Paul Isaacs' Blog

Autism from the inside


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Autism & Asperger’s Syndrome and “Doing vs. Being”

When we some people look at Asperger’s Syndrome and Autism it can be used interchangeably as the “same thing” but a “different presentation” between the two. If we look a little (or a lot) deeper you can actually find that the differences lie in brain hemisphere dominance and neglect and all that comes with it.

Autistic’

Reliant on the mapping of pattern/theme/feel known as ’Sensing’, with intermittent use
of interpretative processing at the level of the literal
Mono tracked processing with moderate to severe information processing delay.
Indirectly Confrontational, self in relation to self

The struggle here is the use of switching between “being” and “doing” states this means that the person is going from a “sensing” state to an interpretive state.

Asperger’s’

Interpretative processing at the level of the literal intermittent processing
beyong the literal to the ’significant’,
Generally Mono tracked processing with mild information processing delay

Those with Exposure Anxiety are indirectly-confrontational and self in relation to
self. Others are able to manage directly confrontational other-initiated social
interaction but generally lack a simultaneous sense of self and other

The struggle here is the opposite the use switching between “doing” and “being” this means that although the person gets a level of “significance”  they may get “stuck” in a state of over thinking.

Exposure Anxiety is one of the three faces of “Autism”
Notes from a presentation by Donna Williams
At Flinders University, Friday Jan 16th 2004

Autism Doesn’t Run On”One” System

There is not one “system” in autism and that is part of the larger issue, by promoting tired stereotypes and linear 2D presentations of “collective autism” in which the person is assumed to think, act, react and behave in the same manner is rather passe and potentaily dangerous.

Looking deeper, being objective and opened minded to the varying presentations that both “Autism” and “Asperger” fruit salads supply as an adjective and a description can lead down to meaningful roads of empowerment.

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Paul Isaacs 2017

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Book Review Autism Decoded: The Cracks in the Code: Volume 1 By Stella Waterhouse

 

This books is a must read for parents, professionals and people on the autism spectrum 

Stella Waterhouse has been a professional in the field of autism since the 1970’s with a whole wealth information that taps into the very soul with resonance and deep thought, she clear has a passion for getting the knowledge out there by presenting different aspects in chapters with detailed and accessible writing.

From detailed historical elements of autism, professionals and advocates on the autism spectrum  written with eager candor, emotion and objectivity to the multi-faceted nature of autism broken  down into accessible  pieces.

  • Sensory Perceptual Disorders
  • Sensory Processing
  • Theory of Mind
  • Context Blindness
  • Language Processing
  • Exposure Anxiety 
  • Alexithymia
  • Personality Types
  • OCD, ADHD and other co-conditions
  • Short/Long Term Memory
  • System of “Sensing”
  • Facilitated Communication 
  • Left-Right Brain Functions & Brain Development 
  • Autism and Asperger’s Syndrome 
  • Savantism

The running theme in book contextual to the information based on the specific chapter is to give a human element that touches the reader, makes them think, reflect, perspective take, feel emotion and more.(with first person account and historical accounts).Woven with relative and  factual elements (such as the brain and nervous system) that broaden the palette and overall sphere of information giving rounded, objective and fluidity the runs from page to page.

This is a refreshing book that achieves the very title it was given looking beyond the stale and liner 2D nature of autism and opening up a broadening 3D perspective that will no doubt help generations to come. Highly recommended.

Paul Isaacs 2017

 


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“Doing” vs. “Being”

2017-03-29 17.18.04

 

“Doing” in its extreme form can consist of over-thinking, over worrying, over-analysing losing grounded functioning and not being pre-occupied with too many things at once denying at times what is right in front of you tentative steps to be taken in the overburdens mind that consist of unwanted thoughts that sometimes never let on to being silenced. I am sure that that wanting to be a “be-er” may consist of flattening thoughts.

“Being” in its extreme form can be pre-occupied with the moment feelings of floating, connection to the situation with yourself, having an inner world to eagerly retreat to that consists of many colours, patterns, shapes and shine being jolted into to “doing” and conscious thought may well be difficult but can be achieved.

None of these things are distraction or detraction of cognitive skills although quirky and paradox like presentations may resume.

Paul Isaacs 2017


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Wretches & Jabberers DVD – A Journey Into Autism

Image result for wretches and jabberers

A moving and delightful movie and about two men on the autism spectrum who are both “functionally non-verbal” finding their voices through facilitated and typed communication. Debunking the myths that people who cannot speak with their mouths are “retarded” or “intellectually disabled”.

Tracy and Larry are best of friends and their passion for advocacy leads them to meeting others around the globe who are also yearning and fondly sharing their experiences and voices with a wider audience, showing great empathy, compassion, introspection and deepness through the words that they write to a wider audience. Bringing people into their world and inviting others to think, reflect and reevaluate what “autism” and “intelligence” even look like.  Showing great feats of creativity.

