Paul Isaacs' Blog

Autism from the inside


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Looking At What “Autism Is” Is That The Future?

I have been is the autism “world” as a speaker, trainer and consultant for well over seven years, I do not pretend to know all the answers nor I do project or promote that I have them all I can only speak from first hand experience of myself and the others that have been involved in professional capacity.

A 3D Diagnosis For The Future?

I what would like to offer a foundation of empowerment not because I know best but to give people the opportunity to find out about their “autism” what is made up of and the “mechanics” that go with it. I have wrote and documented my autism the fact that is made of being brain injured at birth, speech and language delays, sensory agnosias, aphasia, apraxia the fact that I have dealt with mood, impulsive and anxiety disorders also.

The fact that being borderline made me emotionally unstable, struggled with boundaries and also being schizotypal made me odd, aloof and detached from people and at times society. These “elements” are all about of my “mix” and words not only for these “pieces” empower not only the person in question but the services they come into contact with also family and friends.

Fruit Salad 2017

 

Looking Deeper, Looking Forward, Education & Empowerment

I went through my autism “fruit salad” at an event recently and asked if the diagnosis had pointed out the specific pieces how would they have felt? Also would this model benefit them it was a conclusion yes because understanding autism on thing but understanding the pieces of their children’s autism was felt to be very important, helpful, empowering and overall was a beneficiary to the services that they would come in contact with. Giving them not just the word “autism” but what it meant for them specifically.

My Autism Fruit Salad 1 Updated 2017

Autism Fruit Salad 2 2017

Autism Fruit Salad 3 2017

Conclusion

“Autism” is not “one thing” it is specific to each person also people do not have an “autistic personality” exclusive although personality types like solitary, idiosyncratic and conscientious would look more “autistic” but are smaller elements in the overall mix. I do believe that a person’s autism is everything about them because human beings are made up much than one element.

You can get  “non-autistic” personality types the people that challenge the stereotypes who could be equally adventurous and mercurial in their ways. For 2017 lets look at this from a broader perspective and empower people with knowledge that is worthy of making a difference.

Paul Isaacs 2017


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The Importance of Recognising Personality Types In Autism

Note this is from a personal perspective

Personality types are just as relevant to in which a person behaviours and responds to the environment around them, this includes interaction, communication, lifestyle choices, interpersonal choices etc.

Personality Types A Mix & Match

We can break down these personality types into their basic forms. In example I will use three different personality variants (people can have to 4 to 6) however this will simplify the point in question.

Personality Types in Autism 2017 Image

Personality Types Are Valid 

People on the autism spectrum will have personality types within their “autism fruit salad” like all other human beings people have overlapping personality types which can be fluid or concrete, complex or refined, narrow or lengthy which will be dictated by genetics and the environment they are in. They can also spill over into “disordered” extremes.

Is “Autism” All Of A Person? 

 I think that the main factor that gets missed in the overall ensemble when looking at ASD is personality traits/types. To define one’s whole neurology as one’s “self” ego-syntonic were as I see my neurology in terms of autism as part of “self” not the overall picture “ego-dystonic”.

This would surely help professionals, parents, guardians and people on the autism spectrum? To know that part of being a human is to do with the development of these aspects to?

“Autism” It Is Apart Of The Mix Not The Defining Factor 

To put in honestly that fact that I am face-blind isn’t “me” it is just how I processing faces, the fact that have simultagnosia as see in pieces isn’t “me” but is how I process visual information, the fact that I am aphasic and meaning deaf and struggle at times process the words being spoken to me isn’t “me” but is how I deal with receptive language they are part of the package, the fact that I struggle to do simultaneous “self and other” isn’t “me” but it means I need time to gauge and internalise information is again part of the package .

They come along for the ride and my personality types will dictate how I cope, manage and productively find an outcome for these different processing issues I have. If someone isn’t seen as person first then what are they?

Paul Isaacs 2017


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Autism -The Three Stages of Empowerment

Autism “Fruit Salads”(© Donna Williams 1995/2005/2014)

This is bottom to top analogy which implements all aspects of what could be in a person’s “autism fruit salad” to start off with the foundation is to understand the mechanics of what is within a person’s “autisms” (rather than autism). By looking at this we can separate it into these aspects.

  • Communication profile
  • Social-emotional profile
  • Emotional processing profile
  • Sensory Integration profile
  • Sensory Perceptual profile
  • Receptive Language profile
  • Expressive Language profile
  • Motor-coordination profile
  • Dietary profile
  • Auto-immune disorders profile
  • Learning styles profile
  • Personality types profile
  • Identity profile
  • Co-conditions profile

Interventions

These will be tailored to the specific needs of person’s profile/profiles looking holistically as well as professional for empowerment, guidance, social support, emotional support and/or any aspect of the person “autisms” that is within the mix. For example you could have someone who has exposure anxiety and dislikes direct confrontation and prefers an indirectly confrontational approach, is profoundly meaning deaf and aphasic. Think how you would build up that person’s profile and empower them?

