Paul Isaacs' Blog

Autism from the inside

Neurodiversity – Sometimes Things Have To Be Questioned

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Dr Casanova

Dr Casanova

I have a lot of respect for Dr Manuel Casanova and this a very revealing blog about the subject of neurodiversity and what it means – it is my opinion that no one person can “represent” autism just because they themselves are on the autism spectrum.

I Can Only Speak About My Reality With Autism

I make professional and moral judgement to say this is my profile and that is the ONLY place it is coming from (I can’t speak for others on the spectrum) – I say “I” and “me” not “us” and “we” in speeches (again I cannot speak for everyone on the spectrum that doesn’t make sense).

I don’t believe autism is a “culture” either (I am apart of the human race) and I think we need think about what is projected and who is losing out? Is it people who don’t tow the line, fit the “stereotypes” are not seen as good advocates because of their “functioning”. I wonder? I know we all have a story to tell? But is it right for someone to tell their story on everyone else’s behalf?

Empowerment & Acknowledgment Of Multiple Realities Of Autism 

Autism is a “Fruit Salad” it is not one thing, it isn’t one syndrome and it affects people in different ways so what Manuel is advocating is that the more realities we acknowledge and listen to the more understanding we have – their should be no single representation because the voices get lost, realities can form into assumptions and they are both dangerous and can make people feel isolated and alone in their struggles.

Autism As As “Fruit Salad” & Breaking Down “Stereotypes”

Fruit Salad Analogy Copyright D.Williams

Fruit Salad Analogy Copyright D.Williams

As Donna Williams analogy points out “Autism” is not “one thing” it is a clustering of different pieces that create the person’s on unique profile and presentation that means that logically no one person is the same on the autism spectrum, therefore realities within autism are different and people on the spectrum are not all the same, nor do they have same needs, desires or aspirations. I will take that one step further and say if someone got up on stage and talked about “non-autistic syndrome”  and made the assumption every one with this syndrome is the same we would be in big trouble.

The Whole Spectrum & Personhood 

I am for one agree and for empowerment, inclusion, diversity but that must be inclusive to the whole spectrum of “Fruit Salads” and the realities within them and seeing someone’s personhood is very empowering.

People With Classic Autism and/or Learning Disabilities & People Who Are Functionally Non-Verbal (Who Are Empowered By Different Forms Of Expressing Words 

Looking at the whole spectrum means looking at different profiles and presentations and the firm empowering inclusion of people with classic autism and/or learning disabilities and people who are functionally non-verbal. Sometimes I worry that people with these diagnosis’ (who are considered to have an “exotic” or “atypical” presentation) and profiles don’t get recognition or heard. They are competent folk who need support too and their realities should be explored and recognised. They deserve to have voice.

Parents Views

Parent’s views are very important too and explorations of different ways to empower, support and help their children is also needed.

Autism “Politics” 

I stay neutral and balanced like I point towards being a moderate in my views on autism accepting the diverse, different realities and people’s stories and what their own personal experiences are (be that a parent, guardian, person on the spectrum etc) all are valid.

I have said before that I’m not a “curist” and I’m not an “ableist” but a “neutral” because I believe everyone has a story to tell without going to unhealthy extremes if we listened with our hearts we would learn about each others experiences.

Other Blogs On The Subject

Please Include Everyone On The Autism Spectrum, Listening Is Positive & No One Person Can Speak For Everyone On the Autism Spectrum

Listening & Hearing Everyone’s Views In The Autism”World”

Paul Isaacs 2015

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Author: Paul Isaacs

Paul was branded as a “naughty & difficult child” at school. He was classically autistic and non-verbal due to speech articulation difficulties. He had complex sensory issues and appeared both deaf and blind. He gained functional speech around the age of 7 or 8 years old. He went through the mainstream school system with no additional help or recognition of his autism. Consequently, he did not achieve his academic or his social potential and had very low self-esteem. At age 11, Paul was referred to the children’s mental health service with childhood depression where he was regarded as “developmentally underage” and having speech problems. As an adult, Paul had a string of unsuccessful jobs, and his mental health suffered. He developed both Borderline and Schizotypal Personality Disorders in early 2007. He was referred to mental health services and misdiagnosed with “Asperger traits with a complex personality”, which did not satisfy Paul or his family. A local autism organisation put Paul in touch with an experienced psychiatrist, who diagnosed him with Autism at 24 years old. In 2012 Paul was also diagnosed with Scotopic Sensitivity Syndrome by an Irlen Consultant who confirmed that he also had face, object and meaning blindness – conditions which Paul describes eloquently in his speeches and training sessions. He also has dyslexia, dyscalculia and also a dissociative disorder. Having started working as an local autism organisation as a public speaker in 2010, Paul joined their mission to promote autism awareness. His hope is that others will not have to suffer as he did. Now also a core member of our Training Team, Paul continues to enhance true understanding of autism at every opportunity. Paul has released and published 5 books on the subject of autism published by Chipmunka publishing and has contributed to other books too. Having overcome many challenges to achieve the success that he now enjoys, Paul’s message is that Autism is a complex mix of ability and disability. He firmly believes that every Autistic person should have the opportunity to reach their potential and be regarded as a valued member of society. Apart from autism related blogs Paul also write about movies, fashion, art and anything that is of interest. As of August 2015 Paul now works as a freelance speaker, training and consultant in and around the Oxfordshire & Buckinghamshire area. If you are interested please contact him via email at staypuft12@yahoo.co.uk

One thought on “Neurodiversity – Sometimes Things Have To Be Questioned

  1. Nice piece! No two siblings are the same. There could be some striking similarities as in features but other than that, each ASD person is different.

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