There is warmth, humour, sadness and hope sometimes all at once when listening the candid words and hopefully the viewer will come out of this experience with greater level of acceptance and make less assumptions about what is going on on the “inside”. Please all presume competence.

I highly recommend this DVD.

Paul Isaacs 2017


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Autism As A Describer Not a Definer – Combating “Label Lust” and “Overidentification”

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I have been an autism and advocate for over seven years I have seen many autism “fruit salads” in my time some people with auto-immune problems, other with complex mental health issues, others who see their autism as a curse, others who see their autism as special and unique, others who identify as their whole being as “autistic” others who don’t. I have seen militancy and anger towards people who go against old rhetoric who propose realism as opposed to glamorisation, people should allowed to give their own perspective from different angles, perspectives and offering multiple realities. 

Differing Profiles

With all the the “pieces” I describe in my training sessions and/or presentations are “describing” words the reality for that person will differ from “piece to piece” however that “piece” will have its own name and describing it allows the people understand a fragment of it albeit from a personal and/or observational perspective. Its hard to get the balance right but it is worth it.

Definition vs Describing vs Identification 

It isn’t defining people by the labels offered which is from an educational, resource perspective and even a self-reflective perspective. It is offering a window of what could be going on. I am not the speaker for all (never have been) but I put the questions out there.

 

Human Beings First

If we (as human beings) all defined ourselves by a set of labels it would be rather reductive and in reality a real shame. At the end of my sessions I offer a reality that despite the differing levels of “pieces” and/or disability  they are not defined by  their condition, they are human beings first like everyone else.

Paul Isaacs 2017

 


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Autism “Culture”, The Word “NT” and Militancy

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If people are representing one has to think about is it for other people? Self-service? Advocacy? Empowerment? Information sharing? 

Militancy Is it “Normal”?

If militancy is perceived as the norm then who is that actuality helping? Assisting? Or otherwise is this the new phase that becomes relevant before it becomes redundant and passe?

The leader of their group replied in a tone lacking in warmth, ‘it would have been better without any NTs present‘. The others chimed in in support of him. Alienated, I left them to it.

Later when they were buddying up with more of the same separatist rhetoric and there was a tone to it that sat uncomfortably with me, a tone I’d heard before, in hierarchical non-autie children in playgrounds once upon a time (where I’d also known nice ones).

I had to let this group know that I simply don’t do bigotry… that my non-autie friends are not typical, mundane, boring or expendable and that I refuse to use any derogatory term that hints they are such, such as ‘NT‘.

As you can imagine, they were quite taken aback. I was meant to ‘understand’. I was meant to be ‘one of them’. But if ‘one of them’ meant I was meant to hang out in a group and dislike or disrespect another group, and share this as ‘belonging’ and ‘shared culture’ and ‘shared understanding’ then this wasn’t ‘me’.

Donna Williams

If this is the case what example is being set? By noting ones perceived superiority or “specialism” over others is still bigotry, separatism and creates more waves of the old “them and us” which doesn’t represent inclusion, empowerment, reality-sharing or otherwise. Which burns bridges more bridges than it claims to build.

The Word “NT” It Isn’t Helpful

I have come to believe that the word “NT” is not only unhelpful  and has been projected in such a way that would imply that other people who fit this “label” are “typical” therefore one could perceive that word as “boring”. I find this not only hypocritical but also a mystery because in truth there is no such thing as a “neurotypical”.

Autism “Culturism and Militancy”

The English word militant is both an adjective and a noun, and is usually used to mean vigorously active, combative and aggressive, especially in support of a cause

One cannot cherry pick what autism is and isn’t as a shared collective that is same for everybody in the truth autism in its presentation and reality is different for each person so in order to advocate and empower you have to be aware that the only reality you can share is your own and be humble and conscious enough to say that. To allow other people’s realities to relevant you cannot speak for all, to empower you cannot project “reality sameness”  because no human being is the same.

No One Should Be Defined As One “Label”

Can anybody be defined by one factor? Can anybody describe themselves in one word? I do not define myself by my “autism” it is certainly apart me but it isn’t the driving factor at all. When I was born I was born a human being and all that comes with it I live as a human being. There is much to be said about in the end being emotionally grounded, considerate and realistic.

Egalitarianism – The Way Forward

Egalitarianism (from French égal, meaning ‘equal’) – or equalitarianism[1][2] – is a trend of thought that favors equality for all people.[3]Egalitarian doctrines maintain that all humans are equal in fundamental worth or social status,

My wish is that in order for this to work people must consider all realities, perspectives, opinions and input in a constructive manner that is overall beneficial.