An example

  • Gestural language
  • Aiding Mentalising by building up meaning and association
  • Being a follower not a leader or an expectant doer
  • Leave them wanting more and giving positive affirmations

Solutions

They will come in many forms as they marriage of each step relies on the one previous with regards to the “final step” this will be looking at what is working, aiding and empowering the person, their families, guardians etc. This could be put in an report or functional document for educational and professional services to have or it could be used as an information pack for friends and family the choice is yours.

Remember autism is not ONE THING it is a CLUSTERING of pre-existing conditions within one PERSON and that is the thing to realise that one person’s reality does not mean that is representational of all because that would mean a lot voices and realities would be left unheard it is time to change the landscape and starts with being open minded.

Paul Isaacs 2017


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Paul Isaacs: Living Through the Haze 2nd Edition Review By Dr. Manuel Casanova 

 

Paul Isaacs’ book, “Living Through the Haze”, has been published (second edition). The book has new content, a new introduction and an afterword that I wrote. Paul was diagnosed as autistic in 2010. As a child Paul was considered to be a “naughty child” with no prospects for a future. At present Paul is a lecturer, trainer and consultant who promotes autism awareness throughout the UK. In the following paragraphs I provide the afterword that I wrote for “Living Through the Haze”:

Many times during his life Paul felt confused and detached from his surroundings. His attention could only focus on one aspect of his sensory experience. He lived his life as if wearing blinders, and as such, he could not react adequately to what people asked of him at home, at school or at work. His perceptual style made him seem odd to his peers. Parents, teachers and peers objectivised and bullied him.  In the end the reader can only wonder, how did Paul survive?

For many autistic individuals the environment overwhelms their nervous system with information.  Seeing a face is like looking at the sun. Blinking, when looking at the sun, is a response aimed at avoiding damage to your eyes by allowing only a sliver of sunrays to hit your retina. In autistic individuals, allowing only a sliver of available information into your brain is meant to protect it from overstimulation. Overall, autistic individuals can’t see the forest for the trees and it is easy for them to become thoroughly engrossed in the details of a particular situation but miss the larger picture.

Paul grew up displaying many of the classical symptoms of autism. Unfortunately, as is the case for many autistic individuals, his diagnosis came late in life.  Still, he prospered and found fulfillment in being a speaker, counselor and in helping others like him. In this book Paul publicizes his own plight with some of the darker aspects of autism. Through no fault of his own Paul was misunderstood and relentlessly bullied by even those who were supposed to protect him.  The psychological and physical aggression that he suffered is at the crux of a mixed mood disorder that at times has greatly handicapped him.

So we can ask again, how did Paul survive? In a longitudinal study sponsored by the NIMH on so-called recovered autism, it seems that the most salient commonality for those that “recovered” was caring parents who were quick to act on behalf of their children.  Paul in this regard was blessed with caring supportive parents and grandparents. He also found solace and purpose in a special education camp outside of school, which he called the “Autism Base”. There he found others like him living within a spectrum of severities. More importantly, within the Autism Base he found comradely and a social sense of togetherness.

Paul has not forgotten the painful experiences of the past but has learned from them.  Indeed, the excuses provided by the teachers who failed him are indelibly marked in his memory. He has a keen power for introspection.  His ability to self-reflect is one of the reasons why I believe that there is undue emphasis in the Theory of Mind conceptualization of autism. Paul was always keenly aware of his mental state and on occasion provides privileged access to the mental state of his parents.

This is a must read book for parents with autistic kids, especially if they are attending mainstream schools. The book is also a valuable aid to teachers. It portrays in a no holds barred way the effects of intimidation and the behavioral manifestations of bullying. Finally, Paul provides many constructive comments and guidelines as to how to improve the school system and teaches by example the positives of a supportive role by parents.

Source: Paul Isaacs: Living Through the Haze


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Autism, Processing Emotions & Alexithymia

autism-and-alexithymia-image-2017

Note this is from a personal perspective 

Alexithymia is a condition in which person cannot find words to express inner emotional feelings, now this doesn’t mean that the person is devoid or lacking in emotion however it can from a outside perspective look like that despite the inner mechanics being quite different.

