each other’s learning process’.

After decades I finally understand the perspective of having a true and meaningful friendship with balance, love and humility, I have all ways sensed this (through bonding) and if there is any a wonderful time to know it. The time is now.

I have learnt something today is that space is as much valuable form of love, care and consideration as being there which is of equal validity.

I apparently have this “skill” of mergence but need to know how to manage, regulate, monitor and use it. I love to help people, empower and to try and be objective which is an important process.

I like people for their raw energy, honesty, humility and empathy and I as people must and try to give them something back.

Paul Isaacs 2020


In The Last Ten Years

Looking Back

The last ten years have been very intersting in 2009 I was recently out of the Mental Health Services with two personality disorders, auditory hallucinations and psychosis, I was self harming and attempted suicide.

Early Infancy

By clinical observations I was serverely autistic, I was profoundly meaning deaf, meaning blind, body disconnected, oral apraxic and didn’t gain functional speech till later in infancy. I was and am thankful to my parents who had no means of any interventions (in the late 80s many were dated).

In 2010 I was diagnosed with autism and OCD and my speaking career started off in which I went freelance in 2015.

“Standards of Success”

By “non-autistic” standards I “made it” in many ways I suppose. I was considered “retarded” by the village I lived in and was targeted and bullied by the children and adults till my mid-teens.

Education

I was targeted and bullied at school from primary to secondary when I finally left in 2002 (with an isolated incident of sexual abuse) in the latter.

I went on to do an ICT coursecfor a year and had the greatest experience of my life from and educational perspective it proved I could be educated.

Bullying and Employment

The bullying in employment started in 2002/3 so multiple jobs were lost and gained.

I was thankful to the autism base in Chinnor in around 2008/9 for supporting me as well as the start of my speaking career in 2010. Over that period of time I wrote and authored 5 books.

The bullying in employment stopped in 2015 when I went freelance and started working for My World.

This is longest time in employment that I have been safe, comfortable and seen as a part of the team.

I Am A Person-First

People wonder why I use “person-first language” this is why because I do not want to be defined by a “label”. I do not like serperatist “them and us, us and them” rhetoric we (as beings) are all a part of the human race

From 2013 onwards to now I am pleased to have met some of the most wonderful and friendly people in both my personal and professional life.

Love and Life

I lost my Gramp in March 2017 due to metatastic prostate cancer, one of my dearest friends and mentors Polly (Donna Williams) in April that year also to metatastic breast cancer and my Nan in December 2019 due to pneumonia. I shall always cherish my fondest memories of them.

I almost lost my Dad in 2011 due to chronic lymphocytic leukemia and then meningitis in 2018 as well as my Mum in May 2019 due to a complex thrombotic disease.

Creative Mindsets

I have had great fun dabbling in art, poetry and what I call “insta-modelling” in which to my surprise and support from my friends up north has been rather enjoyable!

I have been interested in androgyny for many years prior and have been told I look as such.

One of things I can do well is pluck my eyebrows which I consider an achievement as much as anything else! 😉

Conclusion

So look beyond what is here, look beyond what is heard, what is seen, what is touched and sense people because every cherished little person is special and of equal valor and humility in this world.

Paul Isaacs 2020


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Donna Williams’ Autism Fruit Salad – Bridging the Medical and Social Model of Disability

When Donna published “Autism: The Inside Out Approach” in 1996 it was the beginning of a trail-blazing analogy which would look at autism from the factual, compassionate and directional angle.

Looking Outside The Box

It would ditch rhetoric, confirmation bias and group think it would challenge people views (rightly or wrongly) about autism as a singular condition but look at it through the lens as a multi-faceted condition in which the person has their own unique “pieces” which would present differently from person to person.

Setting A Fluid Framework

She quite rightly humanised medical conditions that present themselves as apart of someones autism such as visual perceptual disorders such as faceblindness, simultagnosia and semantic agnosia and expand on the themes of context blindness in pragmatic but emotionally binding way.

Breaking The “Status Quo”

She would advocate for people who had severe apraxia and aphasia as a part of their autism and would need facilitated communication and assisted communication tools. She would advocate for people who struggled with ABA programs which triggered exposure anxiety.

She would challenge the status quo of “all people with autism think in pictures” or “all people with autism are logical literal thinkers”. She would advocate for people with health conditions as a part of their autism.

Equalism

She would quite rightfully not tolerate internalised bigotry within the autism world and would promote a heart warming and expanding message of egalitarianism in which means equality for all which is not just said but put into practice in a person’s daily life.

Let her videos, blogs and books inform you and empower you for in the end what she wanted out of you was to the be the best version of yourself.

Paul Isaacs 2019


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Androgyny & Male Feminity

Gender conforms nothing to me since my teens I knew I was effeminate and what sort of bigotry around chasms of narrow passed down thoughts that being “feminine” is some how the negative “ying” to the positive “yang” of being “a man” in the context of denying your own weeping tear ducts and inner feeling states.

I am probably more happy now that I can have a matured head on my shoulders that I can take the assured nature of experience and use it now.

Paul Isaacs 2019