Paul Isaacs 2017

 

 


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A Humanistic Psychological Approach To Autism

maslow's hierarchy of needs five stage pyramide

 

Humanistic, humanism and humanist are terms in psychology relating to an approach which studies the whole person, and the uniqueness of each individual.  Essentially, these terms refer the same approach in psychology.

Humanism is a psychological perspective that emphasizes the study of the whole person. Humanistic psychologists look at human behavior not only through the eyes of the observer, but through the eyes of the person doing the behaving.

McLeod, S. A. (2015). Humanism. Retrieved from http://www.simplypsychology.org/humanistic.html

Looking at whole person means you look at every aspect of the person and how what is going on lets look at this in the context of autism

  • The Environment (social connections, relationships, friendships)
  • Personality (development of personality, traits, types and “disordered extremes” which also connects with communication styles, wants, needs, desires, aspirations etc)
  • Education (types of learning, style of learning, solitary, social, mixed)
  • Information processing (delayed, mixed, information overload)
  • Language processing (literal, aphasia, semantic pragmatic disorder)
  • Sensory integration (over or under processing/integration of sensory input)
  • Sensory perceptional (face-blindness, meaning blindness, object blind and other associated perceptual disorders) 
  • Emotional regulation and perception
  • Mental Health (mood disorders, attachment disorders, dissociative disorders, impulse control disorders, psychosis)
  • Identity (male, female, non-binary, hertrosexual, homosexual, bisexual, asexual etc) 
  • Co-dependency (dependant personality, passive-aggressive personality and attachment) 
  • Dietary Disabilities (food intolerances, food allergies, chemical imbalances)  
  • Metabolic disorders
  • Auto-immune disorders
  • Seizure Disorders

Holistic Psychology

Holism refers to any approach that emphasizes the whole rather than their constituent parts. In other words ‘the whole is greater than the sum of its parts’. Qualitative methods of the humanistic approach reflect a holistic position. Social psychology also takes a holistic view.

A holistic approach therefore suggests that there are different levels of explanation and that at each level there are “emergent properties” that cannot be reduced to the one below.

Reductionist explanations, which might work in some circumstances, are considered inappropriate to the study of human subjectivity because here the emergent property that we have to take account of is that of the “whole person”.  Otherwise it makes no sense to try to understand the meaning of anything that anybody might do.

McLeod, S. A. (2008). Reductionism and Holism. Retrieved from http://www.simplypsychology.org/reductionism-holism.html

I would say with working in the autism field for over seven years you must look at all the factors and how the interact with EACH OTHER such as personality development for example will dictate how  people react and however the underpinnings are to do with biological, psychological and environmental factors.

All Voices are Equal

All voices and perceptions are equal and that means that differing realities, perceptions and knowledge has to be taking into account so that can be. There should be no “them vs us” or segregation burns far too many bridges. This can be from differing realities such as neurobiology, auto-immunity and metabolic disorders, dietary needs and many more.

Listening, Empathy and Autonomy

Self-worth, self-esteem, self-perception are to do with how we feel about ourselves in relation to others and how other’s feel in relation to you here are simple aspects of that.

congruence

  • Trust (Building stable, balanced and honest friendships and/or relationships)
  • Empathy (Showing genuine kindness, assertion and care which is balanced, contextual and meaningful)
  • Listening (Acknowledging the person as a human being first through listening to their wants, needs, desires and aspirations) 
  • Being Non-authoritarian and egalitarian (Show through example, intention and meaning that being equal is the standard stetter nothing more or less)
  • Allow for growth and developmental, psychological and environmental changes  (Change is good it can be progressive, assertive, connective, inspiring and fun)
  • Everybody is a person (Be non-judgmental, objective and constructive the key for allowing growth is to see the person first) 

 

Fruit Salad 2017

 

What makes each person with autism so different from each other?  How do you learn to ‘speak autistic’?  What are the low cost and no cost strategies to help people with autism manage their own particular collection of challenges?

Published in 2005, The Jumbled Jigsaw is an easy to read, ‘quick dip’ self help manual on the ‘Fruit Salad’ model of and approach to the navigation and management of autism.  It exposes autism spectrum disorders (ASDs) not as single entities but as a combination of a whole range of often untreated, sometimes easily treatable, underlying conditions. Exploring everything from mood, anxiety, obsessive-compulsive and tic disorders to information processing and sensory perceptual difficulties, including dependency issues, identity problems and much more, it demonstrates how a number of such conditions can combine to form a ‘cluster condition’ and underpin the label ‘autism spectrum disorder.  Most importantly it gives case study examples and clear strategies for management of each piece of autism spectrum ‘fruit salad’.

Donna Williams 2005

My Conclusion is that looking at the “bigger picture”, “the whole person” and the interacting components form an “inside-out” perspective means that you can potentially enrich and EMPOWER people live giving the them the building blocks to make choices, self-assertion, independence and self-worth.

Paul Isaacs 2017