FILTERING THROUGH EMOTIONS 

I shall give you a personal account of this and look at other potential factors. I have a processing and recognition delay of emotion feelings in the context of the event that has happened – in other words from the time the event has happened to the time I get a self response is delayed this can come in the form of

  • Words for the the bodily messages that I am feeling 
  • Being able to piece the situation together from a emotional standpoint
  • Talking and having a conversation about a situation that in real-time has long since past
  • Having raw emotions that through time, experience, awareness and age I am able to better filter them

As a teenager I would harm myself when these raw emotions would take hold like attacking one’s self for their own emotions because the person in question hasn’t yet pieced together they are coming from themselves this to me a that point in time a a paradox but a worthy one to working through.

OTHER FACTORS THAT COULD BE INVOLVED

Other factors would depend on the person’s autism profile and fruit salad that would have an impact on the presentation of alexithymia such as

  • Visual perceptual disorders and not having a visual memory to process people, situations, words and mentalise thoughts.
  • Language processing disorders such as aphasia and verbal auditory agnosia needing time to find and extract words that have inner meaning to the person.
  • Body disconnectivity and not sensing or perceiving their own bodily messages
  • Diet and food intolerances are undiagnosed food intolerances having an impact on their functioning?

Paul Isaacs 2017


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Autism Has Wider Palette Of Experiences & Presentations

autism-pyramid-updated-2017

A Human World to be lived 

I haven’t blogged for a long time and sometimes that is fine you need to recharge your batteries and focus on other things in life. I have since realised that I have been writing for sometime on a vast array of different subjects, topics and genres. That being said in the years I have been in the “autism world” However well a live in a human world.

Looking Inwards and forward

The overall motif and thinking has progressed on a personal and professional level this is through self awareness and the awareness of other realities, perspectives, opinions, agreements and disagreements which are all part of the melting pot.

To The Future and beyond 

Looking at the title maybe it is self-explanatory “a wider palette” means that a I feel one of the ways in which autism awareness can go forward is the reading, listening, talking and communication as many differing presentations as possible.

SEEING THE PIECES & HAVING SIGNPOSTS

To ditch the militancy and politics that is harming and taking away from needs to be done, to ditch unhelpful stereotypes and to a see autism as a “fruit salad” that will educate and empower so that all voices and realities can be heard and acknowledged.

This means that the correct interventions, advocacy and support can be made some of this can be from the family and friends, other community based services and others professional.

fruit-salad-model-2017

 Autism to Autisms Many Pieces Of The Whole….

With that being said how many areas of “functioning” regardless of presentation could be help if we saw autism and pieces that are specific to each person? So once those pieces have been discovered and found  out then meaningful interventions can resume tailored for them be it.

  • Communication
  • Personality Types 
  • Sensory Perceptual
  • Sensory Integration
  •  Dietary 
  • Auto-Immune
  • Learning Styles
  • Life Skills
  • & More

 

Paul Isaacs 2017


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Autism As A Fruit Salad By Donna Williams Book Review

AVAILABLE AS $5 E-BOOK

From 1995-2011 I worked with over 1000 people diagnosed on the autism spectrum. In order to best address the needs of children and adults with autism I needed to fathom what was being called or presumed ‘their autism’ and work out the underlying mechanics of each of these things.

The Autism As A Fruit Salad is a 37 page, interactive, comprehensive alphabetical 101.  The E-book form comes complete with hyperlinks on the vast collection of over 200 conditions that in combinations can collectively present as ‘autism’ or ‘parts of one’s autism’ (The signed paperback format doesn’t have the hyperlinks). In either format, Autism As A Fruit Salad should equip those living with and working with autism to move beyond the static 2D model of autism to a dynamic 3D model that goes beyond one-size-fits-all-approaches and gives you tools to tailor approaches to each person.

WHO IS IT FOR?

* Anyone wanting to understand what is involved any particular person’s ‘autism fruit salad’
* Parents, case managers, behaviour intervention staff, troubleshooters and people with autism looking to gain a clearer sense of what it actually presenting as ‘the autism

BOOK REVIEW

A comprehensive and rounded view of what “autism” is Donna Williams has opened up many people’s perspectives with her lectures, blogs and books around the subject of “autism” in many ways this is a sister book/sequel to her handbooks Autism: An Inside Out Approach (1996) & The Jumbled Jigsaw (2005).

It is structured in an easy read listed fashion with hyperlinks for each piece it also supplies hints and tips for people who want to find out their “pieces” too, the E-book edition supplies the reader with hyperlinks giving a personal and interactive style to the reader making accessible guideposts.

Donna supplies deep introspection as always in her knowledge and the essence of giving something back in many ways she build up a plethora of experience both personal, educational and practical in her years as a consultant this book  condenses it for the reader making it accessible for young and old, novice and veteran I highly recommend this book.

Paul Isaacs 2016