Paul Isaacs' Blog

Autism from the inside


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Power Rangers – Memories of Childhood – Autism, Echolalia, Echopraxia, Echomimia & Fond Memories

From 1993- 1996 I watched and experienced the first four seasons of the Mighty Morphin’ Power Rangers (footage was adapted from the long running Japanese Sentai Series) which was on GMTV in the United Kingdom for me this was a sensory experience and was very entertaining for me to watch and enjoy as a youngster.

Rita & her Minions - Goldar, Finster, Squatt & Baboo

Rita & her Minions – Goldar, Finster, Squatt & Baboo

 

 

Megazord  & Mega Sword

Megazord & Mega Sword

“Seeing” & Hearing” In Bits & Pieces & Enjoying The Sensory Ride 

Being meaning deaf and meaning blind (seeing and hearing in fragments) – These bunch of unique characters where colourful, over the top and fun to watch and listen too the viewing time was 20 mins approx ( in which the Power Rangers would always win only if there was a story with more than part).

Echolalia, Echopraxia & Echomimia 

Yes with the advent of VHS I had two episodes which are my favorites to this day “I, Eye Guy” & “For Whom The Bell Trolls” – I would copy the movements and sounds of the characters in particular when Rita threw her wand down to earth and the Zords battling the monsters and it would be 40 minutes of fun for me.

 

Make My Monster Grow!

Megazord Formation

 

Conclusion

I’m pleased to say that I have seasons the first four seasons on DVD and these bring back fond memories of my childhood, even though I have pointed out during this blog developmental aspects of my Autism it was never the less a enjoyable experience for me to have.

 

 

 


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Tales From Cyber-Land – Experiences of Manipulative & Bullying Behaviours on Social Media

lap topOVERVIEW

Today I will be writing about the social networks which are available on the world wide web and how people can protect themselves and the new phenomenon that seems to be happening on the world of social interaction.

Projection 

I have recently had a negative interaction on a social network with regards to differing opinion – in my mind differing opinions and different values and understanding that all people have different perspectives on life, situations and contexts is fine but when does it become not fine, when does it become a potential attack? Here’s my story.

Ad Hominem Argument 

This can be a in-direct a attack on the person through the sub-text of arguing a point (where it isn’t the point being argued about  but it is inter-woven with subtext which is about the person themselves.

Minimisation Tactic & Rationlisation Tactic 

is a type of deception involving denial coupled with rationalisation in situations where complete denial is implausible. It is the opposite of exaggeration.

Minimization – downplaying the significance of an event or emotion – is a common strategy in dealing with feelings of guilt

This can be used as a way of down playing the initial comments – the messages I got was that the comment was “fair” and that it is my perception which is false, however I explained the the person in question that the words hurt and I was bringing this to his attention. I also pointed at this person’s behaviour to a member of their family something that wasn’t liked.

Gas – Lighting Tactic 

Is a form of mental abuse in which false information is presented with the intent of making victims doubt their own memoryperception, and sanity. Instances may range simply from the denial by an abuser that previous abusive incidents ever occurred, up to the staging of bizarre events by the abuser with the intention of disorienting the victim.

Not taking responsibility for one’s own words, behaviours and actions towards other people is a personal worry for me it seems that in society this is becoming more and more common.

Manipulation, “It’s Not Me It’s You”, Shaming & Guilt Trips

The person’s last message was that I was the bully and manipulator because I saw myself as the victimsilenced them, made them guilty of their own behaviours and told a member of their family about their behaviours.

Again this is the above mixed with denial  of their behaviours, manipulating and shaming (implying I’m was a whining  pussy, using sarcasm  as an attack, saying I was immature & “crying” to their family member etc) myself to believe it was my fault and that I was the very thing they are. Sometimes when the mirror is held up to people like this their last tactic is to say to the person you are everything I am.

I can say with all honesty that I’m not a bully and do not want to hurt people in such a destructive and demoralising way – we all have feelings.

Parents Help

I’m thankful to have parents that are wise, assertive and have common sense they helped me through this process by understanding the intentions behind the words and helping me build up strategies to deal with such people. For that I’m thankful. :-) My advice is to talk others friends, family etc share the content, messages and get their opinion if you  have a “feeling” that this is wrong and need help please share.

Block & Remove & Use The Off Button

Please be aware in the virtual world you can block and remove unsavory people from your lives (these people have been) and sometimes removing yourself completely by turning your laptop, computer or what ever other appliances off and looking outside in the real world.

Do words Hurt?

