Paul Isaacs' Blog

Autism from the inside


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What Is It To Be Truly Balanced? An Internal Process That Will Change Future Relationships, Core Beliefs & Attachment

Note- This A Personal Perspective & Observations

It’s interesting to me I have been thinking today about what makes “true happiness” or being content? Being loved? Love starts and ends with you, self love in terms of not looking for others to fix you and indeed be fixed. If one is there connected self then us no need for you to find anything as it all resides within you. Regardless of your surroundings – family, friends, children etc.Then once those seeds have been sown you can be fruitful friendships, relationships that are connected you know and feel their energy.

Some people aren’t ready to know that their conscious and unconscious minds, perceptions, core beliefs can have a deep reaction to unresolved trauma (this is about introspection, objection and taking ownership and responsibility) they may get angry, upset, dismissive, dissociative, become impulsive or go back to threads of thinking that confirm otherwise – this is a defence, I choose not to take it personally.

AUT-Tisitc Personality Disorders

  • Someone who is Schizoid may become inverted and detached
  • Someone who is Obsessive-Compulsive may want order, structure and control
  • Someone whom is Schizotypal may become more inverted and paranoid

Self based Personality Disorders

  • Someone who is who is Borderline may have bouts of emotional dysregulation due to feelings of emptiness
  • Someone who is Dependent may yearn and be submissive/or monopolise to their caregiver
  • Someone who is Passive-Aggressive may be angered by their and feel the world is against them
  • Someone who is Narcissistic may want revenge and delude themselves with grandiose thoughts

In the end these people need and open-minded and autonomous person whom can give them the space to work through there own challenges.

Understanding “Self” May Not Easy – The Road To Balance

You do not and cannot be in people’s shoes all the time, you may give them tools, balanced advice or nothing at all. However true connection you can ask for them to experience whoever they are – wish them peace and clarity.Here are mine – I know their origins and through that you work with the systems through rationalisation.

  • I would dissociate from interpretive language due to being profoundly meaning deaf during infancy
  • Body dysmorphia with regards due to circumcision and not processing operation and inappropriate incident in with children in my early infancy. This has extended to other parts of my body.
  • I have an ongoing binge eating disorder due to gratification of over eating (being encouraged, validation and “normalised”) and this is in relation to emotional dysregulation and impulse control in mid late infancy.
  • For many years I had emetophobia (fear of vomiting) which started when I vomited on the house carpet in house after having orange juice in infancy. It was resolved in my late teens.
  • I have at times a subconscious reaction to certain words/phraseology – this is now largely resolved as was due to a isolated incident with a teacher at Primary School.
  • I have had Shy Bowel and Bladder Syndrome due to having the toilet door kicked in when I was infant at school in mid infancy.
  • I pick my hair which is related to impulse control (dermatillomania) because it was a relaxing/comforting experience when my Mum picked scabs from my hair when I had chicken pox in mid late infancy.

Knowing the origins of different aspects of oneself can be a road that may be filled with fear and uncertainty but it could well be a release from the shackles of the past.

Paul Isaacs 2021


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Autism Bucks Workshop – Coping With Death & Loss

This is the fifth workshop presentation is about autism and coping with death and loss.

Further Information & Reading

Autism, Emotions, Attachment and Borderline Personality Disorder

Language Of Death

Paul Isaacs 2021


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White Privilege Is A Fact Not A Fiction

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Definition Of White Privilege

Accepting white privilege is not enough, acknowledging it is not enough, saying racism happens with indifference and apathy is not enough.

the fact of people with white skin having advantages in society that other people do not have:
Jane Elliot On Making People Aware Of Racism 

Apathy, Indifference & Ignorance

Acts of apathy and indifference is compounding the problem can imagine being told your reality was not “real”? Or that your reality was something that “just happened” and was met with almost chronic indifference from a social and systematic perspective?

The British Empire Was Driven By Racist Ideology

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White privilege is happening and it’s warped hierarchy has been happening for well over 400 years, when the British Empire stole land, resettled and uprooted the gears of this machine did start to turn.

It is irresponsible and insufficient to view the separation of family units in the Caribbean through a lens that ignores the massive legacy of slavery – which is how most those families came to live there in the first place – and its relationship with the Commonwealth.

