Paul Isaacs' Blog

Autism from the inside


Leave a comment

What is Achievement?

2016-09-01 14.23.55

 

Do you judge achievement by the vastness of comparisons or by the person cantered nature of what has been achieved? I have not married nor have I the desired to have children. I ask how is my life welling up with fullness and ethereal walkings amongst the populous of humanity? Because I am comfortable in the roads, paths and darkly forests that tread beneath my feet. I think “achievement” is not what, if or how it’s the reason and honest virtues behind them that make them special and worthy.

Paul Isaacs 2017

Advertisements


Leave a comment

A Humanistic Psychological Approach To Autism

maslow's hierarchy of needs five stage pyramide

 

Humanistic, humanism and humanist are terms in psychology relating to an approach which studies the whole person, and the uniqueness of each individual.  Essentially, these terms refer the same approach in psychology.

Humanism is a psychological perspective that emphasizes the study of the whole person. Humanistic psychologists look at human behavior not only through the eyes of the observer, but through the eyes of the person doing the behaving.

McLeod, S. A. (2015). Humanism. Retrieved from http://www.simplypsychology.org/humanistic.html

Looking at whole person means you look at every aspect of the person and how what is going on lets look at this in the context of autism

  • The Environment (social connections, relationships, friendships)
  • Personality (development of personality, traits, types and “disordered extremes” which also connects with communication styles, wants, needs, desires, aspirations etc)
  • Education (types of learning, style of learning, solitary, social, mixed)
  • Information processing (delayed, mixed, information overload)
  • Language processing (literal, aphasia, semantic pragmatic disorder)
  • Sensory integration (over or under processing/integration of sensory input)
  • Sensory perceptional (face-blindness, meaning blindness, object blind and other associated perceptual disorders) 
  • Emotional regulation and perception
  • Mental Health (mood disorders, attachment disorders, dissociative disorders, impulse control disorders, psychosis)
  • Identity (male, female, non-binary, hertrosexual, homosexual, bisexual, asexual etc) 
  • Co-dependency (dependant personality, passive-aggressive personality and attachment) 
  • Dietary Disabilities (food intolerances, food allergies, chemical imbalances)  
  • Metabolic disorders
  • Auto-immune disorders
  • Seizure Disorders

Holistic Psychology

Holism refers to any approach that emphasizes the whole rather than their constituent parts. In other words ‘the whole is greater than the sum of its parts’. Qualitative methods of the humanistic approach reflect a holistic position. Social psychology also takes a holistic view.

A holistic approach therefore suggests that there are different levels of explanation and that at each level there are “emergent properties” that cannot be reduced to the one below.

Reductionist explanations, which might work in some circumstances, are considered inappropriate to the study of human subjectivity because here the emergent property that we have to take account of is that of the “whole person”.  Otherwise it makes no sense to try to understand the meaning of anything that anybody might do.

McLeod, S. A. (2008). Reductionism and Holism. Retrieved from http://www.simplypsychology.org/reductionism-holism.html

I would say with working in the autism field for over seven years you must look at all the factors and how the interact with EACH OTHER such as personality development for example will dictate how  people react and however the underpinnings are to do with biological, psychological and environmental factors.

All Voices are Equal

All voices and perceptions are equal and that means that differing realities, perceptions and knowledge has to be taking into account so that can be. There should be no “them vs us” or segregation burns far too many bridges. This can be from differing realities such as neurobiology, auto-immunity and metabolic disorders, dietary needs and many more.

Listening, Empathy and Autonomy

Self-worth, self-esteem, self-perception are to do with how we feel about ourselves in relation to others and how other’s feel in relation to you here are simple aspects of that.

congruence

  • Trust (Building stable, balanced and honest friendships and/or relationships)
  • Empathy (Showing genuine kindness, assertion and care which is balanced, contextual and meaningful)
  • Listening (Acknowledging the person as a human being first through listening to their wants, needs, desires and aspirations) 
  • Being Non-authoritarian and egalitarian (Show through example, intention and meaning that being equal is the standard stetter nothing more or less)
  • Allow for growth and developmental, psychological and environmental changes  (Change is good it can be progressive, assertive, connective, inspiring and fun)
  • Everybody is a person (Be non-judgmental, objective and constructive the key for allowing growth is to see the person first) 

 

Fruit Salad 2017

 

What makes each person with autism so different from each other?  How do you learn to ‘speak autistic’?  What are the low cost and no cost strategies to help people with autism manage their own particular collection of challenges?

Published in 2005, The Jumbled Jigsaw is an easy to read, ‘quick dip’ self help manual on the ‘Fruit Salad’ model of and approach to the navigation and management of autism.  It exposes autism spectrum disorders (ASDs) not as single entities but as a combination of a whole range of often untreated, sometimes easily treatable, underlying conditions. Exploring everything from mood, anxiety, obsessive-compulsive and tic disorders to information processing and sensory perceptual difficulties, including dependency issues, identity problems and much more, it demonstrates how a number of such conditions can combine to form a ‘cluster condition’ and underpin the label ‘autism spectrum disorder.  Most importantly it gives case study examples and clear strategies for management of each piece of autism spectrum ‘fruit salad’.