Yes they do people do. People do have a moral obligation to understand the affect of negative words have on other people such as their – emotional feelings, nervous system and mental health etc. If we went around life with no empathy or moral compass choosing not the acknowledge the demoralising affect negative words have on people then it would be a sad world indeed.

CONCLUSION 

I bear no grudges on the individual and wish them well in their life, but what can be learned from this is the seriousness of how online social media has changed the way we interact with people and how it can be abused.

Paul Isaacs

Adult with Autism 2014

 

 

 

 


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Ishrat Fazal – Disaiblity Advocate & President of DEVELOPMENT OF DISABLED WOMEN ORGANIZATION in Faisalabad, Punjab, Pakistan

Ishrat Fazal

         Ishrat Fazal

Ishrat is an amazing advocate for people with disabilities she strives for positive and inclusive opportunities for people with disabilities in her country, please read her amazing story below.

Ishrat’s Story 

Today I want to share my personal experience with you because my heart pushes me to do so; you will get insight and know how my heart is for this call and its respond. I was effected polio when I was just three years old.

Then my poor parents admitted me in the school and used to take me on their shoulders to drop at school with great difficulty attempted F.A Intermediate.

Then I started to prayed that in my area and country’s all disabled men and women, girls and boys, kids are just ignored, our culture consider my type of kid as curse of God to any family who has such kids.

So I stared feeling and praying that I must take indicates for people like me especially as girl where women are more put behind in all walks of life. When a man face hatred due to disability than what about women at this land who is consider as shoes feet of men.

Then I started to search for disabled people around without discrimination of religion, color or creed. Then we were having troubled due to so much hurdles, in the meanwhile my parent saw a man who was willing to get marry in spite of my disability so I got married and were gifted three kids, two boys and one girl. When my home was so much busy but i kept on thinking how i can become worthwhile for PWD’s, I started working with one NGO who was showing that its improving lives of people with disabilities but when i got attached with them, they were presenting me in-front of their foreigner as just show piece of their business, they were paying me 10 $ per month, as salary which even was not covering my travelling from home to that area but they never prayed any attention. to me, they sent me  to America for one training course which MIUSA held in 2006 in Eugene Oregon and you know what humiliation was made of my personality, Pakistani NGO’s holder took money from them but they didn’t training me in English Language why because they didn’t want me to have is proficiency to explain what is going on actually so that I couldn’t tell truth about their fraud while attending course in America, American trainers were told that she can speak English and can communicate well but it was wrong. I was informed by that NGO that in America you will have translator provided by the Course organizers.

I came to know that program organizer sent money for six months tuition to get equipped with English proficiency so that I could get good learning there and could participate but due to NGO’s people corruption so I attended course like dumb people, I could speak and understand very low. Any ways that course and exposure taught me lesson and encouraged a lot, it was a golden chance of my life that turn ups & down all my thinking and way to work. I came back but huge challenge was with me that I had no finance to get start and also I left that NGO which was just using me like a doll.

They sent police at my home, my in laws already were against me due to my disability as they didn’t accept me their daughter in law because I can’t walk and serve them as other people. My very small kids were so much afraid and cried when police came at home , I told them everything but because of bribery those NGO people gave police for their wrong favor, police was taking action against me then we wrote to MIUSA and they sent email which we showed to the police station. Since then I was fire in my heart to struggle and fight against the discrimination against PWD”S in Pakistan. I established one organization and its now working some of our local people has supported us but we don’t have International donors. While reading my personal experience as disabled lady, I hope you might have reached to the climax of my sharing that I am willing with my team for PWD but need more sources and resources which without funds is not possible. You can well imagine how much am with fire in my heart, we have lots of plan, project which can be fruitful for Disabled men, women,& children.

Please join hands with me as I read and see you hard work, I feel what war is, and you are fight with. It’s really difficult to give time to family, friends and to my mission at the same time but I feel it’s possible because I am filled with vision, it must has way to flow by now. You come to Pakistan, visit us and see because by visiting, you can have clearer picture in your mind. God bless you. 

Paul Isaacs 

Adult with Autism 2014 


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Mesothelioma  Awareness – Heather Von St. James

Heather Von St. James 2013

Heather Von St. James

Cameron & Heather Von St. James

 
Cameron Von St. James contacted me and talked about his wife Heather’s amazing and inspiring journey with Mesothelioma a form of cancer – through awareness we can reach out to those who are touched by cancer the people, their families, friends and loved ones and help.
I urge people to become aware and share their stories, moments and hearts to this cause and spread awareness, knowledge and hope.
 