Kemi Alemoru – It’s Time Britain Confronted It’s Racist & Oppresive Past, No Half-Truths Blog 2018

Changing Facts To Fit Narratives? 

It’s seeped into our “British Culture” as “normal”, in education, in employment, in media, in books and in movies etc.

“Before, people had to hide their racism. If you felt something bad about about black people, about Muslims, you had to shut up. Now these people have the confidence to come out in public to say everything. This is scary to me, that scares the shit out of me.”

Stormzy – Musician – The Guardian Article 2019 UK is ‘definitely racist’ an 

It’s time for white people to know what is happening from the other side, not just acknowledge as a point of interest

No person’s reality should traded as insignificant to another’s.

Paul Isaacs 2020


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Why Are People Disconnected From Certain Emotional States?

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Culture of Conditioning 

Westernised society has conditioned many people to be enraptured by the such emotional rigidity, as to the falseness of how such perceived “negative emotions” and “positive emotions” are handled with.

“Faux Emotional” Responses & Polarising Negative/Positive Thought Patterns 

Smiles and joy are not painted on and should never be supplied as a shallow coping mechanism for darkly thought-scapes, that means you will never understand the lessons of both true sadness and happiness, they both exist to give each other meaning and clarity.

It you are disconnected from BOTH you will never get the timely validity of either.

I have noted that some of my expressions of sadness and melancholy have confused or even upset, however these emotions just “are” they are neither “good or bad”, “right or wrong” they are a human EMOTION to be explored.

Conclusion

Feel things without the threat of judgement. Or put up cladding that in the end distances you further from yourself and other people.

Paul Isaacs 2020


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Autism, Information Processing and Coronavirus

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Note – This is from a personal perspective 

Alexithymia & Emotional Processing 

Not knowing one’s own emotional states means that I struggle to connect my conscious and unconscious mind, incoming information doesn’t filter into a connected thought, feeling and inner response which is marrying up with my inner states.

Visual Perceptual Disorders, Aphantasia & Mentalising 

Aphantasia is a condition where one does not possess a functioning mind’s eye and cannot voluntarily visualize imagery.[1] The phenomenon was first described by Francis Galton in 1880[2] but has since remained largely unstudied. Interest in the phenomenon renewed after the publication of a study in 2015 conducted by a team led by Professor Adam Zeman of the University of Exeter,[3] which also coined the term aphantasia.[4] Research on the condition is still scarce.[5][6]

Visual learning is the most common form of accessing the information around you, I cannot  retrieve visual information and I do not have a “visual mind’s eye” this is called aphantasia. The aspects that I struggle with are visual fragmentation and simultagnosia (object blindness) and a residual level of semantic agnosia (meaning blindness). So watching the news and making visual-verbal connections takes time for me to access and apply meaning with my system which is largely kinesthetic in nature.

Tactile – Associative Synesthesia & Building Frameworks

There are many different types of synesthesia, but they may be categorized as falling into one of two groups: associative synesthesia and projective synesthesia. An associate feels a connection between a stimulus and a sense, while a projector actually sees, hears, feels, smells, or tastes a stimulation. For example, an associator might hear a violin and strongly associate it with the color blue, while a projector might hear a violin and see the color blue projected in space as if it were a physical object.

The way in which I build up frameworks is always on an emotive level I am unaware of my feelings from moment to moment, so I have to EXTERNALISE unconsciously in to text which can be creative in content, emotive and introspective and/or art work which can be abstract an metaphorical in representation. I am not a literal, logical processor of information and I do not have social emotional agnosia  that comes from disconnection of right hemisphere. So INTERNALISATION  comes from the marriage creative process as opposed to overtly factual and linear ones.

Aphasia & Language Processing 

Currently I am around 30 percent meaning deaf which means I can take in large amounts of information for a a short period of time, however I may begin to be flooded with a vast a array of language in which my mind cannot keep up with, it becomes distorted and slowly meaningless, so managing my time and input is crucial.

Conclusion

It is best for people to understand their own autism “fruit salad” and what works for them during times of great uncertainty and distress, build up a level of self-awareness or have someone around you that healthily acknowledges your challenges but still retains the autonomy and respect of seeing you as person.