Donna Williams 2005

My Conclusion is that looking at the “bigger picture”, “the whole person” and the interacting components form an “inside-out” perspective means that you can potentially enrich and EMPOWER people live giving the them the building blocks to make choices, self-assertion, independence and self-worth.

Paul Isaacs 2017

 


Leave a comment

Autism -The Three Stages of Empowerment

Autism “Fruit Salads”(© Donna Williams 1995/2005/2014)

This is bottom to top analogy which implements all aspects of what could be in a person’s “autism fruit salad” to start off with the foundation is to understand the mechanics of what is within a person’s “autisms” (rather than autism). By looking at this we can separate it into these aspects.

  • Communication profile
  • Social-emotional profile
  • Emotional processing profile
  • Sensory Integration profile
  • Sensory Perceptual profile
  • Receptive Language profile
  • Expressive Language profile
  • Motor-coordination profile
  • Dietary profile
  • Auto-immune disorders profile
  • Learning styles profile
  • Personality types profile
  • Identity profile
  • Co-conditions profile

Interventions

These will be tailored to the specific needs of person’s profile/profiles looking holistically as well as professional for empowerment, guidance, social support, emotional support and/or any aspect of the person “autisms” that is within the mix. For example you could have someone who has exposure anxiety and dislikes direct confrontation and prefers an indirectly confrontational approach, is profoundly meaning deaf and aphasic. Think how you would build up that person’s profile and empower them?

An example

  • Gestural language
  • Aiding Mentalising by building up meaning and association
  • Being a follower not a leader or an expectant doer
  • Leave them wanting more and giving positive affirmations

Solutions

They will come in many forms as they marriage of each step relies on the one previous with regards to the “final step” this will be looking at what is working, aiding and empowering the person, their families, guardians etc. This could be put in an report or functional document for educational and professional services to have or it could be used as an information pack for friends and family the choice is yours.

Remember autism is not ONE THING it is a CLUSTERING of pre-existing conditions within one PERSON and that is the thing to realise that one person’s reality does not mean that is representational of all because that would mean a lot voices and realities would be left unheard it is time to change the landscape and starts with being open minded.

Paul Isaacs 2017


Leave a comment

When A Puppet Is On A String It’s Time To Cut It

Three Faces“Autism” has politics too

“Autism” I have wrote many blogs about the the differing presentations, the fact that it is isn’t one thing a  singular syndrome that features the same static 2 dimensional traits that is certainly what it is not.

Confusion because of the “status quo?”

When stereotypes emerge people can feel that their voices, perspectives and realities may well be a bone of contention for the “status quo” model.

Having that readily supplied to them they may be confused, bewildered, angry, upset, saddened that that what they are hearing doesn’t relate to them, their child, friend or family member because the “status quo” supplies them with “the model”, “the framework”, “the thing” that autism is (of course it isn’t but the is the supply).

What is “in” today will be “out” tomorrow

If you have felt any of these theses things I bring a hopeful and proactive realisation let it go, let it go of the stereotypes, let it go of the the generic models around autism, let it go of the popular fads – go with what is right, what is true and what what is really for you.

Paul Isaacs 2016


2 Comments

Mental Health: Reflections Of Moving On From Negative Environments

ShortsNote: This is from a personal perspective

Negative environments

Negative environments can leave “hidden difficulties” that become about to the mix of things that may not of been there when the person entered them. Mental health is tempestuous subject in itself but looking after one’s own mental health and being aware of the “warning signs” of mental health issues can be a very difficult one to acknowledge and accept that is happening.

Slow escalation of events

Sometimes events can slowly build up from behaviours of others, this may have a slow gradient like effect that initially may seem quite “mild” in the sense that the overall impact is small and may well be just secluded to the event which happened and the person is able to get on with their day with no trouble at all.

Sometimes “resolve” doesn’t come in the form you expect

What if that situation lacks resolve but you yourself want a resolve? What is the situation is being mishandled? And you yourself want it to be handled correctly?

With a moral compass for feelings to not only be acknowledged but to withhold a balanced and healthy level of objectivity.

If those basic foundations aren’t in place for whatever reason and you feel trapped and/or obliged to keep going, there is going to be a tipping point and decision making that needs to be addressed, surely for the benefit of the parties involved.

Let go of the situation and the people within it

My reflections are only from a personal perspective on whence they happened but I believe that one of the primary mistakes that were made by me was to keep staying for the long term – I know why I did. It was primary because I didn’t want to leave; it made me feel uncomfortable for the future and what that meant in the long term.

Positivity and new experiences are valued

When I left the situation my mental health improved gradually to a point where my mental health was on an even keel and was not impacted by mood disorders, emotional regulation problems, clinical depression, and personality disorders. The “invisible chains” that had shackled me where gone I had gained a level of control, autonomy, roundedness with the ability to look back not in shame, self-pity but that a lesson was learned.