Mesothelioma that affects the pleura can cause these signs and symptoms:

·         Chest wall pain
·         Pleural effusion, or fluid surrounding the lung
·         Shortness of breath
·         Fatigue or anemia
·         Wheezing, hoarseness, or cough
·         Blood in the sputum (fluid) coughed up (hemoptysis)
In severe cases, the person may have many tumor masses. The individual may develop a pneumothorax, or collapse of the lung. The disease may metastasize, or spread to other parts of the body.
Tumors that affect the abdominal cavity often do not cause symptoms until they are at a late stage. Symptoms include:
·         Abdominal pain
·         Ascites, or an abnormal buildup of fluid in the abdomen
·         A mass in the abdomen
·         Problems with bowel function
·         Weight loss
In severe cases of the disease, the following signs and symptoms may be present:
·         Blood clots in the veins, which may cause thrombophlebitis
·         Disseminated intravascular coagulation, a disorder causing severe bleeding in many body organs
·         Jaundice, or yellowing of the eyes and skin
·         Low blood sugar level
·         Pleural effusion
·         Pulmonary emboli, or blood clots in the arteries of the lungs
·         Severe ascites
A mesothelioma does not usually spread to the bone, brain, or adrenal glands. Pleural tumors are usually found only on one side of the lungs.
Copyright Wikipedia 2014

Useful Links

 

 

 


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I Want The Dignity That I Have Slowly Lost – A Snapshot In Time

Me and Dad - Toddler 2Overview

Snapshot In Time 

I said once sometime ago that in the Autism World I’m the square peg in the round hole, this certainly still applies – my dignity (currently what’s left of it) has been stripped, my mental health plummeted (I have had one month of stability so far) and it is too much for me. I have views that count just like anybody else and I don’t feel equal in a world (Autism) that told me I would be, I don’t feel equal when I accept others points of view but I am still “wrong”‘.

I don’t feel equal at all I feel I’m the lowest of the low because I don’t confirm to majority’s thought. We all need to listen and not project, I’m no better than anyone else but I have been made to feel worse because of this. No I’m not equal at all in the Autism world to many politics and it had had made me ill. I thought it was inclusion for all?

I was gravely mistaken. The only person apart from my close family and friends who has helped me retain my dignity is Donna Williams and I thank her for it.

All because I wanted to give the message that I’m a person? And so are others on the spectrum? I am saddened and ashamed at how I have been treated.

Conclusion

Why? that is the question? The reality came calling the day I wrote this and what I say is that in order to be oneself one must not be confined by militant, sycophantic , limerant and bullying behaviours (this includes people on and off the autism spectrum) and equally what I have learned is to learn to not be affected as I was when this was written. I have been bullied, lied to and manipulated in the Autism world (causing a nervous breakdown and 8/9 months of mental illness) by people I thought I could trust and quite frankly I want no part of a “world” that advocates such things This is indeed a snapshot in time.

Condition First Language & Autism Group Think

I will not be defined by a condition and I will always be “Paul” and I will not accept militant behaviours but must accept to let them get on with it – My message is not to get involved in Autism Politics unless you have a strong stomach. ;-) I have nothing to prove and nothing to fear from not being in the “in-crowd”.

The point of inclusion is to include everybody  and politely and democratically agree to disagree in circumstances of difference – As I have said before not one person can talk for all people on the spectrum (that includes people on the spectrum who are public speakers/trainers)

  • Not one person has Autism the same way as everyone else
  • There should be more inclusion for people who have a Learning Disability
  • People on the spectrum who use other forms of communication to get their inner words out
  • People on the spectrum who have Auto-Immune Disorders

 

I will always be a non-conformist, there’s conformity in that

Paul Isaacs

Adult with Autism 2014


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Listening & Hearing Everyone’s Views In The Autism”World”

Trees

Trees

A Reminder of my stance on Autism Politics – every one has a story to tell and the in a free democracy (and within moral context) should be able to express their views but when it becomes to being militant, political and nasty I don’t want any part of it.

LISTENING TO EVERYONE

We must take into account both stances in a balanced manner (their realities,experiences, thoughts and feelings) which is excellent but not militancy it will get people nowhere it makes others feel alone and “wrong” (for what ever reason) – lets just except both sides and be neutral and open our hearts that both sides have equal validity. 

NO SINGLE REPRESENTATIVES

Remember one group of people can not represent all (in any context), one person cannot represent “one condition”, one group cannot be self-righteous but what we can try and do is  be accepting.

AUTISM JOURNEYS

The Journey to having Autism is diverse, complicated and very real for parents/carers and they have a right to express their reasons for how their child has come to have Autism.