Paul Isaacs 2020

 


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Autism, Mentalising, Alexithymia & Introspection

Note – This is from a personal perspective

Language Processing, Alexithymia, Visual Perception and Mentalising

As a child I was unable to process language with meaning this meant that the ability marry words with association, then the ability to reason those words into a meta-reality (context and how they “looked”). I was severely face blind, object blind and meaning blind this meant the inability to visual internally my external world meant that I had to use my body to EXTERNALISE to INTERNALISE in other words I mapped out my world through placement, smell, texture, movement and taste.

Body Disconnection, Exposure Anxiety and Dissociation

I was unable to map out my own body, its parts, their placement in association with me or the outside world so I had a level of body agnosias which meant my body with FRAGMENTED as well as my vision and internalisation of receptive language. My conscious mind was seemingly blank as I subconsciously took in the information around me in but was unable to consciously piece it together despite the fact is was near hiding in plain site, akin to playing smoke and mirrors but with my own self.

Exposure anxiety rendered me powerless when confronted with “self” the awareness of my own self existence was too powerful for me to handle. So I disassociated, created characters (each assigned duties, personality types, communication styles) to handle the task of being exposed, mutism, echolalic litanies (once functional speech was acquired).

However I seemed to retain the ability to have introspection, the system of sensing still means I FEEL first and then have to unpick the interpretation secound.
The Self and Other Paradox

Fast track to know I had an experience in which I got to that level which I have described bearing in mind this had not happened in roughly 23 Years! It was shock was unable to do a shared self and other (which can last up to two hours plus), language was losing meaning, visuals where fragmenting (I made error of taking my tints off) and I was feeling detached coming out with stock phrases and it made me think about how I was then

So with help, kindness and assistance of friends and colleagues I was able to map and piece together my emotional states through three videos.
Loss

This video signifies loss that the emotional roller-coaster of meeting loss head on, the process of emotion, the realisation, the impact it has on you and other around them and the great sense of vulnerability that comes with it.

Light and Hope

This video is more metaphor and symbolical in its reverence with me the smoke that plums as he enters the arena is has a great impact on me as it represents hope through the darkness, as he walks to the ring a single light envelopes him which for me feels that light can be achieved in times of such darkness, the creating of light towards end is hope.

This Detachment of Self and Other

The final video to me represents my sometimes lack of ability to get a shared sense of “self and other” and “shared social” in which my conscious thoughts are not married up straight away with other and vise versa, when I LOSE the ability to keep the process becomes mechanical, artificial the automata represents this aspect and also ALL SELF and Casanova represents ALL OTHER .

Paul Isaacs 2020


Is Bullying “Normal”?

Here is an interesting observation, many people who bullied me at school and during my time in education I have heard have always said they “observed” the acts never instigated implying overtly they were witness’ not people to take part in the act.

Let’s be frank you did on a daily basis commenting on my appearance.

  1. How I talked
  2. How I walked
  3. My weight
  4. My lack of friends
  5. My lack of intelligence
  6. My emotions
  7. My parents, my grandparents
  8. My social status.

This would happen at class, during breaks/lunchtime, waiting for transport home/during transport and at the place were I live from the ages of 5 to 16 years old.

This also included parents and teachers.

However just because I have made conscious and dedicated effort to see and take the good out of your actions, to not let them define me, to not be bitter or hold on to reductive actions of revenge or futile bitterness of the past that doesn’t not mean your acts were correct.

I can be objective and say it was your homelife, your sense of unfulfilment socially and/or academically, clashing of personality, the chemical imbalances that come with teenagehood, the peer pressure etc.

To which is true, however in terms of projection and hurt you flung on me was vile, cruel and cowardly you made me feel worthless and at multiple times I wanted to not live.

Bullying isn’t a “normal” part of growing up, it isn’t a right of passage, it isn’t a phase and the word itself trivialises the actions which is, psychological and/or physical abuse and projected trauma onto another human being.

I thank you for bestowing these actions on me because you gave me a framework how not to treat people, I understand a lot of you have families and children.

I hope you have matured and changed as you have grown and I sincerely wish your young one’s do not go through what I went through.

I refuse to be a victim of the past, for I do not want it to live in my future.