Paul Isaacs 2016


Leave a comment

Autism Interview #8: Paul Isaacs on Personhood and “Autistic Identity”

Jenna GensicMany Thanks to Jenna Gensic for conducting this interview with me and others – please checkout Jenna’s page Learn From Autistics -Connecting Parents and Caregivers with Autistic Voices

Paul Isaacs is an autism advocate, trainer, and public speaker from England. He says that public speaking about his experiences and the experiences of others has helped him find his voice and develop a true skill. He always emphasizes the positive aspects of how life can be lived with autism. He uses the acronym PEC to describe the qualities people who work with autism should have: Positivity, Empathy, and Compassion. He is also a published author and blogs at Autism from the Inside.
In your most recent blog post, you discussed your dislike of the tendency to attribute someone’s neurology to their entire identity or personhood. However, there are many other autistic self-advocates who insist that this premise is important for improving the treatment of people with disabilities. What advice do you have for parents who are trying to help empower their children with the skills and confidence to be successful and are receiving conflicting information from autistic self-advocates in this area?

I would say that being born a human being first should be seen. Every person on this planet is a human being regardless of ability, disability, race and gender. Understanding the “autism” is very person specific, environmentally specific and situational specific – these different “pieces” which make up the autism have their own unique presentation, and also the way in which the person is affected will differ not only due to the “pieces” and their trajectory, but what the “pieces” are in the first place. It is like being a detective, searching out what works and what doesn’t are both equally important.

With regards to my identity, I see myself as a person and a part of humanity, so therefore I am a person first – personally, my autism affects my visual and auditory perception, language processing, cognitive processing, learning difficulties, etc, but these are PART of me, not the totality of my BEING .

I have personality traits (which everybody has regardless of autism or not) which make me happy, silly, draw, sketch, meet up with people, etc. These are human things which I value. I am not ashamed of my autism, but I don’t glamourise it either. I keep a balanced, open-mind. I can only speak for myself (how autism affects me). No one can speak for ALL, so, in that sense, people can learn from different perspectives and realities.

You were diagnosed at a relatively late age even though you exhibited clear signs of autism when you were young. What do you think was the main reason for this delay? Have you seen evidence of this still occurring today or has autism awareness reached new heights such that this sort of situation will likely never happen again?
I was born in 1986 and although there were specialist autism bases around my area, my autism wasn’t picked up due to circumstantial insistences. I was seen by an educational psychologist in 1993 and was seen by a child and adolescent mental health team in 1996 and an adult mental health services in 2007 and 2008 before I was formally diagnosed in 2010.
I would say it was not anybody’s fault as no information was given to my parents during my time in mainstream education. When I was in secondary school (I gained functional speech between the ages of 7/8), there where several meetings with my head, as well as the latter years of primary school. However, there was an autism base at the secondary school, and I would speak with the students and even attend lunchtime meetings and eat with them.
My Mum though I was solely brain damaged due to the placental abruption and lack of oxygen when I was born and that was the only name she had for my “behaviours,” but she had no doubt that I was a person before any of these difficulties.
What are you asked to speak about most often?

Sensory perceptional and language processing seems to be the one I get asked to do; however, on my booking page I have slowly built up other areas and topics.

What mistakes do autism advocates make?

Getting over-invested in the autism “politics” this where “identity” can become in crisis, and mental health can breakdown. I am talking through observations and also experiencing it myself – Donna Williams an advocate, speaker, consultant and author on the spectrum gave me some sage advice, and that is to take a step back, regain healthy boundaries, find yourself and do socially binding things.

Autism politics can get rather unhealthy to be a part of, there can be militancy by people on an off the autism spectrum that can be rather distressing and uncomfortable to be a part of. My personal opinion is that everybody has a story and that their realities are just as valid as anyone else’s – there should not be a single representation, but a more egalitarian outlook where all person hoods and realities are taken into account. It is my opinion that autism isn’t culture, but a “culture” has been created around autism.

Describe some of the factors that have contributed to the personal and professional success you have achieved today.

My parents have helped me a lot over the years on both a personal and professional level – it started with boundaries, right and wrong, having a moral compass, seeing “failure” as normal and therefore accepted, seeing me as “Paul” first, a boy, a teenager, an adult, and letting me experience the outside world and all that it entails.

What are some of the strengths and challenges you’ve experienced as a result of being on the spectrum?

I still have problems with language processing, visual perception (faces, objects, people), visual distortions (foreground, background), under-processing on my right side (motor and visual), sensory integration, movement, processing “self” and “other” – being mono-tracked and seeing the significance of what is being said and what is happening (life skills have helped so much in this area) and learning difficulties.

I don’t know if my strengths are autie-specific. I do enjoy writing poetry, creating abstract artwork, and writing books. I like creating things, watching movies, and I also like alternate fashion.

What advice do you have for parents of autistic children who respect the knowledge and experience of autistic self-advocates and are looking for guidance in helping their children develop their potentials?

Go with the child on their journey. It will be different for each person – see them as your child first, understand the pieces of their “autism,” and work from there. Let the child experience life.

Jenna Gensic & Paul Isaacs 2015


Leave a comment

Bucks Autism Conference Video 2015

Note – These are from personal and obervational perspectives

Sensory Issues in the context of Autism Bucks Autism Conference

This video is about covers these topics

 

Paul Isaacs 2015