Fruit Salad Analogy Copyright D.Williams

Fruit Salad Analogy Copyright D.Williams

AUTISM & AUTO-IMMUNE ISSUES

Being open to the fact that people some with Autism (including my Father) have compacting health issues which can lead to serious complications, some people have metabolic, collagen, gut and cellular which is APART of their Autism Profile and can in turn have an impact on their  communication, sensory integration/processing.

AGNOSIAS. APRAXIAS, APHASIAS & BRAIN INJURY

Autism Processing includes – Agnosias, Apraxias, Aphasias are related to brain injury (just read about these conditions and see for yourself) and and some people’s trajectory to getting “Autism” is through brain injury. (but that is my journey not anybody else’s).

AUTISM & PEOPLE WITH A LEARNING DISABILITY

Some people with Autism have a Learning Disability which is to do with how people cognitively processing information (not a “lack” of something but that is how it is portrayed) – the lack of inclusion for people with Autism and an LD is a personal worry for me as inclusion for all should mean that they have views and opinions too which are equally valid.

DIFFERENT FORMS OF COMMUNICATION

Some people with Autism have others ways of communicating (FC for example) their inner most thoughts, feelings and expressions which are equally valid in way in which they are expressing it and shouldn’t be frowned upon or questioned as it is their way of communicating.

LISTENING TO OTHERS

So lets strip away all the politics from both sides and listen to each other.  I live in hope. 

PERSONHOODS

Taking a step back from this has be a relief and remember people on the spectrum’s personhood’s never let them forget that.  

Paul Isaacs Adult with Autism 2014


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Please Include Everyone On The Autism Spectrum, Listening Is Positive & No One Person Can Speak For Everyone On the Autism Spectrum

Sensory ExplorerOVERVIEW

I suppose I feel this needs to be said – “what about?”  That is the question I feel compelled to ask it when it comes to the “Autism World”  I feel there needs to be more positive and inclusive opportunities/voices for people with Classic autism with or without a Learning Disability - they deserve to have their say, as do their parents and their loved ones it’s out of fairness? Surely?

THE FORGOTTEN

I write this in fear that these folks are forgotten when they are the people who are in specialist/residential services. These people are warriors believe me and they have to be acknowledged more. I have classic Autism and a Learning Disability but I’m not speaking (and can’t)  for everyone who has this diagnosis. (that would be unfair). 

INCLUSION FOR ALL – LISTENING

I am pointing out that they need a platform to speak/communicate their needs and opinions.  They’re clever, intuitive, intelligent folks with a lot to give and people can learn a lot in the process.  Let their personhood’s shine.  :-) Let’s listen.

THE PROBLEM WITH GROUP THINK

Don’t be afraid to go against the grain and be “the ol ‘square peg” this I why all people on the spectrum should have their opinions heard, profiles acknowledged (in a balanced manner and fair manner) and personhood recognised first. :-) I can only speak about my profile and how Autism is for me I cannot speak for others that would misleading and unfair that is why I don’t say us and we during my presentations, but I and me. If people relate to it excellent if they don’t that is excellent to – I learn from others on the spectrum to because all profiles are diverse and different. :-)

MILITANCY & BUILDING BRIDGES

Lets strip militancy, bullying and dictatorial behaviors it causes so many problems for people. By having a beautiful mixture of balanced views (in which people can agree and disagree in a healthy manner) from people with Asperger’s Syndrome, Autism, with and without a Learning Disability, Users of alternate communication, Parents, Professionals, Educational staff it creates positive energy. Everyone has a story to tell. :-)

TOO MANY POLITICS

Giving all folks on the spectrum a chance is so needed, lets strip all the politics out of it and listen to people’s hearts and experiences from all folks on the spectrum in equal measure – that would be lovely. :-)

MY STANCE ON AUTISM POLITICS

I have said before that I’m not a a “curist” and I’m not an “ablist” but a “neutral” because I believe everyone has a story to tell without going to unhealthy extremes if we listened with our hearts we would learn about each others experiences.

DON’T BE DEFINED BY AUTISM – BE “YOU”

See someone with Autism as a person not a set of “traits and symptoms” – this isn’t out of militancy that I say this but out of compassion and dignity – everyone is a person so therefore everyone is equal (even if people for what ever reason don’t treat someone with equality) – I’m not “special” because of my Autism nor I’m “unique” I’m just a person living/being the greatest gift is to give someone the dignity of being recognised as a person. I don’t belong to any “club” or “group” because I don’t want to be defined by it – I live my life as free as possible and as diverse as possible. 

Paul Isaacs

Adult with Autism 2014

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