Paul Isaacs 2020


In The Last Ten Years

Looking Back

The last ten years have been very intersting in 2009 I was recently out of the Mental Health Services with two personality disorders, auditory hallucinations and psychosis, I was self harming and attempted suicide.

Early Infancy

By clinical observations I was serverely autistic, I was profoundly meaning deaf, meaning blind, body disconnected, oral apraxic and didn’t gain functional speech till later in infancy. I was and am thankful to my parents who had no means of any interventions (in the late 80s many were dated).

In 2010 I was diagnosed with autism and OCD and my speaking career started off in which I went freelance in 2015.

“Standards of Success”

By “non-autistic” standards I “made it” in many ways I suppose. I was considered “retarded” by the village I lived in and was targeted and bullied by the children and adults till my mid-teens.

Education

I was targeted and bullied at school from primary to secondary when I finally left in 2002 (with an isolated incident of sexual abuse) in the latter.

I went on to do an ICT coursecfor a year and had the greatest experience of my life from and educational perspective it proved I could be educated.

Bullying and Employment

The bullying in employment started in 2002/3 so multiple jobs were lost and gained.

I was thankful to the autism base in Chinnor in around 2008/9 for supporting me as well as the start of my speaking career in 2010. Over that period of time I wrote and authored 5 books.

The bullying in employment stopped in 2015 when I went freelance and started working for My World.

This is longest time in employment that I have been safe, comfortable and seen as a part of the team.

I Am A Person-First

People wonder why I use “person-first language” this is why because I do not want to be defined by a “label”. I do not like serperatist “them and us, us and them” rhetoric we (as beings) are all a part of the human race

From 2013 onwards to now I am pleased to have met some of the most wonderful and friendly people in both my personal and professional life.

Love and Life

I lost my Gramp in March 2017 due to metatastic prostate cancer, one of my dearest friends and mentors Polly (Donna Williams) in April that year also to metatastic breast cancer and my Nan in December 2019 due to pneumonia. I shall always cherish my fondest memories of them.

I almost lost my Dad in 2011 due to chronic lymphocytic leukemia and then meningitis in 2018 as well as my Mum in May 2019 due to a complex thrombotic disease.

Creative Mindsets

I have had great fun dabbling in art, poetry and what I call “insta-modelling” in which to my surprise and support from my friends up north has been rather enjoyable!

I have been interested in androgyny for many years prior and have been told I look as such.

One of things I can do well is pluck my eyebrows which I consider an achievement as much as anything else! 😉

Conclusion

So look beyond what is here, look beyond what is heard, what is seen, what is touched and sense people because every cherished little person is special and of equal valor and humility in this world.

Paul Isaacs 2020


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When The Clouds Move In

In the universe of the social media what does one put when someone is so low and depressed? Is it a false currency to type your feelings? Is it not correct to extract your thoughts onto a wider medium? Is it merely seen as a chance to get some sort of gratification or social supply from the amount of reactions and comments that come under your status?

I am depressed at the moment and the depression doesn’t seem to give me time to get grounded, its saps my energy, tailors my perceptions, distorts my mood and thought processes yet I still come out with a smile, a false sense of connecting, being in a room full of people and the walls come crashing in as the bleaked aloneness comes towards your words become ash, people become shadows and you wish to run away from the vessel you live in from day to day.

I have never since my teens felt such a state of melancholy, despair or detachment from the world around, pessimism rises from its tomb, nihilism jabs at my mind and hopelessness dominates as I plunder into the void once again. Maybe if I spoke up more about such feelings I would be privy to a listening ear? Maybe if I shed more tears I would get a sense of comfort from a friend? I know not what the future holds none of us do but at this moment in time the darkness follows me everywhere the omnipresence suffocates my soul and creativity.

Maybe all I want is for someone to see me as a human being, not a catalogue of facts about autism, maybe I would like someone to recognise my challenges and difficulties as I am made to understand theirs? Maybe I just want my perspective to acknowledged and validated regardless of it being right or wrong.

I do not like living a “half-life” between the void and the false pretence of happiness in my current state. If people think I am seeking a hollow sense of attention so be it but writing for me does extract the cusp of the matters, so I say to you if you feel down, low, depressed or otherwise please tell someone it may not sort out the root of the problem but it could be the start of doing so.

Paul Isaacs 2019