Paul Isaacs' Blog

Autism from the inside

An Accessible Look At My Autism Profile – Part 1

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ReceptionThis is a laymen’s terms/accessible version of my autism profile – although I have written previous blogs with technical information about the “mechanics” of my autism here is an “easy read” version of my autism which is broken down into a heading and paragraphs and/or sentences with hyperlinks attached for further information. 

As always this is from a personal perspective.

Alexithymia (Emotional Processing)

Not understanding, processing or receiving my own emotions in “real time” this also affects how I understand bodily messages such as thirst and hunger – Poetry, painting , drawing and music help me process my emotions contextually.

Aphasia (Language Processing)

I have processing delay with language this means I struggle to find words, lose them, find them again and lose them again etc – I live before literal and struggle to find significance in language – however music, bests, rhythm and gesture help me access meaningful language.

Speech Delay (Developmental Milestone)

The developmental milestone of speech was delayed noticeably during my early years (please checkout other blogs for further information).

Language Delay (Developmental Milestone)

The developmental language milestone where delay even when speech was acquired.

Speech Apraxia (Verbal Dyspraxia) (Body Disconnection/Mouth)

I had a disconnect between my body and brain so my brain would have words but my body (mouth, jaws, tongue and lips) didn’t seem to want to “join up” this lead to feeling of heightened frustration to total indifference.

Selective Mutism – (once functional speech was acquired) (Co-Condition

In times of anxiety and/or dissociation I would choose to be mute

Tic Disorder & Globus Pharyngis (Co-condition/Mental Health) – 8 Years old – was called a “Nervous Throat”

This was due to a sensation of something being within my throat this would cause me to throat clear in an abrupt and idiosyncratic (odd) fashion.

Echophenomena (Developmental Milestones – Speech, Movement, Body Language)

  1. Echolalia – Echoing of words (delayed and instant)
  2. Echopraxia Echoing of movements (delayed)
  3. Echomimia Echoing of facial expressions (delayed)
  4. Palilalia Echoing of one’s own words (instant/delayed)

Visual Agnosias (Visual Perceptual Disorders/”Seeing” without meaning and/or “Seeing” but not piecing the “wholes” together)

Semantic Agnosia (Meaning Blindness)

Not retaining what is being seen so I would tap, sniff, lick, rub, mouth and tongue to gain a reality and an experience of my environment.

Simultagnosia (Object Blindness)

Not seeing in wholes – so seeing “fragments” and not seeing the “whole picture”

Prosopagnosia (Face Blindness)

Not processing faces and/or recognising  people by their faces.

Visual – Verbal Agnosia (Comprehension Blindness)

Reading without internalising/retaining meaning

Colour Agnosia

Seeing colours but not processing/understanding or recognising differentiation between them by name (in my case I recognise red but struggle to sometimes name of colours)

Mirror Agnosia (visual processing) 

Not understanding nor processing “other” or “self”  in mirrors for example I would and still get fooled by mirrors and when I was younger used to think that was behind me was in front of me.

Form Agnosia (Visual/Cognitive/Auditory & Contextual) 

Not configuring the “whole”

Pure Auditory Agnosia (Auditory Perception)

Not processing/understanding or the “origins” of sounds and associating them when I next “hear” them.

Language Auditory Agnosia (Meaning Deafness)

A type of aphasia (Language processing disorder).

Tonal Agnosia (Atonia) (Language Processing)

I “hear” tone but sometimes do not associate with meaning.

Pain Agnosia (Body Disconnection) 

I do not process pain at all or there is a significant delay in recognition.

Visualspatial Dysgnosia (Body Blindness)

I do not recognise my body in space so I wear tight clothes, bracelets, tight shoes to get a “reference” of my body.

Finger Agnosia (Digit Blindness)

As a child I had trouble reference that I had fingers and “where they were” this was due to body disconnection.

Paul Isaacs 2015

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Author: Paul Isaacs

Paul was branded as a “naughty & difficult child” at school. He was classically autistic and non-verbal due to speech articulation difficulties. He had complex sensory issues and appeared both deaf and blind. He gained functional speech around the age of 7 or 8 years old. He went through the mainstream school system with no additional help or recognition of his autism. Consequently, he did not achieve his academic or his social potential and had very low self-esteem. At age 11, Paul was referred to the children’s mental health service with childhood depression where he was regarded as “developmentally underage” and having speech problems. As an adult, Paul had a string of unsuccessful jobs, and his mental health suffered. He developed both Borderline and Schizotypal Personality Disorders in early 2007. He was referred to mental health services and misdiagnosed with “Asperger traits with a complex personality”, which did not satisfy Paul or his family. A local autism organisation put Paul in touch with an experienced psychiatrist, who diagnosed him with Autism at 24 years old. In 2012 Paul was also diagnosed with Scotopic Sensitivity Syndrome by an Irlen Consultant who confirmed that he also had face, object and meaning blindness – conditions which Paul describes eloquently in his speeches and training sessions. He also has dyslexia, dyscalculia and also a dissociative disorder. Having started working as an local autism organisation as a public speaker in 2010, Paul joined their mission to promote autism awareness. His hope is that others will not have to suffer as he did. Now also a core member of our Training Team, Paul continues to enhance true understanding of autism at every opportunity. Paul has released and published 5 books on the subject of autism published by Chipmunka publishing and has contributed to other books too. Having overcome many challenges to achieve the success that he now enjoys, Paul’s message is that Autism is a complex mix of ability and disability. He firmly believes that every Autistic person should have the opportunity to reach their potential and be regarded as a valued member of society. Apart from autism related blogs Paul also write about movies, fashion, art and anything that is of interest. As of August 2015 Paul now works as a freelance speaker, training and consultant in and around the Oxfordshire & Buckinghamshire area. If you are interested please contact him via email at staypuft12@yahoo.co.uk

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